Developer(s): 
Myraid Genetic Laboratories, Inc.
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Title:  The Cancer History Guide
Format: Online tool to organize personal and family history of cancer.  Data is not saved.  Results should be printed at the end of the session.
Availability: http://www.myriadtests.com/cancerhistory.htm#
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Brain cancer, biliary tract cancer, breast cancer, ductal carcinoma in-situ, colorectal cancer, multiple colorectal adenomas/polyps, ovarian cancer, endometrial/uterine cancer, hepatobiliary cancer, kidney/renal cancer, melanoma, pancreatic cancer, small intestine/duodenal cancer, stomach/gastric cancer, thyroid cancer, and ureter/renal pelvis cancer.
Behavioral/Environmental Factors: None
Risk Assessment: None
Family History-Based Interventions: Take the printout to a healthcare provider for cancer risk assessment.
Comments: There is a link to a worksheet to help the consumer collect family history information.

Developer(s): 
Centers for Disease Control and Prevention
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Title:  Family Healthware™
Format: An interactive web-based tool that collects information on personal health behaviors and screening, and family health history.  Data is saved and stored in a database. Information can be updated as needed. Printable report includes drawing of family tree, familial risk assessment, and personalized prevention recommendations.
Availability:  Currently being evaluated in a clinical trial. Also available for licensure and research studies.  Contact genetics@cdc.gov    
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Heart disease, stroke, diabetes, colon cancer, breast cancer, and ovarian cancer.  
Behavioral/Environmental Factors: Health behaviors - smoking, exercise, diet, aspirin, alcohol. Screening – cholesterol, blood pressure, blood glucose, fecal occult blood test, colonoscopy, sigmoidoscopy, clinical breast exam, mammogram.    
Risk Assessment: Algorithms assess familial risk for each disease. User classified as having strong, moderate or weak familial risk. 
Family History-Based Interventions:  Algorithms assess familial risk and behaviors and screening and generate prevention recommendations. Share information with family members and health care providers.
Comments: CDC website has family history resources and materials for the general public and health professionals and more information about Family Healthware. http://www.cdc.gov/genomics/

Developer(s): 
American Medical Association
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Title: Family History Tools - Prenatal Genetic Screening Questionnaire, Pediatric Clinical Genetics Questionnaire, Adult Family History Form 
Format: Can be completed on-line and printed.  Data is not saved.  
Availability: http://www.ama-assn.org/ama/pub/category/2380.html
Target Population/Audience: Physicians and patients
Languages:  English
Completed by: Physician or patient
Diseases/Conditions: Numerous diseases and conditions across all life stages.
Behavioral/Environmental Factors: Pregnancy exposures.
Risk Assessment: None
Family History-Based Interventions: The “Family Medical History in Disease Prevention” pamphlet for physicians describes the value in obtaining a family medical history and how knowledge of family history can improve patient care.
Comments:  Printed copies of the “Family Medical History in Disease Prevention” pamphlet and a patient pocket guide with instructions on completing a family history are available on the web or can be ordered by sending an email request to srt@ama-assn.org.

Developer(s): 
University of Utah, Utah Department of Health
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Title:  Health Family Tree
Format: Paper-based and electronic versions of a tool to collect family health history. Conversion to the electronic tool is not yet complete.
Availability:  Obtain copies of the paper-based version by calling the Health Resource Line at 1-888-222-2542. 
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Heart attack, coronary bypass surgery, rheumatic or other heart disease, stroke, breast cancer, colon cancer, hip fracture, asthma, Alzheimer’s disease, high blood pressure, and diabetes.
Behavioral/Environmental Factors: Smoking, weight, alcohol, and exercise.
Risk Assessment:  Algorithms assess familial risk for each disease. Risk is calculated separately for the user's mother's and father's sides of the family. User classified as having an average, moderate, or high risk. Please note that risk assessment for paper-based tool is no longer available.
Family History-Based Interventions: Once the electronic version of the tool is available, algorithms will assess familial risk and behaviors and generate a report listing prevention recommendations. Share information with family members and health care providers.
Comments:  Online resources for family history available from the Utah Department of Health at: http://health.utah.gov/genomics/familyhistory/toolkit.html

Developer(s): 
Norwich Union
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Title:  Health Tree
Format: An interactive web-based tool that helps the user record family history information and learn about common hereditary conditions.  Data is not saved.  Can print report of family health history.  No pedigree is generated. 
Availability:  http://www.norwichunion.com/healthtree/index.htm
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  breast cancer, ovarian cancer, colon cancer, three or more pregnancy losses, prostate cancer, learning disabilities or behavioral problems, diabetes, stroke, heart disease, hypertension, colon polyps, vision loss, hearing loss, dementia.
Behavioral/Environmental Factors: None
Risk Assessment: None
Family History-Based Interventions:  Share family health history with family members and health care provider.
Comments:  Includes information about each disease and links to other sites.

