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Directory of Organizations

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American Otological Society (AOS)

President: Clough Shelton, M.D.
Public Information Contact: Shirley Gossard, Administrator
Address: Administrative Office, 3096 Riverdale Road, The Villages, FL, 32162
Voice: (352) 751-0932
Fax: (352) 751-0696
E-mail: segossard@aol.com
Internet: www.americanotologicalsociety.org

Description:
The American Otological Society (AOS) is a professional organization whose missions are to advance and promote medical and surgical otology/neurotology, including the rehabilitation of individuals with hearing and balance disorders, and to encourage, promote, and sponsor research in otology/neurotology, lateral skull base surgery, and related disciplines. The educational mission of AOS is to foster dialogue and share information on advances in the understanding and management of otological and neurotologic disorders. Holds annual meeting for members; visit the AOS Web site for date and location. AOS also publishes peer-reviewed papers and discussions presented during the scientific program of its meeting as well as proceedings of its business meetings.

Acoustical Society of America (ASA)

Executive Director: Charles E. Schmid, Ph.D.
Public Information Contact: Elaine Moran
Address: 2 Huntington Quadrangle, Suite 1NO1, Melville, NY, 11747-4502
Voice: (516) 576-2360
TTY: (516) 576-2360
Fax: (516) 576-2377
E-mail: asa@aip.org
Internet: asa.aip.org

Description:
The mission of the Acoustical Society of America (ASA) is to promote the understanding and practical applications of acoustics. ASA publishes a monthly journal covering all topics in acoustics, including speech and hearing. A magazine, a professional directory, and professional brochures and monographs/books also are available. Holds two meetings each year; refer to the ASA home page for dates and locations.

Association for Research in Otolaryngology (ARO)

President: P. Ashley Wackym, M.D.
Public Information Contact: Darla M. Dobson, Executive Director
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
Voice: (856) 423-0041
Fax: (856) 423-3420
E-mail: headquarters@aro.org
Internet: www.aro.org

Description:
The Association for Research in Otolaryngology (ARO) is an international scientific society of researchers who investigate basic science and clinical problems associated with hearing, speech, balance, smell and taste, and diseases of the head and neck. ARO’s goals are to encourage both basic and clinical research in the broad field of otolaryngology and related areas and to foster friendly assembly and stimulate scientific interest among its members. Holds mid-winter research meeting; contact ARO for date and location.

American Auditory Society (AAS)

President: Michael Gorga, Ph.D.
Public Information Contact: Jay Rubinstein, Ph.D., President-elect
Address: 352 Sundial Ridge Circle, Dammeron Valley, UT, 84783-5196
Voice: (435) 574-0062
Fax: (435) 574-0063
E-mail: aas@amauditorysoc.org
E-mail: amaudsoc@aol.com
Internet: www.amauditorysoc.org

Description:
The purpose of the American Auditory Society (AAS) is to increase knowledge and understanding of the ear, hearing, and balance; their disorders and how to prevent them; and habilitation and rehabilitation of individuals with hearing and balance dysfunction. AAS coordinates and disseminates information, particularly through regular meetings, sponsorships, and publication of a professional journal and newsletter and other informational materials. Holds annual meeting; contact AAS for date and location.

Association of Late-Deafened Adults (ALDA)

President: Edgar Palmer
Address: 8038 Macintosh Lane, Rockford, IL, 61107
Toll-free Voice: (866) 402-ALDA (2532)
Toll-free TTY: (866) 402-ALDA (2532)
E-mail: info@alda.org
Internet: www.alda.org

Description:
The Association of Late-Deafened Adults (ALDA) serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults. Holds annual conference; contact ALDA for date and location. A professional/consumer directory, proceedings of conventions, and fact sheets are available.

AUDIENT

President: Mike Langhout
Public Information Contacts: Sharon Kerpel, Thlayla Potter, and Marsha Rastatter
Address: 901 Boren Avenue, Suite 810, Seattle, WA, 98104
Voice: (206) 838-7194
Toll-free Voice: (877) AUDIENT (283-4368)
Fax: (206) 838-7195
E-mail: info@audientalliance.org
Internet: www.audientalliance.org

Description:
AUDIENT provides hearing care to low-income individuals who qualify. Hearing care costs for participants range between $760 and $1,500, depending on the type of hearing aid and whether a person receives a monaural (one ear) or binaural (both ears) fitting. AUDIENT products and services include hearing aids, ear molds, fittings, and three follow-up visits.

Academy of Rehabilitative Audiology (ARA)

President: Patricia Kricos, Ph.D.
Administrative Assistant: Karen Dannheim
Address: P.O. Box 952, DeSoto, TX, 75123
Fax: (972) 534-1281
E-mail: ara@audrehab.org
Internet: www.audrehab.org

Description:
The Academy of Rehabilitative Audiology (ARA) was founded in 1966 as a forum for the exchange of ideas, knowledge, and experience related to rehabilitative aspects of audiology and associated disciplines. Membership in ARA is open to professionals holding a graduate degree in audiology, speech-language pathology, or the education of persons with hearing impairment. Associate and student memberships also are available. Holds annual institute; contact ARA for date and location. A professional newsletter/bulletin, directory, and books and monographs are available.

American Tinnitus Association (ATA)

Chief Executive Officer: Gary Reul, Ed.D.
Public Information Contact: Jennifer DuPriest, Director of Public Affairs
Address: P.O. Box 5, Portland, OR, 97207-0005
Voice: (503) 248-9985
Toll-free Voice: (800) 634-8978
Fax: (503) 248-0024
E-mail: jennifer@ata.org
Internet: www.ata.org

Description:
The mission of the American Tinnitus Association (ATA) is to cure tinnitus by developing resources that advance tinnitus research. Founded in 1971, ATA has raised and allocated millions of dollars toward medical research projects focused on a cure. ATA also advocates for effective public policies that support its mission. ATA publishes a triannual magazine that is written for a non-medical audience. The magazine includes detailed articles on current research, treatment, and other information for those living with tinnitus and others interested in staying current in this field. Articles from prior issues are available on the ATA Web site. A consumer directory, fact sheets, and other publications for professionals and consumers also are available online and in print.

Academy of Doctors of Audiology (ADA) (formerly the Academy of Dispensing Audiologists)

President: Larry Englemann, Au.D.
Association Manager: Erin Butler
Address: 401 North Michigan Avenue, Suite 2200, Chicago, IL, 60611-4267
Voice: (866) 493-5544
Fax: (312) 673-6725
E-mail: info@audiologist.org
Internet: www.audiologist.org

Description:
The Academy of Doctors of Audiology (ADA), founded in 1976, provides valuable resources to the private practitioner in audiology and to other audiology professionals who have responsibility for quality patient care and business operations. Member benefits include a quarterly business-focused journal, online forums, and various practice management resources. ADA strives to be the leader in professional development, high ethical standards, career enhancement, practice improvement, and student outreach.

American Association of the Deaf-Blind (AADB)

Executive Director: Jamie Pope
Address: 8630 Fenton Street, Suite 121, Silver Spring, MD, 20910
Voice: (301) 495-4403
TTY: (301) 495-4402
Fax: (301) 495-4404
E-mail: aadb-info@aadb.org
Internet: www.aadb.org

Description:
The American Association of the Deaf-Blind (AADB) is a national consumer organization of, for, and by people who have dual hearing and vision loss. The mission of AADB is to ensure that all deaf-blind persons achieve their maximum potential through increased independence, productivity, and integration into the community. Holds biennial conference; contact AADB for date and location.

ABLEDATA

Director: Katherine Belknap, M.A.
Information Specialist: Juanita Hardy
Address: 8630 Fenton Street, Suite 930, Silver Spring, MD, 20910
Voice: (301) 608-8998
Toll-free Voice: (800) 227-0216
TTY: (301) 608-8912
Fax: (301) 608-8958
E-mail: abledata@orcmacro.com
Internet: www.abledata.com

Description:
The ABLEDATA project helps people who have disabilities, including communication disorders, by providing information about assistive devices, rehabilitation equipment, and other products. Resources include a database of more than 34,000 products. A database of citations of books, articles, and other resources related to assistive technology also is available, along with fact sheets, brochures, and online publications.

