Directory of Organizations
Neurofibromatosis, Inc. (NF, Inc.)
President: Miguel Lessing
NF-2 Consultant: Marie Drew
Address: P.O. Box 18246, Minneapolis, MN, 55418
Voice: (301) 918-4600
Toll-free Voice: (800) 942-6825
E-mail: nfinfo@nfinc.org
Internet: www.nfinc.org
Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis and other related disorders. NF, Inc., distributes materials on neurofibromatosis type 1 (NF-1) and type 2 (NF-2); promotes national, state, and local
community involvement; supports research; has a governing board with NF-2 representation; and provides real-time captioning at meetings. A toll-free helpline and Web site provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.
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