November 1963 I was Assistant Medical Record Librarian at Riverside Hosp. when I prior met Dr. Irby-Jones and became in awe of her dedication. She listened to my complaints. I was only 21years-old and had a deep passion for my profession. 5 other male physicians had dismissed my inner instincts that there was 'something wrong'. Dr. Jones hospitalized me and continued to probe, eventhough many test
returned 'normal' and I was persistant to which she offered the final 'three test' before my discharge.
2 test were negative. 3rd LE PREP for Systemic Lupus Erythematosus: POSITIVE x2. Medical books showed me the "FATAL" Dx.. Dr. Jones showed compassion/expertise/detail follow-up to me. Later, I discovered Holistic medicine. Throughout the 6 decades, I am now 65years old, I have continued to internally and spoken loud to others, my heart-spirit felf gratitude to this 'early diagnosis' which relieved
the emotional drama of living in the unknown for longer periods of time, as many of other lupus patients.
In 1994 having met a Swiss girl here in US, was referred to her MD in Geneva Switzerland with a French
partner. I, to date, have been the only American to receive DNA/HLA serum laborotory produced to match my individual groups pattern, for which i was given a copy along with publication studies completed before my treatment. I have lived in and traveled to Europe for 15 years and became symptom free. Today, out of necessity, I remain here. I am the mother of a female Ed.D Mental/Public Health with BS in Biology who papered Lupus, and a son Firefighter; Paramed. My health status is now deteriating. I will always be endeared to Dr. Irby Jones for her early work.. |