The Challenges and Impact of Human Genome Research for Minority Communities

proceedings from a conference presented by
Zeta Phi Beta Sorority, Inc., National Educational Foundation
July 7-8, 2000, Philadelphia, PA


Zeta Background
Acknowledgments
Introduction
Foreword
Zeta NEF Purpose

Conference
Conference Mission
Conference Objectives
Research Plans
Conference Agenda
Conference Summary
Workshop I Summary

Workshop II Summary
Workshop III Summary
What's Next?
Photographs
Human Genome News article

Presenters
Dr. Aristides A. Patrinos
Dr. John Quackenbush
Dr. Georgia M. Dunston
Dr. Mary Kay Pelias
Dr. Fatimah Jackson
Dr. Christopher Adams
Dr. Rosalind P. Hale
Dr. Margaret C. Werner-Washburne
Rev. Dr. Deborah P. Wolfe
Dr. Jeroo S. Kotval
Betty K. Mansfield
Issie L. Shelton Jenkins, Esq.
Phyllis Griffin Epps, Esq.
Dr. Kathryn T. Malvern

Contact Information
Board of Managers
Presenters
National Educational Foundation

Conference Objectives

The project was an Information Conference on the Human Genome Project: The Challenges and Impact of Human Genome Research for Minority Communities. This two-day conference was designed primarily for representatives of minority communities, including community leaders, representatives of minority organizations, educators, collegiates, government officials, fraternal groups, religious organizations representatives, civic, medical, social, business and professional organizations. It was open to the public.

The project’s broad objective was to raise the level of awareness, in minority communities, of the rapid strides being made in human genome research and the background of the HGP, its potential and value to minorities; particularly in the area of health care; to clearly identify issues that are important to the minority community and avenues for more involvement of this community; and to explore post-conference ways of continuing input from and update of minorities.

Through presentations, workshops and open discussions, the conference addressed the ethical, legal and social issues raised by human genome research; its impact on treatments for such health problems as cancer, sickle cell anemia, and other physical and mental health problems.

The conference agenda also addressed how to develop and enhance career interest (of younger people, in particular, and all in general) in genetics and related sciences and business development.

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The online presentation of this publication is a special feature of the Human Genome Project Information Web site.