About the Diseases: Aplastic Anemia, Myelodysplastic Syndromes, and Paroxysmal Noctural Hemoglobinuria This section provides basic information about the bone marrow diseases, Aplastic Anemia, Myelodysplastic Syndromes, and Paroxysmal Noctural Hemoglobinuria. For more in-depth information, you can requ... Details > Aplastic Anemia & MDS International Foundation, Inc. |
Anemia Patient Education Sheets This site provides a collection of patient education sheets prepared by NAAC, each devoted to a specific topic, such as anemia due to vitamin deficiencies, or anemia associated with specific diseases,... Details > National Anemia Action Council |
Blood Diseases and Resources Information This page links to publications and fact sheets on blood related diseases, including anemia, deep vein thrombosis, hemochromatosis, hemophilia, Von Willebrand disease, and more.... Details > National Heart, Lung, and Blood Institute, National Institutes of Health |
Chapter Finder: Leukemia & Lymphoma Society The Leukemia & Lymphoma Society is committed to reaching out to those with leukemia, Hodgkin and non-Hodgkin lymphoma and myeloma in meaningful ways. Programs have been developed all over the U.S. and... Details > Leukemia & Lymphoma Society |
Clinical Research Studies: National Heart, Lung, and Blood Institute (NHLBI)/NIH The National Institutes of Health conducts a large number of research studies with patients who have diseases of the heart and blood vessels, lungs, blood cells and bone marrow, or cholesterol. Brows... Details > National Heart, Lung, and Blood Institute, National Institutes of Health |
Diseases and Conditions Index Download these files to listen to information on heart, lung, and blood diseases and sleep disorders.... Details > National Heart, Lung, and Blood Institute, National Institutes of Health |
Do I Have Anemia? This page provides a questionnaire, a self-quiz that can be printed out with your answers and taken to your doctor to help them determine whether you have anemia and also help toward improving your he... Details > National Anemia Action Council |
Factor VII Deficiency This consumer health information document provides a general overview about Factor VII Deficiency -- a bleeding disorder. Includes treatment options.... Details > National Hemophilia Foundation |
Factor XI Deficiency (Hemophilia C) A general overview about Factor XI Deficiency -- the most common of all bleeding disorder affecting females. The brochure includes treatment options.... Details > National Hemophilia Foundation |
FAQs: General Anemia This site provides answers to the most frequently asked questions about Anemia.... Details > National Anemia Action Council |
Frequently Asked Questions (FAQs) -Sickle Cell Disease This site contains online answers to questions from patients and the general public regarding this blood disorder. Also available, are links to additional information about this disease.... Details > Sickle Cell Information Center |
How is Fanconi Anemia Related to Leukemia and Other Cancers This document discusses Fanconi anemia patients' risks of developing leukemia and other related cancers.... Details > Fanconi Anemia Research Fund, Inc. |
How Is Fanconi Anemia Treated? A discussion of the types of therapies used in the treatment of Fanconi anemia and who benefits from which, and the risks involved.... Details > Fanconi Anemia Research Fund, Inc. |
Immune and Idiopathic Thrombocytopenic Purpura (ITP): What's It Called Again? Answers to the most commonly asked questions about Immune and Idiopathic Thrombocytopenic Purpura (ITP) in children.... Details > Children's Blood Foundation |
NHLBI Clinical Trials Database This database includes information on all NHLBI clinical trials that are currently recruiting patients, including sponsored research in various universities, medical centers, and hospitals.... Details > National Heart, Lung, and Blood Institute, National Institutes of Health |
Patient Clinical Trials: Aplastic Anemia, Myelodysplastic Syndrome, or Paroxysmal Nocturnal Hemoglobinuria As a patient living with aplastic anemia (AA), myelodysplastic syndrome (MDS), or paroxysmal nocturnal hemoglobinuria (PNH), learn what clinical research studies are and how they work, so you can make... Details > Aplastic Anemia & MDS International Foundation, Inc. |
Sickle Cell Clinics, Contacts, and Resources This document lists locations of Sickle Cell Clinical Services and Comprehensive Centers in Georgia, National Organizations, NIH Sickle Cell Centers, Bone Marrow Transplant Centers and other Sickle Ce... Details > Sickle Cell Information Center |
Sickle Cell Disease Also available in: Spanish This public health education information fact sheet provides general information about this inherited disease of the red blood cells including causes, diagnosis, and treatment. Other information resou... Details > March of Dimes Birth Defects Foundation |
Thalassemia Also available in: Spanish This health education fact sheet provides general information about this group of inherited diseases of the blood. The information covered includes answers to the most frequently asked questions about... Details > March of Dimes Birth Defects Foundation |
Thalassemia FAQ This online document answers questions consumers frequently have about this group of genetic blood disorders. Topics covered include symptoms, treatment and management of the disorder.... Details > Cooley's Anemia Foundation |
Von Willebrand Disease This consumer health information document provides general information about von Willebrand Disease -- the most common inherited bleeding disorder, affecting women and men in equal numbers. The info... Details > National Hemophilia Foundation |
What Is Fanconi Anemia And How Is It Diagnosed? This consumer health information fact sheet contains basic information about Fanconi anemia including history, description of the disease and its symptoms and treatment.... Details > Fanconi Anemia Research Fund, Inc. |
What is Thalassemia? A description of thalassemia -- a fatal blood disease that is found predominantly among people of Mediterranean and Asian Indian, South Asian and Chinese ancestry. Links to other sources of informatio... Details > Cooley's Anemia Foundation |