Developer(s): 
The American Heart Association (AHA)
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Title:  The Heart of Diabetes Family History Tree
Format: An online tool that draws a family tree and allows you to make a record of heart disease and stroke risk factors, including diabetes, for your blood relatives.  Requires free registration.  Data is encrypted and not accessible to the AHA.
Availability: http://www.americanheart.org/downloadable/heart/
1170790567218Family%20Tree%20Flyer%20b-w_2007.pdf (630 KB)
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions: Diabetes, heart attack, high blood pressure, high total cholesterol or LDL cholesterol, Low HDL cholesterol, obesity, stroke.
Behavioral/Environmental Factors: Physical activity, smoke and second hand smoke
Risk Assessment: None
Family History-Based Interventions: Share information with family members and health care providers.
Comments: If you have questions for your family members about their health conditions, you can send them an e-card from this site to get the answers.

Developer(s): 
The Ohio State University Comprehensive Cancer Center, and Multi Media Design, Center for Knowledge Development, College of Medicine Public Health
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Title:  JamesLink: Personalized Cancer Risk Assessment
Format: An interactive web-based tool that asks a series of questions regarding personal and family history of cancer.  Data is not saved.  Report can be printed.
Availability: http://www.jamesline.com/patientsandvisitors/prevention/ Also available as a kiosk-based touch screen application.
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Adrenal cancer, brain cancer, breast cancer, bladder cancer, bone cancer, cervical cancer, colorectal cancer, esophageal cancer, Hodgkin’s disease, kidney cancer, leukemia, liver cancer, lung cancer, medullary thyroid cancer, melanoma, mouth/throat cancer, multiple myeloma, non-Hodgkin’s lymphoma, other skin cancers, ovarian cancer, paraganglioma, pancreatic cancer, parathyroid cancer, pheochromocytoma, pituitary adenoma, prostate cancer, retinoblastoma, sarcoma, stomach cancer, testicular cancer, thyroid cancer, uterine/endometrial cancer, and Wilm’s tumor.
Behavioral/Environmental Factors: None
Risk Assessment:  Algorithms estimate cancer risk based on patterns of cancer in the family. User classified as being at high, moderate or average risk. 
Family History-Based Interventions: A printable summary includes risk assessment and cancer screening and prevention recommendations. Counseling and assessment by genetics professional recommended for “high risk”.
Comments:  Call The James Line at 1-800-293-5066 with any questions or concerns.

Developer(s): 
The Munroe-Meyer Institute for Genetics and Rehabilitation and the Eppley Cancer Center of the University of Nebraska Medical Center
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Title:  Medical Family Tree
Format:  Online program to build a three generation family tree.  Can print out family history in table form and as a family tree (Macromedia Authorware Web Player needs to be installed to draw the tree).
Availability: http://app1.unmc.edu/gencancer/
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Head and neck cancers, endocrine cancers, gastrointestinal cancers, hemotologic/lymphatic cancers, hepatobiliary cancers, breast cancer, cervical cancer, endometrial cancer, ovarian cancer,lung cancer, nervous system cancers, skin/bone cancers, urinary cancer, desmoid cancer, prostate cancer, and testicular cancer.  The program also asks if any family members have had abnormal bone or tooth development, chromosome abnormality, cysts, fibrocystic breast disease, hearing or vision difficulties, learning disabilities or mental retardation, light or dark patches of skin, multiple birthmarks, multiple freckles, overgrowth, polyps, scoliosis, seizures, several moles, thyroid, adrenal, or pituitary problems.
Behavioral/Environmental Factors: None
Risk Assessment: Algorithms assess family history and determine if there are features suggestive of hereditary cancer.
Family History-Based Interventions: Print copy of family history and review with physician or genetic counselor.
Comments: 

Developer(s): 
U.S. Surgeon General, Department of Health and Human Services
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Title:  My Family Health Portrait
Format: Web-based tool can be completed on-line with data stored on individual’s computer. Printable report includes table of family health history and drawing of family tree.  A print family history tool is also available.
Availability: http://www.hhs.gov/familyhistory Print version can be downloaded from the website.
Target Population/Audience: General population
Languages:  English, Spanish
Completed by: Consumer
Diseases/Conditions:  Heart disease, stroke, diabetes, colon cancer, breast cancer, and ovarian cancer, and open ended fields to include diseases of concern to the individual.
Behavioral/Environmental Factors: None
Risk Assessment: None
Family History-Based Interventions: Share information with family members and health care providers.
Comments: Website has family history resources and materials for the general public and health professionals.

Developer(s): 
Center for Medical Genetics, Evanston Northwestern Healthcare
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Title:  MyGenerations
Format: An interactive web-based tool that collects personal and family history of cancer, draws an annotated family tree, executes a cancer risk assessment, and provides personalized risk-based screening, behavioral, and referral information.  Data is saved in a database and can be updated at any time. Family tree, risk assessment and recommendations can be printed or viewed online.
Availability:  http://enh.org/MyGenerations  Also available at several ENH hospital locations as a kiosk-based touch screen application.
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Cancers (28 types) Adrenal, bladder, bone, brain, breast, cervical, colorectal, esophageal, eye, kidney, leukemia, liver, lung, lymphoma, multiple myeloma, ovarian, pancreatic, paraganglioma, pheochromocytoma, prostate, retinoblastoma, sarcoma, melanoma, other skin cancers, small intestine, stomach, testicle, throat/mouth, thyroid, uterine/endometrial.
Behavioral/Environmental Factors: Gail model risk factors
Risk Assessment: Breast cancer risks are estimated by the Gail, BRCAPRO, and Myriad models. Other hereditary cancer risk assessments are based on algorithms which identify patterns of cancer in the family (Hampel et. al. 2004). User classified as being at high, moderate or average risk for hereditary cancer.
Family History-Based Interventions: A printable summary includes risk assessment and cancer screening and prevention recommendations. Users are directed to share printed pedigree and risk assessment with their health care providers and their family. Referral to genetic counseling is recommended for high risk individuals. 
Comments: Call MyGenerations line (847-570-1950) or e-mail MyGenerations@enh.org with any questions or feedback.

