The Cooperative Study of Sickle Cell Disease Phases 2 and 3 (CSSCD, P2-3) Data Documentation
Data Documentation (includes data codebook, form, and variable counts)
Record
Format
1) Patient Roster
PDF
2) History Form
PDF
3) Physical Exam
PDF
4) Neurological Evaluation Form
PDF
5) Laboratory Test Results
PDF
6) Interim Status Report Form
PDF
7) Brain Magnetic Resonance Imaging
PDF
8) Brain Magnetic Resonance Angiography
PDF
9) Neuropsychological Form - Child
PDF
10) Accuracy of Assessment
PDF
11) Neuropsychological Form - Parent
PDF
12) Peabody Picture Vocabulary
PDF
13) Family Environment Scale
PDF
14) Achenbach Child Behavior Checklist
PDF
15) Pearlin Enhanced Self-Efficacy Scale
PDF
16) Life Stressors and Social Resources Inventory
PDF
17) Puolmonary Function Intake Form
PDF
18) Pulmonary Functin Test
PDF
19) Arterial Blood Gasses
PDF
20) Non-CVA Event Form
PDF
21) Cerebrovascular Accident Event
PDF
22) Cerebrovascular Adjudication
PDF
23) Transfusioin Form
PDF
24) Causes of Death
PDF
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