American Academy of Audiology (AAA)

Interim Executive Director: Cheryl Kreider Carey, CAE
Public Information Contact: Sydney Hawthorne Davis, Director of Communications
Address: 11730 Plaza America Drive, Suite 300, Reston, VA, 20190
Voice: (703) 790-8466
Toll-free Voice: (800) 222-2336
TTY: (703) 790-8466
Fax: (703) 790-8631
E-mail: info@audiology.org
Internet: www.audiology.org / www.audiologyfoundation.org

Description:
With more than 10,000 members, the American Academy of Audiology (AAA) is the world’s largest professional organization of, by, and for audiologists. Dedicated to providing quality hearing care to the public, AAA enhances the ability of its members to achieve career and practice objectives through professional development, education, research, and increased public awareness of hearing and balance disorders and audiologic services. Holds annual convention; see AAA Web site for date and location. Resources include a professional magazine and journal as well as professional computer software/assisted education. Online professional/consumer publications, an audiologist locator, and a professional membership directory also are available. Some Spanish materials are available.

American Broncho-Esophagological Association (ABEA)

President: Clarence Sasaki
Public Information Contact: Peter J. Koltai, M.D., Secretary
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
Voice: (650) 725-6500
Voice: (801) 587-7678
Fax: (801) 585-5744
E-mail: koltai@stanford.edu
Internet: www.abea.net

Description:
The American Broncho-Esophagological Association (ABEA) is an association of physicians with interest in the function and diseases of the upper aerodigestive tract and the relevant applications of endoscopy. The goals of ABEA are to educate and update physicians in evaluating and managing aerodigestive tract disorders; stimulate and support basic and clinical research; advocate and support endoscopy training in residency and fellowship programs; and provide information useful to patients, industry, scientists, physicians, and other health care professionals at a national otolaryngology meeting.

Autism Network for Hearing and Visually Impaired Persons

Directors: Dolores Bartel and Alan Bartel, M.D.
Address: 7510 Ocean Front Avenue, Virginia Beach, VA, 23451
Voice: (757) 428-0019
Fax: (757) 428-0019

Description:
The Autism Network for Hearing and Visually Impaired Persons provides a support group and a database for parents and professionals to share experiences and advice on education, services, and management problems. One long-term goal is the establishment of regional resource and evaluation centers for people with autism and hearing and visual disabilities. A directory is available.

Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)

Director: Lucille B. Beck, Ph.D.
Public Information Contact: Cathy Greener
Address: VA Medical Center, 50 Irving Street, NW, Washington, DC, 20422
Voice: (202) 745-8578
Voice: (202) 745-8270
Fax: (202) 745-8579
E-mail: cathy.greener@va.gov

Description:
Audiology and Speech Pathology Services of the U.S. Department of Veterans Affairs (VA) provides high-quality, comprehensive, state-of-the-art clinical services to eligible veterans. Diagnostic and treatment services are offered in a timely manner and in an environment that fosters respect, communication, and compassion. Audiology services include evaluation and treatment of hearing loss and tinnitus, along with assessment of balance problems and, in some locations, balance rehabilitation. Diagnostic auditory and vestibular assessment, provision of hearing aids and assistive and alerting devices, cochlear implant management, and auditory rehabilitation also are available. Speech pathology services include evaluation and treatment of speech, language, voice, and swallowing disorders.

American Academy of Otolaryngology--Head and Neck Surgery (AAO-HNS)

Executive Vice President: David R. Nielsen, M.D.
Public Information Contact: Jeanne McIntyre, Director of Communications
Address: 1650 Diagonal Road, Alexandria, VA, 22314-2857
Voice: (703) 836-4444
Fax: (703) 683-5100
E-mail: webmaster@entnet.org
Internet: www.entnet.org

Description:
The nonprofit American Academy of Otolaryngology—Head and Neck Surgery (AAO-HNS) strives to unite, serve, and represent the interests of ear, nose, and throat specialists and their patients to the public, government, other medical specialists, and related organizations. AAO-HNS provides leaflets and geographic lists of physicians to the public at no charge. Holds annual meeting; contact AAO-HNS for date and location. AAO-HNS provides a professional bulletin, journal, directory, books, and other materials. Professional/consumer publications are available online and in print, with some in Spanish.

American Neurotology Society (ANS)

President: D. Bradley Welling, M.D., Ph.D.
Public Information Contact: Shirley Gossard, Administrator
Address: Administrative Office, 3096 Riverdale Road, The Villages, FL, 32162
Voice: (352) 751-0932
Fax: (352) 751-0696
E-mail: segossard@aol.com
Internet: www.americanneurotologysociety.com

Description:
The American Neurotology Society (ANS) is composed of physicians and audiologists devoted to the fields of neurotology and otology. The purpose of ANS is to exchange and disseminate information about the physiology, pathology, and clinical management of the sensorineural systems of audition and equilibrium, and to stimulate education and basic and clinical research relating to these systems. Holds two scientific meetings per year, which are open to anyone in the health sciences and particularly to individuals with major interest areas in hearing and balance. For meeting dates and locations, contact the ANS administrative office.

American Laryngological Association (ALA)

Public Information Contact: Marvin P. Fried, M.D.
Address: Vanderbilt University Medical Center, Department of Otolaryngology, 7302 MCE South Tower, Nashville, TN, 37232
Voice: (615) 322-6326
Fax: (615) 322-9102
E-mail: maxine@alahns.org
Internet: www.alahns.org

Description:
The mission of the American Laryngological Association (ALA) is to promote education and research and to disseminate important new scientific information relative to laryngology, which is the study of basic science, evaluation, and management of disorders relating to the larynx. ALA strives to accomplish this mission by promoting and presenting the latest scientific discoveries, publishing peer-reviewed reports, establishing funding sources for pilot research studies that facilitate subsequent funding by the National Institutes of Health, and sponsoring educational seminars and courses as well as public service announcements.

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)

Interim Executive Director: Frederick T. Spahr
Senior Director, Marketing and Communications: Jessica Ripper
Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
Voice: (202) 337-5220
Toll-free Voice: (866) 337-5220
TTY: (202) 337-5221
Fax: (202) 337-8314
E-mail: info@agbell.org
Internet: www.agbell.org

Description:
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is a lifelong resource, support network, and advocate for listening, learning, talking, and living independently with hearing loss. Through publications, advocacy, training, scholarships, and financial aid, AG Bell promotes the use of spoken language and hearing technology. Headquartered in Washington, DC, AG Bell has chapters located in the United States and Canada and also includes a network of international affiliates.

Association for Chemoreception Sciences (AChemS)

Associate Executive Director: Tisha Kehn
Address: 5841 Cedar Lake Road, Suite 204, Minneapolis, MN, 55416
Voice: (952) 646-2035
Fax: (952) 545-6073
E-mail: info@achems.org
Internet: www.achems.org

Description:
The Association for Chemoreception Sciences (AChemS) is an international association that advances understanding of the senses of taste and smell. It encourages basic, clinical, and applied research in the chemical senses (gustation, olfaction, and trigeminal sensation); promotes an appreciation of chemosensory research; represents the interests of the chemosensory research community; and serves as a resource for those requiring chemosensory expertise. Holds annual meeting; contact AChemS for date and location. A professional newsletter and directory are available.

American Hearing Research Foundation (AHRF)

Executive Director: William L. Lederer
Public Information Contact: Richard G. Muench, Chairman
Address: 8 South Michigan Avenue, Suite 814, Chicago, IL, 60603-4539
Voice: (312) 726-9670
Fax: (312) 726-9695
E-mail: blederer@american-hearing.org
Internet: www.american-hearing.org

Description:
The American Hearing Research Foundation (AHRF) is a nonprofit organization. Its purposes are to promote, conduct, and furnish financial assistance for medical research into the causes, prevention, and cure of deafness, impaired hearing, and balance disorders. See the AHRF Web site for additional information.

Agency for Healthcare Research and Quality (AHRQ)

Director: Carolyn Clancy, M.D.
Public Information Contact: Kevin Murray
Address: 540 Gaither Road, Rockville, MD, 20850
Voice: (301) 427-1853
Toll-free Voice: (800) 358-9295
Toll-free TTY: (888) 586-6340
E-mail: info@ahrq.gov
Internet: www.ahrq.gov

Description:
The Agency for Healthcare Research and Quality (AHRQ) provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues. A professional/consumer newsletter/bulletin, fact sheets, brochures/pamphlets, online publications, and professional reports are available. Some Spanish materials are available.

