Beth Rasch
U.S. National Center for Health Statistics
2nd Washington Group Meeting, Ottawa
January 9-10, 2003
Questions
used to identify persons with disabilities in non-ESS (European Statistical
System) developed countries
(Screener questions)
I
would now like to ask about any conditions you may have, that have lasted, or
are likely to last, for six months or more.
Do you have any of these conditions?
Which ones?
(a) Sight problems not corrected by glasses or contact lenses
(b) Hearing problems
(c) Speech problems
(d) Blackouts, fits, or loss of consciousness
(e) Difficulty learning or understanding things
(f) Limited use of arms or fingers
(g) Difficulty gripping things
(h) Limited use of legs or feet
(i) Any condition that restricts physical activity or physical work (e.g. back problems, migraines)
(j) Any disfigurement or deformity
(k) Any mental illness for which help or supervision is required
Still thinking of conditions lasting 6 months or
more, are you restricted in everyday activities by any of these? Which ones?
(a) Shortness of breath, or difficulty breathing
(b) Chronic or recurring pain
(c) A nervous or emotional condition
(d) Long term effects as a result of a head injury, stroke or other brain damage
(e) Any other long term condition that requires treatment or medication
(f) Any other long term condition such as arthritis, asthma, heart disease, Alzheimer’s disease, dementia, etc.
(See addendum for remainder of disability module that includes these screener questions)
For each of the following, mark Yes or
No: Does the person have difficulty…
(a) doing everyday activities such as eating, showering or dressing?
(b) talking to or hearing other people?
(c) learning or remembering things?
(d) reading or understanding things?
(e) walking, kneeling or climbing stairs?
(f) living in independent housing without help from other people?
(g) Have difficulty doing any other things people of the same age usually do?
What causes the difficulty shown in question 1
for the person?
(a) Short-term health condition (lasting less than six months)
(b) Long-term health condition
(c) Disability
(d) Age
(e) Difficulty with English language
(f) Other cause – please specify
(g) No difficulty
Is this person limited in the
kind or amount of activity that he/she can do because of a long-term physical
condition, mental condition or health problem:
(a)
at home?
No, not limited
Yes, limited
(b)
at school or at work?
No, not limited
Yes, limited
Not applicable
(c)
in other activities, for example, in transportation to
or from work, or in leisure time activities?
No, not limited
Yes, limited
Does this person have any
long-term disabilities or handicaps?
Yes/No
Does
this person have any difficulty hearing, seeing, communicating, walking,
climbing stairs, bending, learning or doing any similar activities?
Yes, sometimes
Yes, often
No
Does a physical condition or mental
condition or health problem reduce the amount or the kind of activity this
person can do:
(a)
at home?
Yes, sometimes
Yes, often
No
(b)
at work or at school?
Yes, sometimes
Yes, often
(c)
in other activities, for example, in transportation or
leisure?
Yes, sometimes
Yes, often
Have
you any physical, mental deficiency or deficiency of the sense organs?
Yes / No
If so:
a)
Of what kind?
Physically defective
Defective in motion
Mentally defective
Hard of hearing
Deaf
Defective speech
Dumb
Deaf and dumb
Defective eyesight
Blind in one eye
Blind
Other (specify)
b)
Did you attend any of the following schools?
Yes / No
A school providing occupation
Auxiliary school
Primary school for blind persons
Primary school for deaf persons
Primary school improving motion
c) Cause?
Congenital
Accident
Other (Specify)
d) When did it start?
Congenital
At the age of __ __ years
e) Did it limit you in your work?
Yes / No
If so, what kind of work can
(could) you do?
Only manual
Only non-manual
Both
None of them
f) Do you work at present?
Yes / No
If so, what is the character of
your working place?
Protective working place
Working place of social character
Specialized enterprise
Other working place
(Screener question)
Does anyone in the household, aged 5 and over
have a physical disability that makes it difficult for him to carry out day to
day activities, such as: movement from place to place, eating, dressing,
control over sphincters, etc. (disabilities lasting six months or more)
Yes
No
(See addendum for remainder of disability module that includes this screener question)
(See addendum: Used medical/legal definition for disability determination)
New Zealand: 2001 Census
Does a health problem, or a condition, you have (lasting 6
months or more) cause you difficulty with, or stop you doing:
(a) Everyday activities that people your age can usually do
(b) Communicating, mixing with others or socializing
(c) Any other activity that people your age can usually do
(d) No difficulty with any of these
Do you have any disability or handicap that is
long-term (lasting 6 months or more)?
