National Institute of Neurological Disorders and Stroke, National Institutes of Health The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagno... Details > List reviewed web resources |
Office of Orphan Products Development, U.S. Food and Drug Administration The FDA's Office of Orphan Products Development (OOPD) is dedicated to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.... Details > List reviewed web resources |
Alzheimer's Association The Alzheimer's Association is a nonprofit organization founded in 1980 to heighten public awareness of this degenerative brain disorder, provide support for patients and their families, aid research ... Details > List reviewed web resources |
American Academy for Cerebral Palsy and Developmental Medicine The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), founded in 1948, is a multidisciplinary scientific society devoted to the study of cerebral palsy and related neurological ... Details > List reviewed web resources |
American Academy of Neurology The American Academy of Neurology (AAN) is a professional society composed of neurologists and professionals in related fields who share a common goal of continued growth and development of the neurol... Details > List reviewed web resources |
American Association of Neurological Surgeons/Congress of Neurological Surgeons This is a scientific and educational association, with more than 6,500 members in North America and abroad. The American Association of Neurological Surgeons, which is designated a 501(c)(3) non-profi... Details > List reviewed web resources |
Ask the Geneticist The mission of AsktheGeneticistSM is to answer questions about genetic concepts, and the etiology, treatment, research, testing, and predisposition to genetic disorders. By providing a port... Details > List reviewed web resources |
Bachmann-Strauss Dystonia and Parkinson Foundation The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) is a nonprofit organization established to find better treatments and cures for the movement disorders dystonia and Parkinson’s disease. ... Details > List reviewed web resources |
Batten Disease Support and Research Association The Batten Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and t... Details > List reviewed web resources |
Care4Dystonia, Inc. Care4Dystonia, Inc. (C4D) is a nationwide community-based voluntary health organization focused on the devastating impact of dystonia on patients and their families and the direct medical care being p... Details > List reviewed web resources |
Central Nervous System Vasculitis Foundation, Inc. The Central Nervous System Vasculitis Foundation, Inc. provides information and support to patients, families, and the medical community and the general public about the rarity of CNSV; its devastatin... Details > List reviewed web resources |
Children’s Brain Tumor Foundation This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with ... Details > List reviewed web resources |
Dystonia Medical Research Foundation The Dystonia Medical Research Foundation (DMRF) is a tax exempt organization, incorporated in 1976, created to increase awareness and understanding of dystonia among doctors and researchers and to spa... Details > List reviewed web resources |
Emory University Center for Research on Complementary and Alternative Medicine in Neurodegenerative Diseases This center is investigating complementary and alternative treatments for neurodegenerative diseases (e.g., Parkinson's, Alzheimer's, and Huntington's Disease, MS, stroke). Current fully developed pro... Details > List reviewed web resources |
Huntington's Disease Society of America The Huntington's Disease Society of America (HDSA) is an organization of over 30 chapters and affiliates nationwide. The Society provides written and audiovisual materials pertaining to all aspects o... Details > List reviewed web resources |
International Essential Tremor Foundation The International Essential Tremor Foundation (IETF) is an international nonprofit organization; its priorities are patient services and education, public awareness of tremor disorders, and support of... Details > List reviewed web resources |
Joubert Syndrome Foundation & Related Cerebellar Disorders The Joubert Syndrome Foundation & Related Cerebellar Disorders was founded to share knowledge, experiences and emotional support with those affected by Joubert Syndrome. Joubert Syndrome is the agenes... Details > List reviewed web resources |
Les Turner Amyotrophic Lateral Sclerosis Foundation The Les Turner Amyotrophic Lateral Sclerosis (ALS) Foundation is a nonprofit organization that offers support to patients and families living with the day-to-day difficulties associated with ALS--also... Details > List reviewed web resources |
March of Dimes Birth Defects Foundation The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details > List reviewed web resources |
Multiple Sclerosis Association of America The Multiple Sclerosis Association of America exists to ease the day-to-day challenges of individuals with Multiple Sclerosis and their caregivers.... Details > List reviewed web resources |
Multiple Sclerosis Foundation, Inc. The Multiple Sclerosis Foundation, Inc. (MSF) provides information, referral and support services to professionals, those diagnosed with multiple sclerosis, family members and friends. The mission of... Details > List reviewed web resources |
National Niemann-Pick Disease Foundation, Inc. The purpose of the National Niemann-Pick Disease Foundation, Inc., is to provide medical and educational information to assist in the correct diagnosis and referral of children with Niemann-Pick Disea... Details > List reviewed web resources |
National Parkinson Foundation, Inc. The National Parkinson Foundation (NPF), founded in 1957, provides answers to patients and their families on problems relating to Parkinson's disease and maintains the Bob Hope National Parkinson Rese... Details > List reviewed web resources |
National Tourette Syndrome Association The National Tourette Syndrome Association (TSA) was established to support research into Tourette Syndrome and to provide educational materials relating to the disorder. It helps patients who have b... Details > List reviewed web resources |
Parkinson's Disease Foundation The Parkinson's Disease Foundation (PDF), founded in 1957, is a leading national presence in Parkinson’s disease research, patient education and public advocacy. PDF is working for the nearly one mi... Details > List reviewed web resources |
Post-Polio Health International The mission of Post-Polio Health International, including International Ventilator Users Network is to enhance the lives and independence of polio survivors and home mechanical ventilator users by pro... Details > List reviewed web resources |
Restless Legs Syndrome Foundation, Inc. The Restless Legs Syndrome Foundation, is dedicated to improving the lives of the men,women, and children who live with this often devastating disease. The Organization's goals are to increase awarene... Details > List reviewed web resources |
Trigeminal Neuralgia Association The Trigeminal Neuralgia Association was established in 1990 to provide a support network for individuals suffering from trigeminal neuralgia. Trigeminal neuralgia, or tic douloureux, is a neurologic... Details > List reviewed web resources |
United Leukodystrophy Foundation The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease ... Details > List reviewed web resources |