AG Bell Academy for Listening and Spoken Language

Executive Director: Alexander T. Graham
Director of Communications: Catherine Murphy
Address: 3417 Volta Place, NW, Washington, DC, 20007
Voice: (202) 204-4700
TTY: (202) 337-5221
Fax: (202) 337-1637
E-mail: shall@agbellacademy.org
Internet: www.agbellacademy.org

Description:
The AG Bell Academy for Listening and Spoken Language is a nonprofit organization dedicated to promoting the delivery of comprehensive services to children and adults who are deaf or hard-of-hearing through the certification of professionals who work with these individuals. The newly formed academy develops and manages certification programs, with an initial focus on the continued growth and recognition of the certified auditory-verbal therapist designation. The academy incorporated Auditory-Verbal International and is closely affiliated with the Alexander Graham Bell Association for the Deaf and Hard of Hearing, which offers information and resources to the general public as well as to professionals.

Aphasia Hope Foundation (AHF)

Founder/Executive Director: Judi Stradinger
Public Information Contact: Sandy Caudell, Program Director
Address: P.O. Box 26304, Shawnee Mission, KS, 66225-6304
Voice: (913) 839-8083
E-mail: sandycaudell@aphasiahope.org
E-mail: judistradinger@aphasiahope.org
Internet: www.aphasiahope.org

Description:
The Aphasia Hope Foundation (AHF) is a nonprofit organization with a twofold mission: (1) to promote research into the cure and prevention of aphasia and (2) to provide survivors of aphasia and their caregivers access to the best possible treatments, both physical and emotional, for living with this disease. AHF maintains an electronic bulletin board and a Web-based forum for posting questions to aphasia professionals and caregivers. AHF also provides information on ongoing research and legislation focusing on aphasia and offers an outlet through which persons with aphasia can share their stories.

American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS)

Executive Vice President: Stephen Duffy
Public Information Contact: Rita Chua Magness, Director of Publications and Marketing
Address: 310 South Henry Street, Alexandria, VA, 22314
Voice: (703) 299-9291
Fax: (703) 299-8898
E-mail: info@aafprs.org
Internet: www.aafprs.org

Description:
The American Academy of Facial Plastic and Reconstructive Surgery, Inc., (AAFPRS) is the largest association of facial plastic and reconstructive surgeons in the world. The academy’s bylaws provide that AAFPRS fellows be board-certified surgeons with training and experience in facial plastic surgery as well as fellows of the American College of Surgeons or the Royal College of Surgeons. The AAFPRS Web site provides visitors with information about facial plastic surgery and the names of AAFPRS fellows in their area. Professional and consumer publications are available, with some in Spanish.

American Society for Deaf Children (ASDC)

Executive Director: Don Rhoten
Public Information Contact: Jessica Wells, Associate Executive Director
Address: 3820 Hartzdale Drive, Camp Hill, PA, 17011
Voice: (717) 703-0073
Toll-free Voice: (866) 895-4206
TTY: (717) 703-0073
E-mail: ASDC4U@aol.com
Internet: www.deafchildren.org

Description:
The American Society for Deaf Children (ASDC) supports and educates families of deaf and hard-of-hearing children, and advocates for high-quality programs and services. Holds biennial convention; contact ASDC for date and location. Consumer brochures and a magazine are available.

Association of University Centers on Disabilities (AUCD)

Executive Director: George Jesien, Ph.D.
Address: 1010 Wayne Avenue, Suite 920, Silver Spring, MD, 20910
Voice: (301) 588-8252
Fax: (301) 588-2842
E-mail: info@aucd.org
Internet: www.aucd.org

Description:
The Association of University Centers on Disabilities (AUCD) is the national association representing University Centers for Excellence in Developmental Disabilities, Maternal and Child Health Leadership Education in Neurodevelopmental Disabilities Programs, and Developmental Disabilities Research Centers. Its mission is to help member centers by advancing policy and practice for and with people with developmental and other disabilities, their families, and communities. Contact AUCD for date and location of annual meeting. A professional newsletter/bulletin, proceedings, and fact sheets are available.

Autism Society of America Address: 7910 Woodmont Avenue, Suite 300, Bethesda, MD, 20814
Voice: (301) 657-0881
Toll-free Voice: (800) 3-AUTISM (28-8476)
E-mail: info@autism-society.org
Internet: www.autism-society.org

Description:
The mission of the Autism Society of America (ASA) is to promote lifelong access and opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities. ASA works to achieve this mission through advocacy, public awareness, education, and research related to autism.

Acoustic Neuroma Association (ANA)

Executive Director: Judy B. Vitucci
Address: 600 Peachtree Parkway, Suite 108, Cumming, GA, 30041
Voice: (770) 205-8211
Toll-free Voice: (877) 200-8211
Fax: (877) 202-0239
E-mail: info@anausa.org
Internet: www.anausa.org

Description:
An acoustic neuroma, also called a vestibular schwannoma, is a slow-growing, benign tumor that develops on the balance portion of the eighth cranial nerve. Early symptoms include hearing loss, balance problems, and tinnitus. The Acoustic Neuroma Association (ANA) is a patient-focused organization that provides information and support to those affected by acoustic neuroma. Holds a national symposium; contact ANA for date and location. ANA also publishes a quarterly newsletter and other consumer information, organizes local support groups, promotes research, and maintains an interactive Web site.

American Association for the Advancement of Science (AAAS), EntryPoint!

Director: Virginia Stern
Program Manager: Laureen Summers
Address: 1200 New York Avenue, NW, Washington, DC, 20005
Voice: (202) 326-6649
TTY: (202) 326-6649
Fax: (202) 371-9849
E-mail: lsummers@aaas.org
Internet: www.entrypoint.org

Description:
In 1975, the American Association for the Advancement of Science (AAAS) initiated the Project on Science, Technology, and Disability to improve entry and advancement in science, math, and engineering for people with disabilities. Students with disabilities and their families, professors, teachers, and counselors are linked with scientists, mathematicians, and engineers who also have disabilities and who can share their coping strategies in technical fields. Through its program EntryPoint!, the project recruits college students with disabilities who are majoring in science, engineering, mathematics, computer science, and some business fields for summer opportunities at large corporations, federal agencies, and university science laboratories.

American Speech-Language-Hearing Foundation (ASHFoundation)

Executive Director: Nancy J. Minghetti
Public Information Contact: Emily Diaz
Address: 2200 Research Blvd., Rockville, MD, 20850
Voice: (301) 296-8703
E-mail: foundation@asha.org
Internet: www.ASHfoundation.org

Description:
The American Speech-Language-Hearing Foundation (ASHFoundation) supports the advancement of knowledge and the improvement of practice in serving children and adults with speech, language, or hearing disorders. ASHFoundation supports research, master’s and doctoral scholarships, and special projects that facilitate innovative directions in the field of communication sciences and disorders. This private organization is supported, in part, by the tax-deductible contributions of individuals, corporations, and organizations. See the Web site for information and funding guidelines.

American Speech-Language-Hearing Association (ASHA)

Executive Director: Arlene A. Pietranton, Ph.D.
Public Information Contact: Action Center
Address: 2200 Research Blvd., Rockville, MD, 20850
Toll-free Voice: (800) 638-8255
Toll-free TTY: (800) 638-8255
E-mail: actioncenter@asha.org
Internet: www.asha.org

Description:
The mission of the American Speech-Language-Hearing Association (ASHA) is to promote the interests of and provide the highest quality services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities. Holds annual conference; contact ASHA for date and location. Professional brochures/pamphlets, journals, and professional/consumer online publications are available. Some Spanish materials are available.

American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

Executive Director: Nancy C. Smythe
Public Information Contact: Lisa Gist, Cleftline Manager
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
Voice: (919) 933-9044
Toll-free Voice: (800) 24-CLEFT (2-5338)
Fax: (919) 933-9604
E-mail: CPF E-mail: info@cleftline.org
E-mail: ACPA E-mail: info@acpa-cpf.org
Internet: www.cleftline.org / www.acpa-cpf.org

Description:
The American Cleft Palate-Craniofacial Association (ACPA) is an international nonprofit association of more than 2,500 health care professionals who are involved in the treatment and research of cleft lip, cleft palate, and other craniofacial abnormalities. ACPA optimizes the interdisciplinary care of persons affected by craniofacial abnormalities. The Cleft Palate Foundation (CPF), which is the public service arm of ACPA, educates and assists the public regarding craniofacial anomalies and encourages research in the field. Holds annual convention; contact ACPA or CPF for date and location. A directory and professional/consumer fact sheets and brochures are available, with some in Spanish.