Yes
No
Poland: 1988 Census
Is the person’s capacity for performing basic functions of a given age fully or partly limited by disability or a long lasting disease?
Yes, fully
Yes, seriously
No
Has the person a certificate of CDE (Commission for Disability and Employment) on group of disability?
Yes – 1st group
Yes – 2nd
group
Yes – 3rd group
No
Poland: 1996 POLHIS
(Screener questions)
Are you limited completely or seriously in major activities
of daily life (up to your age) because of chronic disease or cripplehood?
Yes, completely
Yes, seriously
No
Do you have a valid certificate of disability?
Yes, disability was stated as permanent
Yes, disability was stated as temporary
No
Don’t know (if proxy is reporting)
United States: 1990 Census
Does this person have a physical, mental, or other health
condition that has lasted 6 or more months and which:
(a) Limits
the kind or amount of work this person can do at a job?
Yes
No
(b) Prevents
this person from working at a job?
Yes
No
Because of a health condition that has lasted for
6 or more months, does this person have any difficulty:
(a) Going
outside the home alone, for example, to shop or visit a doctor’s office?
Yes
No
(b) Taking
care of his or her own personal needs, such as bathing, dressing, or getting
around inside the home?
Yes
No
United States: 2000 Census
Does this person have any of the following
long-lasting conditions:
(a)
Blindness,
deafness, or a severe vision or hearing impairment?
Yes
No
(b)
A
condition that substantially limits one or more basic physical activities such
as walking, climbing stairs, reaching, lifting, or carrying?
Yes
No
Because of a physical, mental, or emotional condition lasting 6 months
or more, does this person have any difficulty in doing any of the following
activities:
(a)
Learning,
remembering, or concentrating?
Yes
No
(b)
Dressing,
bathing, or getting around inside the home?
Yes
No
(c)
(Answer
if this person is 16 YEARS OLD OR OVER.) Going outside the home alone to shop
or visit a doctor’s office?
Yes
No
(d)
(Answer
if this person is 16 YEARS OLD OR OVER.) Working at a job or business?
Yes
No
(Screener questions)
I would now like to ask
about any conditions you may have, that have lasted, or are likely to last, for
six months or more. Do you have any of
these conditions?
Which ones?
(l) Sight problems not corrected by glasses or contact lenses
(m) Hearing problems
(n) Speech problems
(o) Blackouts, fits, or loss of consciousness
(p) Difficulty learning or understanding things
(q) Limited use of arms or fingers
(r) Difficulty gripping things
(s) Limited use of legs or feet
(t) Any condition that restricts physical activity or physical work (e.g. back problems, migraines)
(u) Any disfigurement or deformity
(v) Any mental illness for which help or supervision is required
Still thinking of conditions lasting 6 months or
more, are you restricted in everyday activities by any of these?
Which ones?
(g) Shortness of breath, or difficulty breathing
(h) Chronic or recurring pain
(i) A nervous or emotional condition
(j) Long term effects as a result of a head injury, stroke or other brain damage
(k) Any other long term condition that requires treatment or medication
(l) Any other long term condition such as arthritis, asthma, heart disease, Alzheimer’s disease, dementia, etc.
(Remainder of disability module)
Because of the condition/conditions you have told
me about, do you ever need help or supervision with any of these tasks?
Self-care, for example:
Bathing/showering
Dressing/undressing
Eating/feeding
Going to the toilet
Bladder/Bowel control
Mobility, for example:
Moving around away from home
Moving around at home
Getting in or out of a bed or chair
Communication in own language, for example
Understanding/being understood by strangers, friends or family, including use of sign language/lip reading
Do you always need help with these tasks?
Because of the condition/conditions you have told
me about, do you ever have difficulty with any of these tasks?
