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Patient Advocacy

Find an Organization by Health Topic Results: 11-20 of 40 Orgs
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Dyslexia Research Institute  External Link

From its inception in 1975, the goal of the Dyslexia Research Institute has been to change the perception of learning differences, specifically in the area of dyslexia and attention deficit disorders ... Details >

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Epilepsy Foundation   External Link

The Epilepsy Foundation resulted from the merger in 1967 of the Epilepsy Association of America and the Epilepsy Foundation. Since then, it has been joined by the National Epilepsy League. EFA repre... Details >

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Federation of State Medical Boards of the United States, Inc.  External Link

The Federation is composed of 70 member boards whose primary responsibilities and obligations are to protect the public through the regulation of physicians and other health care providers. FSMB serve... Details >

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Fibromyalgia Network  External Link

Fibromyalgia Network is a full-service self-help organization which provides information for patients with fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS). A membership with Fibromyalgi... Details >

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Friedreich's Ataxia Research Alliance  External Link

The Friedreich's Ataxia Research Alliance (FARA) is a national nonprofit organization dedicated to the pursuit of educational, scientific and research activities leading to treatments for Friedreich's... Details >

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Genetic Alliance  External Link

Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. We ... Details >

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Hospice Association of America  External Link

This national organization represents more than 2,800 hospices and thousands of caregivers and volunteers who serve terminally ill patients and their families. HAA is the largest lobbying group for ho... Details >

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Institute for Healthcare Improvement  External Link

The Institute for Healthcare Improvement (IHI) is a not-for-profit organization leading the improvement of health care throughout the world. Founded in 1991 and based in Boston, MA, IHI is a catalyst... Details >

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International Cesarean Awareness Network  External Link

The International Cesarean Awareness Network (ICAN), founded in 1982, is a network of people concerned about the incidence of cesarean birth. It aims to reduce the rate of cesarean deliveries, to pro... Details >

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Lifeline Pilots  External Link

Lifeline Pilots provides access to free air transportation on private aircraft for people who are in need of medical care at distant health centers and are unable to afford the cost of transportation.... Details >

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