 
Welcome to A Public Health Perspective, the National Office of Public Health Genomics's highlights page. Each Public Health Perspective focuses on a single topic and contains information and commentary on discoveries of genetic variants, related disease outcomes, and the complex social, legal, and ethical issues surrounding genetic discoveries. Topics are examined from a public health perspective, and readers are encouraged to participate in an ongoing discussion in the reader's forum.
This Public Health Perspective examines the topic of Informed Consent: A Public Health Perspective. |
This month, we are examining the topic Informed Consent for Population-Based Research involving Genetics. (November 2001)
"Although much has been written about ethical issues in epidemiology, ethical, legal, and social issues in genetic testing and informed consent for genetic research, there is little or no guidance available specifically for population-based studies of low-penetrance gene variants.In response to the urgent need for appropriate guidelines, the Centers for Disease Control and Prevention (CDC) formed a multidisciplinary group to develop an informed consent approach for integrating genetic variation into population-based research."
Beskow L, et al.
JAMA. 2001;286:2315-2321 |
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 The Public Health Perspective |
- Informed Consent for Population-Based Research Involving Genetics
Laura M. Beskow, MPH; Wylie Burke, MD, PhD; Jon F. Merz, MBA, JD, PhD; Patricia A. Barr; Sharon Terry, MA; Victor BV. Penchaszadeh, MD, MSPH; Lawrence O. Gostin, JD; Marta Gwinn, MD, MPH; Muin J. Khoury, MD, PhD
JAMA.2001;286:2315-2321
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| Additional Informed Consent Documents |
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| Related Links about Human Subjects Research |
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| Articles and Related Publications |
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Provides link to non-governmental sites and does not necessarily represent the views of the Centers for Disease Control and Prevention. |
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