Association of Academic Physiatrists (AAP)

Executive Director: Carolyn L. Braddom-Ritzler, Ed.D.
Public Information Contact: Vincent A. Fields, Sr., M.B.A., Deputy Director
Address: 1106 North Charles Street, Suite 201, Baltimore, MD, 21201
Voice: (410) 637-8300
Fax: (410) 637-8399
E-mail: clbexec@physiatry.org
E-mail: vfields@physiatry.org
Internet: www.physiatry.org

Description:
The mission of the Association of Academic Physiatrists (AAP) is to promote excellence in the education, research, and practice of physical medicine and rehabilitation (PM&R) in the academic arena. To accomplish this, AAP facilitates the exchange of ideas and information on teaching the art and science of PM&R. AAP promotes the dissemination of information and academic life skills to future physicians who will be practicing PM&R and encourages information exchange with other fields of medicine. Holds annual conference; contact AAP for date and location. A professional newsletter, journal, brochures, and a residency training directory are available.

AARP

Chief Executive Officer: William D. Novelli
Manager, Media Services: Steve Hahn
Address: 601 E Street, NW, Washington, DC, 20049
Toll-free Voice: (888) 687-2277
TTY: (202) 434-6561
Toll-free TTY: (877) 434-7598
Fax: (202) 434-6499
E-mail: media@aarp.org
Internet: www.aarp.org

Description:
AARP is a nonprofit, nonpartisan membership organization that helps people who are ages 50 and older to have independence, choice, and control in ways that are beneficial and affordable to them and society as a whole. The AARP Foundation is an affiliated charity that provides security, protection, and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. AARP has staffed offices in all 50 states, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands.

Autism Speaks

President: Mark Roithmayr
Public Information Contact: Alison Singer, Executive Vice President, Communications
Address: 2 Park Avenue, 11th floor, New York, NY, 10016
Voice: (212) 252-8584
Fax: (212) 252-8676
E-mail: contactus@autismspeaks.org
Internet: www.autismspeaks.org

Description:
The goal of Autism Speaks is to change the future for all who struggle with autism spectrum disorders. This organization is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; raising public awareness about autism and its effects on individuals, families, and society; and bringing hope to all who deal with the hardships of autism.

ADARA: Professional Networking for Excellence in Service Delivery with Individuals Who Are Deaf or Hard of Hearing

President: David Tout
Public Information Contact: Sherri Gallagher, National Office Coordinator
Address: P.O. Box 480, Myersville, MD, 21773
Voice: (301) 293-8969
TTY: (301) 293-8969
Fax: (301) 293-9698
E-mail: adaraorg@comcast.net
Internet: www.adara.org

Description:
The mission of ADARA is to facilitate professional development,networking opportunities, and public policies for a multidisciplinary membership of professionals who provide human services to persons who are deaf, hard-of-hearing, late-deafened, and deaf-blind. Holds biannual convention; contact ADARA for date and location. A professional/consumer newsletter/bulletin and professional online publications are available.

Better Hearing Institute (BHI)

President: Brian Kinnerk
Public Information Contact: Sergei Kochkin, Ph.D., Executive Director
Address: 1444 I Street, Suite 700, Washington, DC, 20005
Voice: (202) 449-1100
Toll-free Voice: (800) EAR-WELL (327-9355)
Fax: (202) 216-9646
E-mail: mail@betterhearing.org
Internet: www.betterhearing.org

Description:
The Better Hearing Institute (BHI) is a nonprofit corporation that educates the public about the neglected problem of hearing loss and what can be done about it. BHI maintains a “Hearing Helpline” telephone service that provides information on hearing loss, sources of assistance, and other available hearing help to callers anywhere in the United States and Canada. The institute also publishes an annual study of issues related to hearing loss. BHI receives funding from the hearing aid industry to support its professional/consumer outreach efforts.

Boys Town National Research Hospital (BTNRH)

Director: Patrick Brookhouser, M.D.
Public Information Contact: Mary Pat Moeller, Ph.D.
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 498-6511
Voice: (402) 452-5068
TTY: (402) 498-6543
Fax: (402) 452-5027
E-mail: moeller@boystown.org
E-mail: johnsm@boystown.org
Internet: www.boystownhospital.org / www.babyhearing.org

Description:
The Boys Town National Research Hospital (BTNRH) is internationally recognized for clinical service and research into the treatment of childhood deafness and communication disorders. Research is conducted in 20 state-of-the-art laboratories and represents three broad areas: neurobiological studies of hearing; hereditary communication disorders; and clinical, educational, and behavioral studies of human communication.

Birth Defect Research for Children, Inc. (BDRC)

Executive Director: Betty Mekdeci
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
Voice: (407) 566-8304
Fax: (407) 566-8341
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org

Description:
Birth Defect Research for Children, Inc., (BDRC) provides parents and expectant parents with information about specific birth defects and their causes and treatments, support group referrals, and parent-matching services. BDRC also provides information about environmental exposures that may be associated with birth defects. To study these exposures further, BDRC sponsors the National Birth Defect Registry, an online research project that collects data on birth defects and prenatal/preconception exposures of both parents. A consumer newsletter, fact sheets, and other publications are available.

Brain Injury Association of America

President/CEO: Susan Connors
Address: 8201 Greensboro Drive, Suite 611, McLean, VA, 22102
Voice: (703) 761-0750
Toll-free Voice: (800) 444-6443
Fax: (703) 761-0755
E-mail: braininjuryinfo@biausa.org
Internet: www.biausa.org

Description:
The mission of the Brain Injury Association of America is to create a better future through brain injury prevention, research, education, and advocacy. Its Helpline offers information about brain injury to persons with brain injury, their families, professionals, and other interested callers. Educational materials, such as a consumer newsletter, brochures/pamphlets, a professional/consumer directory, fact sheets, and online publications, are available. Information also is available in Spanish.

BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc. (BEGINNINGS)

Executive Director: Joni Alberg, Ph.D.
Public Information Contact: Judy Werbicki, Administrative Assistant
Address: P.O. Box 17646, Raleigh, NC, 27619
Voice: (919) 850-2746
Toll-free Voice: (800) 541-4327 (In-state only)
TTY: (919) 850-2746
Fax: (919) 850-2804
E-mail: info@ncbegin.org
Internet: www.ncbegin.org

Description:
BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing, Inc., (BEGINNINGS) provides support and information in an impartial manner to parents and professionals dealing with deaf and hard-of-hearing issues in children. BEGINNINGS also provides impartial information on communication options, placement, and educational programs; workshops for professional personnel who work with children who are deaf and hard-of-hearing; and advocacy and support for young people. Fact sheets, brochures, a parent manual, and reports are available, with some materials in Spanish.

Council for Accreditation in Occupational Hearing Conservation (CAOHC)

Executive Director: Eloiza Altoro-Acevedo, MS CAE CPS
Executive Director: Eloiza Altoro-Acevedo
Address: 555 East Wells Street, Suite 1100, Milwaukee, WI, 53202-3823
Voice: (414) 276-5338
Fax: (414) 276-2146
E-mail: info@caohc.org
Internet: www.caohc.org

Description:
The main objective of the Council for Accreditation in Occupational Hearing Conservation CAOHC) is to provide education, information, and guidance to industry and mining and to those serving industry and mining for the successful implementation of an occupational hearing conservation program. See the Web site for the “Scope of Practice: The Professional Supervisor of the Audiometric Monitoring Program” (the audiometric portion of a hearing conservation program), “CAOHC Certified Occupational Hearing conservationist Scope of Practice and Limitations,” archived newsletters, and other comprehensive information.

CHERAB Foundation

Founder: Lisa Geng
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
Voice: (772) 335-5135
Fax: (772) 337-4812
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Description:
The CHERAB Foundation (CHERAB) is a worldwide nonprofit organization that helps individuals with speech and language delays and disorders through communication help, education, and research that is apraxia-based. Its area of emphasis is verbal and oral apraxia—severe neurologically based speech and language disorders that hinder children’s ability to speak. The foundation is committed to assisting with the development of new therapeutic approaches to, and prevention and cure of, neurologically based speech disorders. CHERAB brings together parents and medical, research, and educational professionals to help give a voice to all.

