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Mucolipidoses Organizations

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Mucolipidosis IV (ML4) Foundation
719 East 17th Street
Brooklyn, NY   11230
ML4www@aol.com
http://www.ml4.org
Tel: 718-434-5067
Fax: 718-859-7371

 National MPS Society, Inc.
4220 NC Highway 55
Suite 140
Durham, NC   27713
info@mpssociety.org
http://www.mpssociety.org
Tel: 877-MPS-1001 919-806-0101
Fax: 919-806-2055
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT   06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

 National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Brighton, MA   02135
info@ntsad.org
http://www.ntsad.org
Tel: 617-277-4463 800-90-NTSAD (906-8723)
Fax: 617-277-0134
ISMRD-International Advocate For Glycoprotein Storage Diseases
P.O. Box 328
Dexter, MI   48130
info@ismrd.org
http://www.ismrd.org
Tel: 734-449-1190
Fax: 734-449-9038

 Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC   20008-2369
info@geneticalliance.org
http://www.geneticalliance.org
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
National Society of Genetic Counselors
401 N. Michigan Avenue
Chicago, IL   60611
nsgc@nsgc.org
http://www.nsgc.org
Tel: 312-321-6834
Fax: 312-673-6972