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Centers for Disease Control and Prevention Division of Cancer Prevention and Control 4770 Buford Hwy, NE MS K-64 Atlanta, GA 30341-3717 Call: 1 (800) CDC-INFO TTY: 1 (888) 232-6348 FAX: (770) 488-4760 E-mail: cdcinfo@cdc.gov Submit a Question Online |
About the ProgramDownload the 2006/2007 National Program of Cancer Registries Fact Sheet (PDF-304KB). State-based cancer registries are data systems that collect, manage, and analyze data about cancer cases and cancer deaths. In each state, medical facilities (including hospitals, physicians' offices, therapeutic radiation facilities, freestanding surgical centers, and pathology laboratories) report these data to a central cancer registry. Established by Congress through the Cancer Registries Amendment Act in 1992, and administered by the Centers for Disease Control and Prevention (CDC), the National Program of Cancer Registries (NPCR) collects data on the occurrence of cancer; the type, extent, and location of the cancer; and the type of initial treatment. Before NPCR was established, 10 states had no registry, and most states with registries lacked the resources and legislative support they needed to gather complete data. Today, NPCR supports central cancer registries in 45 states, the District of Columbia, and Puerto Rico. These data represent 96% of the U.S. population. Together, NPCR and the National Cancer Institute's Surveillance, Epidemiology, and End Results (SEER) Program collect data for the entire U.S. population. The Burden of CancerThe cancer community has made extraordinary progress in developing and using cancer prevention strategies, early detection interventions, and treatments during the past two decades. Nonetheless, every year cancer claims the lives of more than half a million Americans.1 Cancer is the second leading cause of death in the United States, exceeded only by heart disease.2 Nearly 557,000 people—about 1,500 people a day—died of cancer in the United States in 2003.3 That same year, nearly 1.3 million Americans were diagnosed with cancer.3* This number excludes diagnoses of preinvasive cancer (except for urinary bladder cancer) and the approximately 1 million cases of nonmelanoma skin cancer that were diagnosed in the United States in 2003.3 In addition to its devastating personal impact, cancer cost this country an estimated $210 billion overall in 2005, including nearly $136 billion for lost productivity and more than $70 billion for direct medical costs.4 *Incidence counts cover approximately 96% of the U.S. population. Death counts cover 100% of the U.S. population. Use caution in comparing incidence and death counts.
AccomplishmentsData collected by state cancer registries help public health professionals understand and address the nation's cancer burden. Vital information about cancer cases and cancer deaths improves health agencies' ability to report on cancer trends, assess the impact of cancer prevention and control efforts, participate in research, and respond to reports of suspected increases in cancer occurrence. Following are some of NPCR's accomplishments to date: United States Cancer Statistics WONDER: Online Data-Reporting System Software for Submitting Data Cancer Surveillance Research
Ongoing WorkNPCR's cancer monitoring activities for fiscal year 2006 include
Future DirectionsCDC's NPCR will expand the use of information technology (IT) designed to support, improve, and enhance the management and exchange of electronic data in cancer surveillance activities, particularly in cancer registries. This effort supports the U.S. Department of Health and Human Services' mandate to develop a national health information infrastructure, and, as part of that infrastructure, to develop the electronic health record. NPCR will continue to develop innovative IT approaches to cancer surveillance. For example, NPCR plans to update and improve registry-related software programs, which include EDITS and Registry Plus. One example is Web Plus, designed for abstracting and editing cancer cases securely over the Internet. Several states' cancer registries are pilot-testing this program. Plans also include additional usability reviews of the Registry Plus and EDITS Web sites. References
Please note: Some of these publications are available for download only as *.pdf files. These files require Adobe Acrobat Reader in order to be viewed. Please review the information on downloading and using Acrobat Reader software.
Page last reviewed: August 20, 2008
Page last updated: August 20, 2008 Content source: Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion |
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