The National Women's Health Information Center - womenshealth.gov
A service of the Office on Women's Health in the U.S. Department of Health and Human Services
NWHIC Organizations Directory -- Record DetailsCystinosis FoundationMission statement:The Cystinosis Foundation is an all volunteer, non-profit organization dedicated to providing services for those suffering from cystinosis by supporting parents with information and referrals, newsletters and Foundation sponsored conferences; educating the medical profession and the general public about this rare disease through receptions at medical meetings, the media and distribution of literature; raising funds to promote research on causes and treatments of cystinosis. The Foundation is a member of the National Organization of Rare Disorders (NORD), which furthers the cause of those with rare diseases and the Alliance of Genetic Support Groups. Contact Information:Cystinosis Foundation Internet address: http://www.cystinosisfoundation.org/ Phone number(s):
(559) 222-7997 Fax number:(559) 222-7997 Related topics:These topics may help you find additional organizations. Click any of these links to do an automatic search. NWHIC record number O-2303 |
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