Developer(s): 
Channing Bete Company
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Title:  Compiling Your Family Health History: A Self-Care Handbook
Format: Guidelines for collecting family health history and templates for recording the information.
Availability: http://img.channing-bete.com/M400L/cbc_M400L.html for $2.99 per booklet.
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Encouraged to include cancer, heart disease, diabetes, lung disease, mental conditions, and other conditions.  
Behavioral/Environmental Factors: None
Risk Assessment: None
Family History-Based Interventions:  Encouraged to share information with health care provider and family members.
Comments: Easy to understand information that addresses: what is family health history; why is it important; how can family health history help prevent disease; how to gather a family history; and what to do with the information.   

Developer(s): 
American Folklife Center, American Society of Human Genetics, Genetic Alliance, Health Resources and Services Administration, Institute for Cultural Partnerships
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Title:  Does It Run in the Family? A Guide to Family Health History
Format:  Booklet describing the importance of family health history and guidelines for collecting and recording family history.
Availability: Draft materials can be viewed and downloaded as a PDF file from: http://www.geneticalliance.org
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Encouraged to include major diseases or health conditions as well history of surgeries and medications used.
Behavioral/Environmental Factors: Encouraged to collect lifestyle information such as occupation, nutrition, exercise, leisure activities, and habits.
Risk Assessment: None
Family History-Based Interventions: Share information with family members and health care providers.
Comments: Detailed information on how to interview family members, what information to collect, and how to record and save information.

Developer(s): 
National Genealogical Society, The Family Health and Hereditary Committee
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Title:  Family Health and Heredity
Format: Online information describing the importance of family health history and guidelines for collecting and recording family history. Includes a sample pedigree illustrating hypertrophic cardiomyopathy.
Availability: http://www.ngsgenealogy.org/comfamhealth.cfm
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions: Encouraged to include chronic ailments, major illnesses and surgery.
Behavioral/Environmental Factors: None
Risk Assessment: None
Family History-Based Interventions: None
Comments:  Emphasizes the value of charting family health history to individuals already interested in genealogy.

Developer(s): 
Mayo Clinic
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Title: How to Compile Your Family Medical History
Format: Online information about the importance of family health history and guidelines for collecting and recording family history.
Availability: http://www.mayoclinic.com/health/medical-history/HQ01707
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Encouraged to include major diseases or health conditions such as cancer, heart disease, stroke, diabetes, depression, obesity, Alzheimer’s disease, blindness, deafness.
Behavioral/Environmental Factors: Encouraged to include health habits such as smoking, diet, exercise.
Risk Assessment: None
Family History-Based Interventions:  Share information with health care provider.
Comments: Additional resources on website.

Developer(s): 
March of Dimes
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Title: Your Family History 
Format: Online information about the importance of family health history and guidelines for collecting and recording family history. A form for recording family history information, “Family Health History Form” can be downloaded as a PDF file.
Availability: http://www.marchofdimes.com/pnhec/4439_1109.asp
Target Population/Audience: General population
Languages: English
Completed by: Consumer
Diseases/Conditions:  Numerous diseases and conditions across all life stages.
Behavioral/Environmental Factors: Lifestyle habits such as smoking.
Risk Assessment: None
Family History-Based Interventions: Share information with family members and health care providers.
Comments: Can order multiple copies of the health form from the March of Dimes.

Developer(s): 
American Society of Human Genetics, National Society of Genetic Counselors, Genetic Alliance
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Title:  Your Family History - Your Future
Format: Guidelines for collecting family medical history and drawing a pedigree. 
Availability: http://www.ashg.org/genetics/ashg/educ/007.shtml ,
http://www.nsgc.org/consumer/familytree/index.cfm , http://www.geneticalliance.org and can be downloaded as a pdf file from NSGC website.
Target Population/Audience: General population
Languages:  English
Completed by: Consumer
Diseases/Conditions:  Encouraged to include cancer, heart disease, diabetes, asthma, mental illness, high blood pressure, stroke, kidney disease, alcoholism, birth defects, learning problems, mental retardation, and vision or hearing loss at a young age.  
Behavioral/Environmental Factors: Encouraged to include smoking, diet, exercise habits, overweight for family members with medical problems.
Risk Assessment: None
Family History-Based Interventions:  Encouraged to share information with doctor or see a genetics specialist if have concerns about family history.
Comments: Detailed information on how to draw a pedigree.