From Public Advocacy To Research Priorities, NHLBI Listens And
The booklet provides a brief history of how the NHLBI has worked
with public interest organizations (PIOs) over the years to develop
and support research programs to address a wide range of diseases.
The NHLBI encourages input from PIOs in the belief that greater
interaction with patient advocacy groups can have a favorable
effect on the conduct of research. The Institute believes that
increased collaboration with PIOs will benefit everyone involved.
- For patients and their advocates, it provides firsthand knowledge
of the state of the science and what is being done to alleviate
their disease burden.
- For the Institute, it helps in developing program goals and
in getting information out to the public.
- For researchers, it puts a human face to the diseases they
study and improves their access to patients for clinical studies.
The booklet is available in the standard PDF file and a PDF file
slightly modified for access by screen readers:
Standard PDF (5.2 MB, 36 pages)
Accessible PDF (5.5 MB,
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