The Cooperative Study of Sickle Cell Disease Phase 1 (CSSCDP1) Data Documentation
Data Documentation (includes data codebook, form, and variable counts)

 

Record Format
1) CSSCD Roster Data PDF
2) Past Medical History PDF
3) Demographics PDF
4) Physical Exam and Labs PDF
5) Special Lab Studies PDF
6) Neurological and Development PDF
7) X-rays and other Scans PDF
8) Ocular Exam PDF
9) Pulmonary Function Test PDF
10) Cardiac Evaluation PDF
11) Psychosocial Questionnaires PDF
12) Painful Episodes PDF
13) Acute Chest Syndrome PDF
14) Right Upper Quadrant PDF
15) Hand-Foot Syndrome PDF
16) Neurological Events PDF
17) Acute Anemic Events PDF
18) Acute Febrile/sepsis PDF
19) Priapism PDF
20) Acute Events, Patients less than 6 months PDF
21) Chronic Events PDF
22) Interactive Events PDF
23) Other Data PDF

 






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