 Medical
Homes in Kentucky
This page is designed to keep you informed about events
and activities happening in Kentucky that will help improve
access to medical homes for children with special health care
needs (CSHCN).
Click on a topic below to learn more about what's
going on in Kentucky
Medical Home Initiatives
This section provides information
on state medical home initiatives/programs. States that
are a part of the mentorship
network will have a "Promise to the State"
which outlines how they will achieve ensuring that all children
have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to
achieve and
measure
success for all CSHCN.
Kentucky
Medical Home Contact:
Name: Rebecca J. Cecil- Acting Executive Director, Commission
for CSHCN
Contact: Phone: 502-595-4459 ext. 278
| Email: rebecca.cecil@ky.gov
Related Grant Initiatives
This section provides information
on current state grants that are working on medical home
initiatives. This includes the grant abstract as well as
key contacts for the grant.
 The Region 4 Collaborative (IL, IN, KY, MI, MN, OH, & WI)) was awarded a Medical Home Visting Professorship (2008)
Medical Home Visiting Professorship Pilot Program
The American Academy of Pediatrics National Center for Medical Home Initiatives for Children with Special Needs and the American College of Medical Genetics' National Coordinating Center for the Regional Genetics and Newborn Screening Service Collaboratives (NCC) in partnership with the ACMG and MCHB recently developed a pilot visiting professorship program. This program focuses on the specific topic areas of genetics and medical home and also establishing linkages between Regional Genetics and Newborn Screening Services Collaboratives (RCs) and AAP Chapters.
Family Support Planning Grant
The US Department of Health and Human Services, Administration
for Children and Families, has awarded the Commission for
Children with Special Health Care Needs (CCSHCN) a $100,000
family support planning grant.
The grant will support CCSHCN, Seven Counties Services,
Inc. and Kentucky
Special Parent Involvement Network, Inc. (KY-SPIN) in
developing a transition resource center for persons with
disabilities and their
families in the Louisville Metro's Neighborhood Place one-stop
family centers. The goal of the center is to support self-determination
among individuals with disabilities and their families across
all ages and
throughout their lifespan.
The resource center will assist persons with disabilities
plan for their futures, make choices about their daily lives,
and participate fully in community life. For children and
youth with disabilities, this means being
successful in school and transitioning from school to work
and to independent living. The center will assist the families
of adult children with developmental and/or physical disabilities
in which the parents or
caregivers are older, in planning for the future needs of
their children.
A number of state and local agencies and organizations have
agreed to participate in the development, including: Louisville
Metro Cabinet for Health and Human Services, Jefferson County
Public Schools, Kentucky Department for Community Based
Services, Kentucky Council on Developmental Disabilities,
Kentucky Division of Protection and Advocacy, Council on
Mental Retardation, Center for Accessible Living, Metro
United Way, South Louisville Community Ministries, University
of Kentucky's Interdisciplinary Human Development Institute,
and the Department for Employment Services.
Partners in the State
This section provides information on who in the state
(individuals and agencies) are working together to create
medical homes for children.
American Academy of Pediatrics (AAP) Chapter:www.kyaap.org/
American Academy of Family Physicians (AAFP) Chapter:
www.kafp.org
Title V Block Grant to States
Title V of the Social Security Act is one of the largest
Federal block grant programs. It leads the nation in ensuring
the health of all mothers, infants, children, adolescents,
and children with special health care needs (CSHCN). Title
V is administered by the Maternal and Child Health Bureau
(MCHB) as part of the Health Resources and Services Administration,
U.S. Department of Health and Human Services.
Title V and Children with Special Health Care
Needs
MCHB Objective: Support development and
implementation of comprehensive, culturally competent,
coordinated systems of care for the estimated 18 million
U.S. children who have or are at risk for chronic physical,
developmental, behavioral or emotional conditions and
who also require health and related services of a type
or amount beyond that required by children generally.
MCH Contact:
Ruth Ann Shepherd, MD, FAAP, CPHQ
Director
Address: 275 East Main Street
Frankfort, KY 40621
Phone: 502-564-4830| Fax: 502-564-8389
Email: ruth.shepherd@ky.gov
CSHCN Contact:
Eric Friedlander
Executive Director
Address: 982 Eastern Parkway
Louisville, KY 40217
Phone: 502-595-4459| Fax: 502-595-4673
Email: eric.friedlander@ky.gov
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote
universal newborn hearing screening, develop effective tracking
and follow-up as a part of the public health system, promote
appropriate and timely diagnosis of the hearing loss, prompt
enrollment in appropriate Early Intervention,
link newborns to a medical home and strive to eliminate
geographic and financial barriers to service access.
Name: Carolyn Kisler
Contact: Phone: 270-889-6407, ext. 15
E-mail: NCarolyn.Kisler@ky.gov
Commission for Children with Special Health Care Needs:
http://chfs.ky.gov/ccshcn
Section 619/ Preschool Grants Program of the Individuals
with Disabilities Education Act (IDEA). This program
provides free appropriate public education (FAPE) for children,
ages 3 through 5 years, with disabilities:
Name: Barbara Singleton, 619 Coordinator
Contact: Phone: (502) 564-7056 | Fax:
(502) 564-6952
Email: bsinglet@kde.state.ky.us
Web Site: www.education.ky.gov/
State Interagency Coordinating Council (ICC) Chairs:
The ICC advises appropriate agencies on the unmet needs
in early childhood special education and early intervention
programs for children with disabilities, assists in the
development and implementation of policies that constitute
a statewide system, and assists all appropriate agencies
in achieving full participation, coordination, and cooperation
for implementation of statewide system.
Name: Janet Barry, ICC Chair
Contact: Phone: (606) 329-8588 x4088
| Fax: (606) 329-8195
Email:
jbarry@pathways-ky.org
Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process
that allows state Medicaid agencies to apply for and receive
permission from HCFA to provide services not otherwise covered
by Medicaid and/or to do so in ways not described by the
Social Security Act. Most Medicaid managed care programs
require Waivers. The Waivers, which can differ greatly,
are known by their numbers (1115, 1119), or as home-and
community-based, or as Katie Beckett Waivers.
Educational Initiatives
This section provides information
on training initiatives on the medical home. Some states
will discuss their outreach projects in relation to physicians,
families, and the community.
No information is currently available for this category.
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative
Links
- Newborn Screening State Contact Fact Sheet
State Resources on the Internet
Note: The information provided on the state pages was submitted
by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your
state resource page. You can contact us at: medical
home@aap.org.
Last Updated
August 28, 2008 |
