Mobius Syndrome
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What is Mobius Syndrome?
Is there any treatment?
What is the prognosis?
What research is being done?
Organizations
What is Mobius Syndrome?
Mobius syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which
control eye movements and facial expression. The first symptom, present at birth, is an inability to suck. Other symptoms
can include: feeding, swallowing, and choking problems; excessive drooling; crossed eyes; lack of facial expression; inability
to smile; eye sensitivity; motor delays; high or cleft palate; hearing problems; and speech difficulties. Small or absent
brain stem nuclei that control the cranial nerves, as well as decreased numbers of muscle fibers, have been reported. Deformities
of the tongue, jaw, and limbs, such as clubfoot and missing or webbed fingers, may also occur. As children get older, lack
of facial expression and inability to smile become the dominant visible symptoms. The prognosis for otherwise normal development
is excellent in most cases.
Is there any treatment?
What is the prognosis?
What research is being done?
Select this link to view a list of studies currently seeking patients.
Moebius Syndrome Foundation P.O. Box 147 Pilot Grove, MO 65276 vickimc@iland.net http://www.moebiussyndrome.com Tel: 660-834-3406 Fax: 660-834-3407 |
March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203 |
Children's Craniofacial Association 13140 Coit Road Suite 307 Dallas, TX 75240 http://www.ccakids.com Tel: 800-535-3643 214-570-9099 Fax: 214-570-8811 |
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
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Last updated March 06, 2008