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This list is a clearinghouse of membership organizations and advocacy groups with ongoing interest in research and community member participation in IRBs. These organizations may offer IRB consultants or IRB community members regionally or nationally.
Additionally, a list of Department of Veterans Affairs Medical Centers with research programs is also available.
Albert Einstein
Healthcare Network
John Chinn,
Phone: 215-456-7214;
Email: chinnj@einstein.edu
A private, not-for-profit organization dedicated to providing compassionate,
high-quality healthcare to the greater Philadelphia region.
American Psychological Association
Sangeeta Panicker, Phone: 202-336-6000;
Email: spanicker@apa.org
A scientific and professional organization with the mission to advance
scientific interests in psychology as a means of promoting health,
education, and human wlefare.
American Society of Clinical Oncology
Suanna Bruinooge, Phone: 703-299-1050;
Email: bruinoos@asco.org
A professional organization representing physicians who treat people
with cancer.
Center
for Practical Bioethics
Linda Puetz, Phone: 800-344-3829; Email: puetz@midbio.org
A bioethics center dedicated to raising and responding to ethical issues in health
and health care.
Community-Campus Partnerships for Health
Sarena Seifer, Email: sarena@u.washington.edu
A nonprofit organization that promotes health through partnerships between
communities and higher education institutions.
National Organization for Rare
Disorders
Abbey Meyers, Phone: 203-746-6518
Email:ameyers@rarediseases.org
A federation of voluntary health organizations committed to the identification,
treatment, and cure of rare disorders through programs of education, advocacy,
research, and service.
National Society of Genetic Counselors, Inc.
Beth Rosen-Shiedley, Phone:
617-636-8768;
Email: bsheidley@lifespan.org
A professional society with the mission to promote the genetic counseling
profession as an integral part of health care delivery, education,
and public policy.
Office of Research
Oversight
Shannon Williams, Phone: 202-565-6621 Email: shannon.williams@hq.med.va.gov
The primary VHA office that advises the Under Secretary for Health
on all matters of compliance and assurance regarding human subjects protections,
animal welfare, research safety, and research misconduct
PACE Workers' International Union
Sylvia Kieding, Phone: 303-759-2604;
Email: skieding18@aol.com
A workers' union that stands for the right to a safe and healthy
workplace and fair treatment of workers.
Project Inform
Brenda Lein, Phone: 415-454-2944;
Email: blein@projectinform.org
A national nonprofit, community-based organization with the mission to
provide information on the diagnosis and treatment of HIV disease and
to advocate for regulatory research and funding policies.
U.S.
Agency for Healthcare Research and Quality
Public
Affairs Division Phone: 301-427-1855; Email: info@ahrq.gov
The AHRQ mission is to improve quality, safety, efficiency, and effectiveness
of health care for all Americans.
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