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Executive Director: Joe Finnegan
Address: P.O. Box 1778, St. Augustine, FL, 32085-1778
Voice: (904) 810-5200
TTY: (904) 810-5200
Fax: (904) 810-5525
E-mail: nationaloffice@ceasd.org
Internet: www.ceasd.org

Description:
The Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) is an association of schools and programs involved with the education of deaf and hard-of-hearing individuals. Founded in 1868, CEASD is committed to promoting excellence within a continuum of equitable educational opportunities for children and adults who are deaf or hard-of-hearing. At the national level, CEASD serves as an advocate for the deaf and hard-of-hearing with governmental bodies that establish educational policy and implement federal legislation. Holds annual convention; contact CEASD for date and location. A professional journal, newsletter, directory, brochures/pamphlets, and online publications are available.

Centers for Medicare and Medicaid Services (CMS)

Acting Deputy Administrator: Herb Kuhn
Public Information Contact: Jeff Nelligan, Director of Media Affairs
Address: 7500 Security Boulevard, Baltimore, MD, 21244-1850
Voice: (410) 786-3000
Voice: (202) 690-6145
Toll-free Voice: (877) 267-2323
Internet: www.cms.gov / www.medicare.gov

Description:
The Centers for Medicare and Medicaid Services (CMS) is a federal agency with responsibilities that include the Medicare and Medicaid programs, two national health care programs benefiting about 75 million Americans; the State Children’s Health Insurance Program; regulation of all non-research laboratory testing performed on humans in the United States; and programs assisting millions of Americans and small companies in obtaining health insurance coverage. The Web site www.cms.gov targets health care providers and the public, while www.medicare.gov offers information about services to beneficiaries. Publications are available.

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services (OSERS) Public Information Contact: Carolyn Corlett
Address: 550 12th Street, SW, Room 5133, Washington, DC, 20004
Voice: (202) 245-7307
TTY: (202) 205-5637
Fax: (202) 245-7636
Internet: www.ed.gov/about/offices/list/osers/index.html

Description:
The Clearinghouse on Disability Information, a service of the U.S. Department of Education, responds to people with disabilities and others who request information by conducting research and providing documents related to federal funding available for disability-related programs. Clearinghouse staff members also may refer requests to other sources of disability-related information. Information provided may be useful to disabled individuals and their families, schools and universities, teachers and school administrators, and organizations who serve people with disabilities.

Children of Deaf Adults International, Inc. (CODA)

President: Carmel Batson
National CODA Outreach Contact: Thomas Bull
Address: P.O. Box 30715, Santa Barbara, CA, 93130
Voice: (805) 682-0997
TTY: (805) 682-0997
Internet: www.coda-international.org

Description:
Children of Deaf Adults International, Inc., (CODA) promotes family awareness and individual growth in hearing children of deaf parents. CODA provides educational opportunities, promotes self-help, organizes advocacy efforts, and acts as a resource for the membership and various communities. Holds annual conference; contact CODA for date and location. A professional/consumer newsletter, directory, fact sheets, brochures, and books are available.

Council for Learning Disabilities (CLD)

Executive Director: Linda Nease
Address: 11184 Antioch Road, #405, Overland Park, KS, 66210
Voice: (913) 491-1011
Fax: (913) 491-1012
E-mail: lnease@cldinternational.org
Internet: www.cldinternational.org

Communication Service for the Deaf, Inc. (CSD)

Chief Executive Officer: Benjamin Soukup, L.L.D.
Public Information Contact: Rick Norris, Corporate Communications Officer
Address: 102 North Krohn Place, Sioux Falls, SD, 57103
Voice: (605) 367-5760
Toll-free Voice: (800) 642-6410
TTY: (605) 367-5761
Toll-free TTY: (866) 273-3323
Fax: (605) 367-5958
E-mail: rnorris@c-s-d.org
Internet: www.c-s-d.org

Description:
Communication Service for the Deaf, Inc. (CSD), is a world leader in providing broad-based quality human service programs and telecommunication relay services for consumers who are deaf and hard-of-hearing. CSD has a staff of approximately 2,000 people in facilities across the United States. CSD endeavors to increase opportunities for greater independence, ensure communication accessibility, and promote public awareness of issues affecting everyone who is deaf or hard-of-hearing.

Center on Human Policy (CHP)

Director: Steven J. Taylor, Ph.D.
Public Information Contact: Rachael A. Zubal-Ruggieri, Information Coordinator
Address: Syracuse University, School of Education, 805 South Crouse Avenue, Syracuse, NY, 13244-2280
Voice: (315) 443-3851
Toll-free Voice: (800) 894-0826
Fax: (315) 443-4338
E-mail: thechp@syr.edu
Internet: thechp.syr.edu

Description:
The Center on Human Policy (CHP) is a Syracuse University-based policy, research, and advocacy organization involved in the national movement to ensure the rights of people with disabilities. CHP is involved in a broad range of local, state, national, and international activities, including policy studies, research, information and referral, advocacy, training and consultation, and information dissemination. Professional/consumer fact sheets, brochures/pamphlets, online publications, monographs/books, audiovisuals, and reports are available. Some materials are available in Spanish and French.

Council for Exceptional Children (CEC)

Executive Director: Bruce Ramirez
Public Information Contact: Lynda Van Kuren, Communications Director
Address: 1110 North Glebe Road, Suite 300, Arlington, VA, 22201
Voice: (703) 620-3660
Toll-free Voice: (800) 224-6830
Toll-free TTY: (866) 915-5000
Fax: (703) 264-9494
E-mail: service@cec.sped.org
Internet: www.cec.sped.org

Description:
The Council for Exceptional Children (CEC) is the largest professional organization dedicated to improving the educational success of individuals with disabilities or gifts. CEC advocates for appropriate government policies, sets professional standards, provides professional development, advocates for underserved individuals with exceptionalities, and helps professionals obtain conditions and resources for effective professional practice. Holds annual convention; contact CEC for date and location. A professional journal, brochures, and a newsletter are available.

Central Institute for the Deaf (CID)

Executive Director: Robin Feder
Public Information Contact: Kim Readmond
Address: 825 South Taylor Avenue, St. Louis, MO, 63110
Voice: (314) 977-0243
TTY: (314) 977-0037
Fax: (314) 977-0033
E-mail: kreadmond@cid.edu
Internet: www.cid.edu

Description:
Founded in 1914, the Central Institute for the Deaf (CID) is a nonprofit organization that helps deaf children learn to speak, listen,and read with proficiency without the use of sign language. CID provides pediatric audiology; research collaborations; continuing education workshops for professionals; and books, tests, and curricula used to help deaf children throughout the world. CID has a proud history of training professionals and conducting pioneering educational, clinical, and biological research in hearing and deafness. CID is a financially independent affiliate of the Washington University School of Medicine.

Council on Education of the Deaf (CED)

Executive Director: Karen Dilka
Address: Gallaudet University, P.O. Box 2094, 800 Florida Avenue, NE , Washington, DC, 20002
Voice: (859) 622-1043
Fax: (859) 622-4443
E-mail: cedoffice@gallaudet.edu
Internet: www.deafed.net

Description:
The Council on Education of the Deaf (CED) is a national professional organization responsible for setting and implementing policy related to education of deaf and hard-of-hearing students in schools. This includes setting certification and accreditation standards, certifying teachers, and evaluating university teacher preparation programs for accreditation approval. Established in 1930, CED has fostered cooperative networks in the field of education of deaf students. The CED board is composed of representatives from its seven member organizations, which are identified on the CED Web site. Professional online publications, application forms,and standards and manuals are available.

Childhood Apraxia of Speech Association of North America (CASANA)

President: Mary Sturm, M.D.
Public Information Contact: Kathy Bauer
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
Voice: (412) 343-7102
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org

Description:
Childhood Apraxia of Speech Association of North America The Childhood Apraxia of Speech Association of North America (CASANA)is the only national nonprofit 501(c)(3) charity representing the needs of children with apraxia and their families. CASANA’s goal is to provide credible, reliable, and comprehensive information on apraxia of speech in children. Guided by a professional advisory board of experts in childhood apraxia of speech, CASANA offers information and resources based on the current prevailing professional literature and expert opinion. CASANA raises awareness and provides online services, educational training, workshops for professionals and parents, and research support. Educational DVDs are available on topics that include an introduction to childhood apraxia of speech, treatment strategies for childhood apraxia of speech, and ways to help children with apraxia practice speaking at home and in the community.

Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)

President: Celia Hooper, PH.D
Executive Administrator: Frances Laven, M.S., CCC
Address: P.O. Box 26532, Minneapolis, MN, 55426
Voice: (952) 920-0966
Fax: (952) 920-6098
E-mail: cap@incnet.com
Internet: www.capcsd.org

Description:
The Council of Academic Programs in Communication Sciences and Disorders (CAPCSD) is an organization of university programs in speechlanguage pathology; audiology; and speech, language, and hearing sciences. It represents more than 2,000 faculty and administrators from universities in the United States and abroad. CAPCSD advocates for academic programs in communication sciences and disorders and facilitates information exchange among programs and personnel. It also serves as an advisory group to professional associations, legislative bodies, and government agencies. Holds annual conference; contact CAPCSD for date and location. A professional directory, brochures/pamphlets, and reports are available.

Described and Captioned Media Program (DCMP), National Association of the Deaf

Project Director: Bill Stark
Address: 1447 East Main Street, Spartanburg, SC, 29307
Toll-free Voice: (800) 237-6213
Toll-free TTY: (800) 237-6819
Fax: (800) 538-5636
E-mail: info@dcmp.org
Internet: www.dcmp.org

Description:
The Described and Captioned Media Program (DCMP) provides services designed to support and improve the academic achievement of students who are blind, visually impaired, deaf, hard-of-hearing, or deaf-blind. These services include (1) a library of free-loan described and captioned educational media; (2) a clearinghouse of information related to educational media access, including a gateway to Internet resources related to accessibility; and (3) a center for training and evaluation of any service provider desiring to appear on the DCMP’s approved lists of description and captioning service providers. There are no user registration or service fees. The DCMP is funded by the U.S. Department of Education and administered by the National Association of the Deaf.

Disability Rights Office, Consumer & Governmental Affairs Bureau, Federal Communications Commission (FCC)

Chief: Thomas Chandler
Address: 445 12th Street, SW, Washington, DC, 20554
Voice: (202) 418-2516
Toll-free Voice: (888) 225-5322
TTY: (202) 418-0189
Toll-free TTY: (888) 835-5322
Fax: (866) 418-0232
E-mail: fccinfo@fcc.gov
Internet: www.fcc.gov/cgb/dro

Description:
The Disabilities Rights Office, housed within the Consumer & Governmental Affairs Bureau at the Federal Communications Commission (FCC), ensures that FCC actions and policies enable people with disabilities to have the same access as everyone else to telecommunications. FCC implements mandates for nationwide telephone relay services, accessibility, and usability of telecommunications wireline and wireless products and services. These services include hearing aid compatibility of phones, closed captioning of television programming, and accessibility of emergency information on television.

Deafness Research Foundation (DRF)

Chief Operating Officer: Andrea Kardonsky
Address: 641 Lexington Avenue, 15th Floor, New York, NY, 10022
Voice: (212) 328-9480
Toll-free Voice: (866) 454-3924
TTY: (888) 435-6104
Toll-free TTY: (888) 435-6104
Fax: (202) 338-8182
E-mail: info@drf.org
Internet: www.drf.org

Description:
The Deafness Research Foundation (DRF) is committed to making a lifetime of hearing health possible for all through the funding of quality research, public education, and advocacy. Throughout its 49-year history, DRF has awarded thousands of “seed money” grants to researchers who explore new avenues of hearing science. DRF-funded research has led to innovations in the diagnosis and treatment of otitis media (middle ear infections), cochlear implants, and implantable hearing aids as well as breakthroughs in molecular biology and hair cell regeneration. A free quarterly magazine is available; visit the Web site to subscribe.

Disability Rights Section, Civil Rights Division, U.S. Department of Justice (DOJ) Public Information Contact: Information Specialists
Address: 950 Pennsylvania Avenue, NW, Washington, DC, 20530
Toll-free Voice: (800) 514-0301
Toll-free TTY: (800) 514-0383
Fax: (202) 514-0404
Internet: www.ada.gov

Description:
The Disability Rights Section (DRS) is part of the Civil Rights Division of the U.S. Department of Justice (DOJ). DRS focuses on all disabilities and is especially knowledgeable about the interpretation of the Americans with Disabilities Act of 1990. The organization offers an information line for all inquiries as well as assistance to state and local government entities, private-sector business professionals, and the general public. Fact sheets, brochures/pamphlets, online publications, and a professional report are available. Some materials in Spanish and other languages are available.

Dyslexia Research Institute (DRI)

Director: Patricia K. Hardman, Ph.D.
Public Information Contact: Amber Mitchell
Address: 5746 Centerville Road, Tallahassee, FL, 32309
Voice: (850) 893-2216
Fax: (850) 893-2440
E-mail: dri@talstar.com
Internet: www.dyslexia-add.org

Description:
The goal of the Dyslexia Research Institute (DRI) is to expand the knowledge of parents and professionals in the areas of dyslexia and attention deficit disorders. Direct instruction is provided through a full multisensoral curriculum for both adults and children. DRI runs a full-time school, called Woodland Hall Academy, for dyslexic individuals. DRI provides instruction through informational seminars,teacher training, and advocacy/consultation. Research papers are available.

DB-LINK at the National Consortium on Deaf-Blindness (formerly the National Information Clearinghouse on Children Who Are Deaf-Blind)

Associate Director, NCDB: John Reiman, Ph.D.
Address: 345 North Monmouth Avenue, Monmouth, OR, 97361
Toll-free Voice: (800) 438-9376
Toll-free TTY: (800) 854-7013
Fax: (503) 838-8150
E-mail: info@nationaldb.org
Internet: www.nationaldb.org

Description:
DB-LINK, part of the National Consortium on Deaf-Blindness (NCDB), is home to the largest collection of information related to deaf-blindness worldwide. A team of information specialists make this extensive resource available in response to direct requests and via our Web site. Contact DB-LINK to access quality information about deaf-blindness, order our newsletter and other publications, find resources in your state, receive tailored information packets to support teaching or training, and connect to a network of experts and families. Information is provided free of charge. NCDB is funded by the U.S. Department of Education's Office of Special Education Programs.

Dogs for the Deaf, Inc.

President/CEO: Robin Dickson
Public Information Contact: Judi Rubert
Address: 10175 Wheeler Road, Central Point, OR, 97502
Voice: (541) 826-9220
Toll-free Voice: (800) 990-DOGS (3647)
TTY: (541) 826-9220
Fax: (541) 826-6696
E-mail: info@dogsforthedeaf.org
Internet: www.dogsforthedeaf.org

Description:
Dogs for the Deaf, Inc., rescues dogs from shelters and trains them to respond to environmental sounds such as smoke alarms, door bells, alarm clocks, baby cries, telephones, and the sound of a person’s name. The dogs also are obedience-trained and socialized. They are then placed, free of charge, in the homes of deaf and hard-of-hearing applicants who live in the United States and Canada and who want and need the benefits of a professionally trained hearing dog. Professional/consumer newsletter, fact sheets, and online publications are available.

Disability, Inc./Sign Language USA, Inc./CAPCOM

Executive Director: Richard F. Rosen, Esq.
Address: P.O. Box 1246, McLean, VA, 22101
Voice: (703) 628-5472
TTY: (703) 628-5472 (via relay)
Fax: (520) 544-8911
E-mail: rosenlaw@att.net
Internet: www.disability-world.com / www.attorneysworldwide.com

Description:
Disability, Inc./Sign Language USA, Inc./CAPCOM provides sign language interpreters and support services for people with disabilities. Live or live-video sign language interpreting is available 24 hours a day, 7 days a week. Services include legal counsel to deaf persons, other legal services, assistance with home mortgages, product information, and the accessibility status of places and businesses. Fact sheets and brochures are available, with some materials in Spanish.

Easter Seals, Inc.

President/Chief Executive Officer: James E. Williams, Jr.
Information and Referral Specialist: Rosemary Garza
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
Voice: (312) 726-6200
Toll-free Voice: (800) 221-6827
TTY: (312) 726-4258
Fax: (312) 726-1494
E-mail: info@easterseals.com
Internet: www.easterseals.com

Description:
The mission of Easter Seals, Inc., is to create solutions that change the lives of children and adults with disabilities and their families. Easter Seals operates 450 sites in the United States. Its eight primary services are medical rehabilitation with early intervention; physical therapy; occupational therapy; speech therapy; job training and employment; children’s services (including inclusive childcare); adult and senior services; and camping, recreation, and respite.