[Self-care, mobility and communication tasks as listed above]
Even though you can do these self-care, mobility
and communication tasks without difficulty, do you use any aids to assist with
these tasks?
Because of the condition/conditions you have told
me about, do you have any difficulties with education such as these?
Not attending school/further study due to condition
Need time off school/study
Attend special classes/school
Other related difficulties
Because of the condition/conditions you have told
me about, do you have any difficulties with employment such as these?
Type of job could do
Number of hours that can be worked
Finding suitable work
Needing time off work
Permanently unable to work
(Screener question)
Does anyone in the household, aged 5 and over
have a physical disability that makes it difficult for him to carry out day to
day activities, such as: movement from place to place, eating, dressing,
control over sphincters, etc. (disabilities lasting six months or more)
Yes/No
(Remainder of disability module)
Is he/she able to walk outside
the home?
Yes, alone
Yes, with the help of a person or an instrument
No, is confined at home
What is the distance he
is able to walk without difficulty?
A few paces only
A distance of up to three buildings
A distance of over three buildings
Is he/she able to climb stairs up one floor?
Yes, without help
Yes, but must hold banister or be aided by a person or instrument
Is unable to go up or down stairs
Can he/she dress himself?
Yes, without difficulty
Yes, but with difficulty
Is unable to do so
Can he/she wash his/her face
and hands by himself?
Yes, without difficulty
Yes, but with difficulty
Is unable to do so
Can he/she sit down and get up
from a chair by himself?
Yes, without difficulty
Yes, but with difficulty
Is unable to do so
Can he/she get in and out of bed
by himself?
Yes, without difficulty
Yes, but with difficulty
Is unable to do so
Can he/she eat by himself,
including cutting food?
Yes, without difficulty
Yes, but with difficulty
Is unable to do so
Does he/she suffer from
inability to control his/her bladder?
Yes / No
How often does he/she loose
control of his/her bladder?
At least once a week
Less than once a week but at least once a month 3
Less than once a month
A person
with a disability is identified by a “Physically Disabled Person’s Certificate”
issued by local government and a person with the probability of a disability is
identified by a medical doctor. The
criteria for identifying a person with a physical disability are based on the
“Law for the Welfare of Physically Disabled Persons”. The “Law for the Welfare of Physically Disabled Persons” defines
physical disability as follows:
Permanent
visual impairment as listed in the following:
1) Visual acuity (as
measured in accordance with the International Vision Test Chart and measured
degree with correcting lenses; hereinafter the same) of both eyes being 0.1 or
less
2)
Visual acuity of one eye at 0.02 or less and the other at 0.6 or less
3)
Visual field diameter 10 degree or less of both eyes
4)
Visual field defect more than 50% of both eyes
Permanent hearing impairment or impairment of balance function as listed in the following:
1)
More than 70dBHL in each ear
2)
One ear more than 90dBHL,the other more than 50dBHL
3)
Less than 50% of hearing intelligibility
4)
Severe impairment of balance function
Impairment
of voice, speech, or mastication function:
1)
Total loss of voice, speech or mastication function
2)
Severe and permanent impairment of voice, speech or mastication function
Impairment of the limbs or trunk as listed in the following:
1) Severe and permanent impairment of one
upper limb, one lower or trunk
2) Loss of the thumb of
one upper limb upward of the knuckle joint or less of two or more fingers of
one upper limb including the forefinger upward of the knuckle joints
3)
Loss of one lower limb upward of the lisfrane joint
4)
Loss of all toes from both lower limbs
5) Severe impairment of
the thumb of one upper limb or severe and permanent impairment of three or more
fingers of one upper limb
In
addition to the factor as listed in the foregoing, other impairments that are
acknowledged to be of degree higher than the impairments as listed in 1) through
5) of the foregoing.
Impairments
of the functions of the functions of the heart, kidney, respiratory organs,
bladder, rectum, small intestine and immune due to HIV, that are permanent, and
acknowledged as being of a degree to cause extreme, limitations in daily
living.
A person with a disability is identified by the Investigator or Interviewer. For the purpose of this survey, we define our subject population operationally as persons with mental retardations manifested during the development period (birth to 18 years of age). Persons must also display functional deficits in skills for daily life which require supportive services.