bioethics.net
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Links to articles on genetics and bioethics. |
Bioethics Resources on the Web
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Links to bioethics resources. |
Coalition for Genetic Fairness
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Describes GINA’s protections including a history of the legislation, key examples, and definitions. |
DNA Patent Database
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Searchable database of U.S. DNA-based patents and patent applications issued by the U.S. Patent and Patent Applications Trademark Office. |
Ethical, Legal, and Social Issues (from the Human Genome Project)
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Information, articles, and links on a wide range of issues. |
Genethics.ca
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Information on the social, ethical, and policy issues associated with genetic and genomic knowledge and technology. |
Genetics and Public Policy Center
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Information on public policy related to human genetic technologies for the public, media, and policy makers. |
Genome Technology and Reproduction: Values and Public Policy and Communities of Color and Genetics Policy Project
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Two subprojects combined to form a 5-year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology. |
HumGen International
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Comprehensive international database on the legal, social, and ethical aspects of human genetics. |
NCSL (National Conference of State Legislatures) Genetic Technologies Project
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Resources on a variety of genetics public policy and related issues for state legislators, legislative staff, and other policy makers. |
National Information Resource on Ethics and Human Genetics
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Links to resources and databases on ethics and human genetics. |
National Information Resource on Ethics and Human Genetics: Annotated Bibliographies: Scope Note Series
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Annotated bibliographies on various genetics and ethics issues. |
National Human Genome Research Institute (NHGRI) Policy and Legislation Database
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Searchable database of Federal and State laws/ statutes, Federal legislative materials, and Federal administrative and executive materials about privacy of genetic information/ confidentiality; informed consent; insurance and employment discrimination; genetic testing and counseling; and commercialization and patenting. |
National Society of Genetic Counselors (NSGC) Code of Ethics
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A statement to clarify and guide the ethical conduct of genetic counselors. |
The President's Council on Bioethics
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Reports, transcripts, and background material on current bioethical issues. |
THOMAS Legislative Information (from Library of Congress)
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Searchable database of U.S. legislation (current and previous Congresses). |
Your Genes, Your Choices
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Description of the Human Genome Project, the science behind it, and the ethical, legal, and social issues raised by the project. |