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| NF,
Inc. is
a national, tax-exempt, charitable organization whose mission
is to create a network of support for those affected by
NF, through education, advocacy, and coalitions, and by
supporting research for treatments and a cure. We encourage
you to explore our site, check back often, and contact us if you need further information. |
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Happy Doodle Day!
The
10-day online auction of celebrity
Doodles (and a few guest Doodles)
is underway now on eBay. Proceeds benefit
NF, Inc.
In
the last two weeks, we've added some
hot names to our gallery
of over 100 Doodles.
 From
the Entertatinment Industry:
Steve Martin
Matthew Perry
Kevin Nealon
Gillian Anderson
Stefanie Powers
Frank Spotnitz
Matt Nathanson
Paul Michael Glaser
Stacy Haiduk
Sara Hickman
Barbara Eden
Lizzy Caplan
Billy Miller
Emily O'Brien
Mike Ness
Melody Thomas Scott
From
the Sports World:
Arnold Palmer
Rocky McIntosh
Chris Wilson
Bruce Boudreau
From
Visual Arts & Literature:
Jenn Shifflet
Sarah Robinson
Colleen Doran
Cat Mihos
Kim Niles
Rachel Mindrup
Jodi Picoult
NF
celebs:
Jessica Stone
Reggie Bibbs
This
link will take
you straight to the auction.
Bid
now, bid often! Have fun!
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The Annual Balloon Release at the NF2Con in Las Vegas, NV. Attendees put the
names
of
loved ones who have died from NF2 on the balloons with magic markers,
and
at the appointed time, the balloons are released skyward, floating upward with
love.
It is a very emotional tribute.
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Latest
News and Information:
 Read
the NF, Inc. Spring 2009 newsletter!
Kennedy
Krieger Institute seeks participants for reading study;
children and teens ages 8 - 17 with NF1 are encouraged
to apply.
NF2
research project receives funding. Through
the efforts of the John Manth family, a research
grant in the amount of $50,000 has been awarded
to Dr. James Gusella at Massachusetts General
Hospital for the study of "In Vitro Screening
for Chemical and Genetic Modifiers of NF2." Click
here for a summary of the project.
Neurofibromatosis
Research Program (NFRP) announces 2009 funding
opportunities.
Clinical
trial for cutaneous neurofibromas currently
seeking participants.
Survey
Study on Expectations for
Genetic Counseling.
Researchers
Identify Mechanism and
possible drug treatment
for growth of nerve
tumors in neurofibromatosis.
NF
brochure contains
information on
NF1, NF2, programs
and services offered
by NF, Inc., and
more. Email nfinfo@nfinc.org
to order. Please
include "NF
Brochure" in
your subject line.
Camp
New Friends
2009
applications
available.
NF Buddies is a children’s book, explaining Neurofibromatosis
as a child would. This book isn’t just for children though. It's
a great way to introduce others to NF. To find out more or to order
copies, visit the NF,
Inc. California website.
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Don't
forget:
Shop at Coffeecakes.com
for delectable edibles and gifts,
and benefit NF, Inc.!
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