EAR Foundation

Executive Director: Suzanne Wyatt
Address: P.O. Box 330867, Nashville, TN, 37203
Voice: (615) 627-2724
Toll-free Voice: (800) 545-4327
Toll-free TTY: (800) 545-4327
Fax: (615) 627-2728
E-mail: amy@earfoundation.org
Internet: www.earfoundation.org

Friends of Libraries for Deaf Action (FOLDA)

Founding Director: Alice L. Hagemeyer, M.L.S.
Address: 2930 Craiglawn Road, Silver Spring, MD, 20904-1816
TTY: (301) 572-5168
Fax: (301) 572-5168 (VP)
E-mail: folda86@aol.com
Internet: www.folda.net

Description:
Friends of Libraries for Deaf Action (FOLDA) is a public service of Library for Deaf Action, the deaf-owned business of Alice L. Hagemeyer. FOLDA has no membership dues. FOLDA encourages the deaf community to become involved in activities of their local public library and its friends. Some public libraries have FOLDA’s copy of “The Red Notebook,” a regularly updated binder containing fact sheets, library reprints, and announcements about library and information services for the deaf community. Check the FOLDA Web site to keep up with library access and quality resources for the deaf community.

Foundation Fighting Blindness, Inc. (FFB)

Chief Executive Officer: William T. Schmidt
Constituent Service Coordinator: Mitsy Palmer
Address: 11435 Cronhill Drive, Owings Mills, MD, 21117-2220
Voice: (410) 568-0150
Toll-free Voice: (800) 683-5555
Toll-free TTY: (800) 683-5551
Fax: (410) 363-2393
E-mail: info@blindness.org
Internet: www.fightblindness.org

Description:
The mission of the Foundation Fighting Blindness, Inc., (FFB) is to drive the research that will provide prevention, treatments, and cures for people affected by retinitis pigmentosa (RP), macular degeneration (MD), Usher syndrome, and the entire spectrum of retinal degenerative diseases. Usher syndrome is the most common condition involving both hearing and vision and is characterized by hearing impairment and RP. FFB offers information and referral services for affected individuals, their families, and doctors and eye care professionals. FFB also provides information kits on RP, MD, and Usher syndrome. Holds biannual national conference; contact FFB for date and location.

Gallaudet University (GU) and Laurent Clerc National Deaf Education Center

President: Robert Davila, Ph.D.
Address: 800 Florida Avenue, NE, Washington, DC, 20002-3695
Voice: (202) 651-5000
TTY: (202) 651-5000
Fax: (202) 651-5704
E-mail: public.relations@gallaudet.edu
Internet: www.gallaudet.edu

Description:
Gallaudet University (GU) is the world’s only university in which all programs and services are specifically designed to accommodate deaf and hard-of-hearing students. The Kendall Demonstration Elementary School serves infants through eighth grade, and the Model Secondary School for the Deaf offers programs in grades nine through 12. The Research Institute is a leading center for research on deafness. National and international programs, including regional extension centers, conferences, sign language classes, summer programs, and international outreach, annually serve approximately 33,000 people. professional/consumer publications and computer software/assisted education are available.

Genetic Alliance (GA)

President /CEO: Sharon F. Terry, M.A.
Public Information Contact: Sharon F. Terry, M.A.
Address: 4301 Connecticut Avenue, NW, Suite 404, Washington, DC, 20008-2369
Voice: (202) 966-5557
Toll-free Voice: (800) 336-GENE (4363)
Fax: (202) 966-8553
E-mail: information@geneticalliance.org
Internet: www.geneticalliance.org

Description:
Genetic Alliance (GA) is an international coalition composed of more than 600 advocacy, research, and health care organizations that represent millions of individuals with genetic conditions and their interests. As a broad-based coalition of key stakeholders, GA leverages the voices of millions of individuals living with genetic conditions.

Gallaudet University, Laurent Clerc National Deaf Education Center, Public Relations and Publications

Director of Public Relations and Publications: Daniellie Puzio
Coordinator, Information Services: Anita Gilbert
Address: 800 Florida Avenue, NE, Washington, DC, 20002
Voice: (202) 651-5051
TTY: (202) 651-5051
Fax: (202) 651-5708
E-mail: clearinghouse.infotogo@gallaudet.edu
Internet: clerccenter.gallaudet.edu

Description:
The Public Relations and Publications Office at Gallaudet University’s (GU’s) Laurent Clerc National Deaf Education Center provides information about diverse topics related to deaf and hard-of-hearing children and young adults from infancy to age 21. The office responds to inquiries and also collaborates with authors from within the Gallaudet community and nationwide to design, produce, and disseminate books, videotapes, periodicals, and other information related to deaf and hard-of-hearing children, their families, and the professionals who serve them. Fact sheets, brochures, and a directory are available.

Goodwill Industries International, Inc.

President/CEO: George W. Kessinger
Public Information Contact: Christine Nyirjesy Bragale, Director of Media Relations
Address: 15810 Indianola Drive, Rockville, MD, 20855
Voice: (301) 530-6500
Toll-free Voice: (800) 664-6577
TTY: (301) 530-9759
Fax: (301) 530-1516
E-mail: contactus@goodwill.org
Internet: www.goodwill.org

Description:
Goodwill Industries International, Inc., is a network of 205 community-based, autonomous member organizations in the United States, Canada, and 22 other countries. Each organization serves people with workplace disabilities and disadvantages, including those who are deaf or hard-of-hearing or who have other communication disorders, by providing career training and employment services as well as job placement opportunities and post-employment support. A magazine and other publications are available, with some materials in Spanish.

HEATH Resource Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)

Director: Donna Martinez
Address: 2134 G Street, NW , Washington, DC, 20052
Voice: (202) 974-3365
E-mail: askheath@gwu.edu
Internet: www.heath.gwu.edu

Description:
The HEATH Resource Center of the George Washington University Graduate School of Education and Human Development is an online clearinghouse on postsecondary education for individuals with disabilities. Support from the Lumina Foundation enables the clearinghouse to provide information exchange about educational support services, procedures, adaptations, and opportunities at American campuses, vocational-technical schools, and other postsecondary training institutions and centers.

Hearing Education and Awareness for Rockers (H.E.A.R.)

Executive Director: Kathy Peck
Address: P.O. Box 460847, San Francisco, CA, 94146
Voice: (415) 409-EARS (3277)
Fax: (415) 409-LOUD (5683)
E-mail: hear@hearnet.com
Internet: www.hearnet.com

Description:
Hearing Education and Awareness for Rockers (H.E.A.R.) is world-renowned for its efforts to educate the public about the dangers of excessive noise and to provide adequate hearing protection to musicians and music fans. H.E.A.R. promotes awareness about hearing damage by disseminating public service announcements to the media and by establishing information and earplug tables at concerts in the United States. H.E.A.R. programs include affiliate programs in cities worldwide, custom musicians’ hearing protection programs, hearing screening clinics, and online hearing health and music resources. Professional/consumer publications and computer software/assisted education are available.

Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC)

Executive Director: Joseph J. McNulty
Address: 141 Middle Neck Road, Sands Point, NY, 11050
Voice: (516) 944-8900
TTY: (516) 944-8637
Fax: (516) 944-7302
E-mail: hkncinfo@hknc.org
Internet: www.hknc.org

Description:
The mission of the Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is to enable all individuals who are deaf-blind to live and work in the community of their choice. HKNC provides comprehensive vocational rehabilitation training and assistance with job and residential placements. Services in the field include 10 regional offices, more than 40 affiliated agencies, a National Training Team, the Older Adult Program, and the National Consortium on Deaf-Blindness (see page 58). HKNC serves all adult mericans who are deaf-blind or have severe vision and hearing impairments and maintains a national registry of individuals who are deaf-blind. Professional fact sheets and brochures/pamphlets are available, with some materials in Braille.

