National Institute of Neurological Disorders and Stroke, National Institutes of Health
The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagno... Details >
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Office of Orphan Products Development, U.S. Food and Drug Administration
The FDA's Office of Orphan Products Development (OOPD) is dedicated to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.... Details >
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Alzheimer's Association 
The Alzheimer's Association is a nonprofit organization founded in 1980 to heighten public awareness of this degenerative brain disorder, provide support for patients and their families, aid research ... Details >
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American Academy for Cerebral Palsy and Developmental Medicine
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), founded in 1948, is a multidisciplinary scientific society devoted to the study of cerebral palsy and related neurological ... Details >
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American Academy of Neurology
The American Academy of Neurology (AAN) is a professional society composed of neurologists and professionals in related fields who share a common goal of continued growth and development of the neurol... Details >
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American Association of Neurological Surgeons/Congress of Neurological Surgeons
This is a scientific and educational association, with more than 6,500 members in North America and abroad. The American Association of Neurological Surgeons, which is designated a 501(c)(3) non-profi... Details >
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Ask the Geneticist
The mission of AsktheGeneticistSM is to answer questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders. By providing a port... Details >
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Bachmann-Strauss Dystonia and Parkinson Foundation
The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) is a nonprofit organization established to find better treatments and cures for the movement disorders dystonia and Parkinson’s disease. ... Details >
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Batten Disease Support and Research Association
The Batten Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and t... Details >
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Care4Dystonia, Inc.
Care4Dystonia, Inc. (C4D) is a nationwide community-based voluntary health organization focused on the devastating impact of dystonia on patients and their families and the direct medical care being p... Details >
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Central Nervous System Vasculitis Foundation, Inc.
The Central Nervous System Vasculitis Foundation, Inc. provides information and support to patients, families, and the medical community and the general public about the rarity of CNSV; its devastatin... Details >
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Children’s Brain Tumor Foundation
This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with ... Details >
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Dystonia Medical Research Foundation
The Dystonia Medical Research Foundation (DMRF) is a tax exempt organization, incorporated in 1976, created to increase awareness and understanding of dystonia among doctors and researchers and to spa... Details >
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Emory University Center for Research on Complementary and Alternative Medicine in Neurodegenerative Diseases
This center is investigating complementary and alternative treatments for neurodegenerative diseases (e.g., Parkinson's, Alzheimer's, and Huntington's Disease, MS, stroke). Current fully developed pro... Details >
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Huntington's Disease Society of America
The Huntington's Disease Society of America (HDSA) is an organization of over 30 chapters and affiliates nationwide. The Society provides written and audiovisual materials pertaining to all aspects o... Details >
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International Essential Tremor Foundation
The International Essential Tremor Foundation (IETF) is an international nonprofit organization; its priorities are patient services and education, public awareness of tremor disorders, and support of... Details >
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Joubert Syndrome Foundation & Related Cerebellar Disorders
The Joubert Syndrome Foundation & Related Cerebellar Disorders was founded to share knowledge, experiences and emotional support with those affected by Joubert Syndrome. Joubert Syndrome is the agenes... Details >
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Les Turner Amyotrophic Lateral Sclerosis Foundation
The Les Turner Amyotrophic Lateral Sclerosis (ALS) Foundation is a nonprofit organization that offers support to patients and families living with the day-to-day difficulties associated with ALS--also... Details >
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March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
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Multiple Sclerosis Association of America
The Multiple Sclerosis Association of America exists to ease the day-to-day challenges of individuals with Multiple Sclerosis and their caregivers.... Details >
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Multiple Sclerosis Foundation, Inc.
The Multiple Sclerosis Foundation, Inc. (MSF) provides information, referral and support services to professionals, those diagnosed with multiple sclerosis, family members and friends. The mission of... Details >
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National Niemann-Pick Disease Foundation, Inc.
The purpose of the National Niemann-Pick Disease Foundation, Inc., is to provide medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick Disea... Details >
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National Parkinson Foundation, Inc.
The National Parkinson Foundation (NPF), founded in 1957, provides answers to patients and their families on problems relating to Parkinson's disease and maintains the Bob Hope National Parkinson Rese... Details >
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National Tourette Syndrome Association
The National Tourette Syndrome Association (TSA) was established to support research into Tourette Syndrome and to provide educational materials relating to the disorder. It helps patients who have b... Details >
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Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF), founded in 1957, is a leading national presence in Parkinson’s disease research, patient education and public advocacy. PDF is working for the nearly one mi... Details >
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Post-Polio Health International
The mission of Post-Polio Health International, including International Ventilator Users Network is to enhance the lives and independence of polio survivors and home mechanical ventilator users by pro... Details >
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Restless Legs Syndrome Foundation, Inc.
The Restless Legs Syndrome Foundation, is dedicated to improving the lives of the men,women, and children who live with this often devastating disease. The Organization's goals are to increase awarene... Details >
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Trigeminal Neuralgia Association
The Trigeminal Neuralgia Association was established in 1990 to provide a support network for individuals suffering from trigeminal neuralgia. Trigeminal neuralgia, or tic douloureux, is a neurologic... Details >
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United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease ... Details >
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