Directory of Organizations
Recurrent Respiratory Papillomatosis Foundation (RRPF)
Director: Bill Stern
Address: P.O. Box 6643, Lawrenceville, NJ, 08648-0643
Voice: (609) 530-1443
Fax: (866) 498-7559
E-mail: rrpf@rrpf.org
Internet: www.rrpf.org
Description:
The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (i.e., difficulty in speaking), or aphonia (i.e., loss of voice).
The organization focuses primarily on networking within the RRP community, including patients, families, medical practitioners, and researchers. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets are available.
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