The Challenges and Impact of Human Genome Research for Minority Communities

proceedings from a conference presented by
Zeta Phi Beta Sorority, Inc., National Educational Foundation
July 7-8, 2000, Philadelphia, PA


Zeta Background
Acknowledgments
Introduction
Foreword
Zeta NEF Purpose

Conference
Conference Mission
Conference Objectives
Research Plans
Conference Agenda
Conference Summary
Workshop I Summary

Workshop II Summary
Workshop III Summary
What's Next?
Photographs
Human Genome News article

Presenters
Dr. Aristides A. Patrinos
Dr. John Quackenbush
Dr. Georgia M. Dunston
Dr. Mary Kay Pelias
Dr. Fatimah Jackson
Dr. Christopher Adams
Dr. Rosalind P. Hale
Dr. Margaret C. Werner-Washburne
Rev. Dr. Deborah P. Wolfe
Dr. Jeroo S. Kotval
Betty K. Mansfield
Issie L. Shelton Jenkins, Esq.
Phyllis Griffin Epps, Esq.
Dr. Kathryn T. Malvern

Contact Information
Board of Managers
Presenters
National Educational Foundation

Conference Program

Friday July 7, 2000

9:30-10:00 a.m. Registration
10:00 a.m.

Welcome and Greetings

Dr. Kathryn T. Malvern, Conference Project Director
Foundation Board of Managers, Moorestown, New Jersey

Dr. Barbara West Carpenter, International President,
Zeta Phi Beta Sorority, Inc., Baker, Louisiana

Marie Tomasso, District Director, Philadelphia District,
Equal Employment Opportunity Commission, Philadelphia, Pennsylvania

10:15 a.m.

Keynote Speaker: The Human Genome Project

Dr. Aristides A. Patrinos, Associate Director, Biological and Environmental Research, U.S. Department of Energy, Germantown, Maryland

11:00 a.m.

Genes and Genomes: Decoding the Book of Life

Dr. John Quackenbush, Associate Investigator, The Institute for Genomic Research, Rockville, Maryland

11:30 a.m.

The Benefits of Genetic Research in Improving Health and Health Care

Dr. Karen Nelson, Investigator, The Institute for Genomic Research, Rockville, Maryland; Moderator

Dr. Georgia Dunston, Microbiology Department, Howard University Medical School, Washington, D.C.

Dr. Robert F. Murray, Howard University Medical School, Department of Genetics, Washington, D.C.

12:30 a.m. Lunch On Your Own
1:30 p.m.

Genetic Problems in Clinical Practice and Biomedical Research
Dr. Mary Kay Pelias, Biometry and Genetics Department, Louisiana State University Medical School, New Orleans, Louisiana

Scientific and Folk Ideas About Heredity
Dr. Fatimah Jackson, Department of Anthropology, University of Maryland, College Park, Maryland

2:45 p.m. Private Industry and its Role in the Biological Revolution
Dr. Chris Adams, Chief Executive Officer, Mosiac Technologies, Waltham, Massachusetts
3:15 p.m. Break
3:30-5:00 p.m.

Workshop I

Genetic Screening, Genetic Testing, and Genetic Counseling: Issues of Importance to Minority Communities

Dr. Eunice S. Thomas, 19th International President. Zeta Phi Beta Sorority, Washington, D.C.
Facilitator

Panelists:

Deborah L. Eunpu, Director, Genetic Counseling Program, Beaver College, Glenside, Pennsylvania

Zora Kramer Brown, Chairwoman, Breast Cancer Resource Committee, Washington, D.C.

Dr. Mortimer Poncz, Professor, Department of Pediatrics, Division of Hemotology, Childrens' Hospital, Philadelphia, Pennsylvania, March of Dimes Representative

Workshop II

Expanding the Pool of Minority Scientists; Genomics and its Challenge in the Education of Minorities

Dr. Rosalind P. Hale, Chair, Department of Education, Xavier University, New Orleans, Louisiana, Foundation Board of Managers
Facilitator

Panelists:

Dr. Margaret Werner-Washburne, University of New Mexico, Biology Department, Albuquerque, New Mexico

Reverend Dr. Deborah P. Wolfe, Past Education Chief, United States Congress, Professor Emerita, Queens College, C.U.N.Y., President New Jersey Baptist Convention, 14th International President, Foundation Board of Managers, Zeta Phi Beta Sorority, Inc., Cranford, New Jersey

Dr. Jeroo S. Kotval, University of Albany, State University of New York, School of Public Health, Health Policy and Management, Rensselaer, New York

Workshop III

Minorities in the Scientific Workforce; Career Development

Valerie Hollingsworth-Davis, Atlantic Regional Director, Zeta Phi Beta Sorority, Inc., Brooklyn, New York
Facilitator

Panelists:

Dr. Karen Nelson, Investigator, The Institute for Geomic Research Rockville, Maryland

Dr. Lashawn R. Drew, Acting Director, NIH Academy, National Institutes of Health, Rockville, Maryland

Betty Mansfield, Human Genome News, Oak Ridge Laboratory, U.S. Department of Energy, Oak Ridge, Tennessee

Dr. Lloyd Townsend, Aventis Pharmaceutical, Bridgewater, New Jersey Karen Graham, Manager, University Relations and Recruiting, BD Company, Franklin Lakes, New Jersey

Jamaal Murphy, Student, University of Pittsburgh, Pittsburgh, Pennsylvania

 

Saturday, July 8, 2000

8:30-9:00 a.m. Registration
9:00 a.m.

The Human Genome Project: A Recap, Video: The Human Genome Project

9:30 a.m.

Workshop Summaries and Reporting

Workshop I
Genetic Screening, Testing, Counseling

Workshop II
Genomics and its Challenge in the Education of Minorities

Workshop III
Minorities in the Scientific Workforce; Career Opportunities

10:00 a.m.

The Human Genome Project: Ethical, Legal, and Scoial Implications for the Minority Communities

Issie L. Shelton Jenkins, Esq., The Shelton Group, Sykesville, Maryland, Chair, Foundation Board
Moderator

Panelists:

Phyllis Epps, Esq., Health, Law, and Policy Institute, Houston, Texas

Dr. Jenifer Smith, Unit Chief, DNA Analysis Unit I, FBI Laboratory, Washington, D.C.

Dr. Jeroo S. Kotval, School of Public Health, Department of Health Policy and Management, University of Albany, Rensselaer, New York

Dr. Pamela Sankar, Assistant Professor, Center for Bioethics, University of Pennsylvania, Philadelphia, Pennsylvania

12:00 Noon

Group Session

Open Dialogue:

MINORITIES AND THE HUMAN GENOME PROJECT: WHAT NEXT?
Discussion and recommendations for greater minority involvement and awareness
Dr. Kathryn T. Malvern
Conference Project Director
Moderator

12:30-2:00 p.m.

Complimentary Wrap-Up -Luncheon
Speaker
The Honorable Leanna Washington
Pennsylvania State Representative

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The online presentation of this publication is a special feature of the Human Genome Project Information Web site.