Klippel-Trenaunay Syndrome (KTS)
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What is Klippel-Trenaunay Syndrome (KTS)?
Is there any treatment?
What is the prognosis?
What research is being done?
Organizations
What is Klippel-Trenaunay Syndrome (KTS)?
Klippel-Trenaunay syndrome (KTS) is a congenital circulatory disorder characterized by hemangiomas (abnormal benign growths
on the skin consisting of masses of blood vessels), arteriovenous abscesses, and varicose veins, usually on the limbs. The
affected limbs may be enlarged and warmer than normal. Fused toes or fingers, or extra toes or fingers, may be present. Bleeding
may occur, often as a result of a rectal or vaginal tumor. The cause of the disorder is unknown. A similar port-wine stain
disorder in which individuals have vascular anomalies and limb enlargement is Sturge-Weber syndrome. These patients may experience
seizures and mental deficiency.
Is there any treatment?
What is the prognosis?
What research is being done?
Select this link to view a list of studies currently seeking patients.
Vascular Birthmarks Foundation P.O. Box 106 Latham, NY 12110 hvbf@aol.com http://birthmark.org Tel: 877-VBF-4646 (823-4646) |
Sturge-Weber Foundation P.O. Box 418 Mt. Freedom, NJ 07970 SWF@sturge-weber.com http://www.sturge-weber.com Tel: 973-895-4445 800-627-5482 Fax: 973-895-4846 |
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
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Last updated July 28, 2008