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Birth Defect
Find an Organization by Health Topic Results: 1-11 of 11 Orgs
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National Center on Birth Defects and Developmental Disabilities
The Office on Disability and Health is a part of the Division of Human Development and Disability within NCBDD and works to prevent secondary conditions and promote health and wellness and quality of ... Details >
Angelman Syndrome Foundation 
The Angelman Foundation’s (ASF) mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, ... Details >
Beckwith-Wiedemann Support Network
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
KS&A - Klinefelter Syndrome and Associates
KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.... Details >
National Birth Defects Center
Established in 1984, the Center provides diagnosis and treatment to children born with Birth Defects, Genetic Diseases and Mental Retardation. The Center consists of physicians and consultants in pedi... Details >
National Urea Cycle Disorders Foundation
This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >
Nevus Network
The Nevus Network, founded in 1983, is a support group to provide help and understanding to families whose lives have been touched by large birthmarks, called giant congenital nevi and a related condi... Details >
Sotos Syndrome Support Association
The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantis... Details >
Wide Smiles
This voluntary organization provides information and support for families of children with cleft lip and palate birth defects. The organization maintains a cleft lip and palate resource web site on th... Details >
Williams Syndrome Association, Inc.
The Williams Syndrome Association, Inc., is a national, non-profit organization whose purpose is to provide support and the latest medical and educational information to individuals with Williams Synd... Details >