Slide Presentation from the AHRQ 2007 Annual Conference

We struggled with a number of issues related to privacy and security

• Who should have access?
  • Any one involved in supporting the clinical care of the patient in the emergency department setting.
• Should patients have the right to not participate in data sharing?
  • All patients are notified that their data will be shared and the patient has the right to not share their data for clinical purposes.
• What data will be shared?
  • Know what the laws and regulations actually say versus what people believe they say
  • We don't share mental health or substance abuse data from those clinics or units.
    • We do share mental health drug claims
    • We do share mental health ICD9 codes
  • All Participants have the right NOT to share specific patient populations
  • Ultimately—if we are in doubt—we keep it out until we can get consensus