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Organizations
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Acid Maltase Deficiency Association ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The AMDA, Acid Maltase Deficiency Association, was formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, a rare genetic disease. It is also known as Pompe's... Details > List reviewed web resources | American Society of Human Genetics ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The American Society of Human Genetics (ASHG) was established in 1948 to provide leadership in research, education and service in human genetics. ASHG is one of several human genetics societies and or... Details > List reviewed web resources | A-T Children's Project ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The A-T Children's Project was established to raise funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure for Ataxia Telang... Details > List reviewed web resources | Birth Defect Research for Children, Inc. ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) Birth Defect Research for Children provides information and support to families of children with birth defects. BDRC sponsors research on birth defects caused by exposures to environmental agents--dr... Details > List reviewed web resources | Center for Jewish Genetic Diseases ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The Center for Jewish Genetic Diseases at The Mount Sinai Medical Center in New York City is the first center in the world devoted to the study of diseases that affect Ashkenazi Jews. Established in 1... Details > List reviewed web resources | Children's Blood Foundation ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The Children's Blood Foundation (CBF) was founded in 1952 as a philanthropic organization to support the Division of Pediatric Hematology and Oncology. The Division of Pediatric Hematology and Oncolo... Details > List reviewed web resources | Children's PKU Network ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details > List reviewed web resources | Cystinosis Foundation ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) The Cystinosis Foundation is a nonprofit organization formed with the objectives of raising awareness among the general public and the medical community, as well as raising funds for research into the... Details > List reviewed web resources | Fanconi Anemia Research Fund, Inc. ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. The purpose of the corporation is to assist Fanconi Anemia (FA) scientific research efforts. The Fund offers famil... Details > List reviewed web resources | Genetic Alliance ![External Links Disclaimer Logo](https://webarchive.library.unt.edu/eot2008/20080922143650im_/http://www.healthfinder.gov/images/extllinksdisclaimer.gif) Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions. We ... Details > List reviewed web resources |
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Database Updated: Monday, September 22, 2008
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