HEAR NOW

Public Information Contact: Joanita Stelter
Address: 6700 Washington Avenue South, Eden Prairie, MN, 55344
Toll-free Voice: (800) 648-4327
Fax: (952) 828-6946
E-mail: joanita@sotheworldmayhear.org
Internet: www.sotheworldmayhear.org

Description:
HEAR NOW, a domestic program of the Starkey Hearing Foundation, provides hearing aids to people with limited financial resources. HEAR NOW is a program of last resort; all other options must be used before service is awarded. Professional/consumer fact sheets and brochures are available.

Hearing Loss Association of America

Executive Director: Brenda Batlat, MA
Address: 7910 Woodmont Avenue, Suite 1200, Bethesda, MD, 20814
Voice: (301) 657-2248
TTY: (301) 657-2249
Fax: (301) 913-9413
E-mail: info@hearingloss.org
Internet: www.hearingloss.org

Description:
The Hearing Loss Association of America is a nonprofit organization with a mission to open the world of communication to people with hearing loss through education, information, support, and advocacy.

Hard of Hearing Advocates (HOHA)

Director: Janet Keeler
Address: 245 Prospect Street, Framingham, MA, 01701
Voice: (508) 875-8662
Fax: (508) 529-4069
E-mail: hoha@charter.net
Internet: www.hohadvocates.org

Description:
The goal of Hard of Hearing Advocates (HOHA) is to create and implement programs and solutions in areas in which people who are hard-of-hearing have undue problems. HOHA identifies specific problem areas, develops solutions, and seeks support to implement these solutions. The HOHA Web site has an online discussion board where hard-of-hearing people can discuss problems, solutions, and issues related to hearing loss.

Holley Ear Institute (HEI)

President: Ardis J. Gardella
Address: 22151 Moross Road, Professional Building I, Suite 223, Detroit, MI, 48236-2172
Voice: (313) 343-7583
Voice: (313) 343-7484
TTY: (313) 343-8789
Fax: (313) 343-4111
E-mail: ardis.gardella@stjohn.org
E-mail: jacqueline.wetherholt@stjohn.org
Internet: www.stjohn.org/hei

Description:
The mission of the Holley Ear Institute (HEI), a nonprofit organization founded in 1993, is to assist deaf, deaf-blind, and hard-of-hearing individuals by providing services and programs aimed at improving their quality of life. HEI volunteers screen newborn infants for deafness and hearing loss at St. John Hospital in Detroit, MI. HEI owns and operates the Holley Family Village, located in Brooklyn,MI, where it offers educational, recreational, and health programs for deaf, deaf-blind, and hard-of-hearing children, teens, adults, and their families. HEI also offers American Sign Language classes.

House Ear Institute (HEI)

Chief Executive Officer: James D. Boswell
Public Information Contact: Christa Spieth Nuber, Director of Media Relations and Communications
Address: 2100 West Third Street, Los Angeles, CA, 90057
Voice: (213) 483-4431
TTY: (213) 484-2642
Fax: (213) 483-8789
E-mail: webmaster@hei.org
Internet: www.hei.org

Description:
The House Ear Institute (HEI) is a private, nonprofit 501(c)(3)organization dedicated to advancing hearing science through research and education to improve quality of life. Scientists are exploring the developing ear and ear diseases at the cellular and molecular level as well as investigating the complex ear-brain interaction. They also are working to improve hearing aids and auditory implants, clinical treatments, and intervention methods. Professional/consumer brochures, books, and audiovisuals are available.

Hands & Voices National

Executive Director: Leeanne Seaver, M.A.
Address: P.O. Box 3093, Boulder, CO, 80307
Voice: (217) 357-3647
Toll-free Voice: (866) 422-0422
Toll-free TTY: (866) 422-0422
Fax: (217) 357-3647
E-mail: parentadvocate@handsandvoices.org
Internet: www.handsandvoices.org

Description:
Hands & Voices National is a nationwide nonprofit organization dedicated to supporting families and their children who are deaf or hard-of-hearing as well as the professionals who serve them. This organization is a parent-driven, parent/professional collaborative group that is unbiased toward any communication modes and methods. Its membership includes those who are deaf or hard-ofhearing and their families who communicate orally or with signs, cued speech, or combined methods. Hands & Voices National exists to help children reach their highest potential. See the Web site for local chapters.

Hearing Industries Association (HIA)

Executive Director: Carole M. Rogin
Address: 1444 I Street, NW, Suite 700, Washington, DC, 20005
Voice: (202) 449-1090
Fax: (202) 216-9646
E-mail: crogin@clarionmanagement.com
Internet: www.hearing.org

Description:
The Hearing Industries Association (HIA) represents firms that manufacture hearing aids, assistive listening devices, and implantable amplification devices and their components. Fact sheets and statistical reports are available for purchase by request.

Hyperacusis Network

Publisher: Dan Malcore
Address: Post Office Box 8007, Green Bay, WI, 54308
Voice: (920) 866-3377
E-mail: earhelp@yahoo.com
Internet: www.hyperacusis.net

Description:
The Hyperacusis Network is an international support group established to care for individuals with collapsed tolerance to sound. The network helps educate the medical community and families about this rare auditory disorder by sharing ways to cope, providing advice on how to secure disability assistance, and reporting on current research and treatment options. Membership is free. A professional/consumer newsletter, directory, fact sheets, brochures/pamphlets, and online publications are available.

International Deaf/Tek, Inc.

President: Brenda Monene, R.N., M.Ed.
Address: 104 Catbriar Court, Summerville, SC, 29485
Voice: (843) 851-6444
TTY: (843) 851-6444
E-mail: deaftek@deaftek.org
Internet: www.deaftek.org

Description:
International Deaf/Tek, Inc., maintains Deaftek.USA, a Web site that focuses on employment opportunities for deaf individuals and the people who serve them. Organizations, agencies, schools, businesses, and other entities wishing to fill positions may send employment announcements to this site at no charge. Employment opportunities are posted according to category and remain on the site for two months.

Institute for Neurogenic Communication Disorders

Director: Thomas Hixon, Ph.D.
Address: Speech and Hearing Sciences Building, University of Arizona, Tucson, AZ, 85721-0071
Voice: none
Fax: (520) 621-2226
E-mail: sherryj@u.arizona.edu
Internet: cnet.shs.arizona.edu

Description:
Institute for Neurogenic Communication Disorders personnel conduct research related to speech and language disorders caused by disease and injury to the nervous system. The institute sponsors continuing education programs for professionals on topics related to culture, rehabilitation, and the latest developments in the treatment and prevention of neurogenic communication disorders. Some Spanish materials are available.

International Hearing Society (IHS)

Executive Director: Cindy Helms
Public Information Contact: Alice C. Markey, Executive Assistant for Consumer Affairs
Address: 16880 Middlebelt Road, Suite 4, Livonia, MI, 48154
Voice: (734) 522-7200
Toll-free Voice: (800) 521-5247
Fax: (734) 522-0200
E-mail: acmarkey@ihsinfo.org
Internet: www.ihsinfo.org

Description:
The International Hearing Society (IHS) was formed in 1951 as a professional organization of hearing instrument specialists, the professionals who test hearing and select, fit, and dispense hearing instruments. The society conducts programs pertaining to competence qualification, education, and training and promotes specialty-level accreditation. IHS sponsors a national toll-free Hearing Aid Helpline, which provides consumer information and referrals to hearing instrument specialists. Holds annual convention and exhibition; contact IHS for date and location. Consumer fact sheets and brochures are available.

John Tracy Clinic

President: Barbara F. Hecht, Ph.D.
Address: 806 West Adams Boulevard, Los Angeles, CA, 90007
Voice: (213) 748-5481
Toll-free Voice: (800) 522-4582
TTY: (213) 747-2924
Fax: (213) 749-1651
E-mail: bhecht@jtc.org
Internet: www.jtc.org

Description:
The John Tracy Clinic provides free services to parents of children, ages birth to 5 years, with hearing loss. The clinic has more than 60 years of experience in early intervention and the spoken language option. Correspondence courses are available worldwide. Threeweek summer sessions are offered. A master’s and credential program in teacher education is offered both onsite and online. A professional/consumer newsletter and fact sheets, brochures/ pamphlets, and online publications are available. Most materials are available in Spanish.

Job Accommodation Network (JAN)

Associate Director, International Center for Disability Information (ICDI): Deborah Hendricks, Ed.D.
Address: P.O. Box 6080, Morgantown, WV, 26506-6080
Toll-free Voice: (800) 526-7234 or (800) ADA-WORK (232-9675)
Toll-free TTY: (877) 781-9403
Fax: (304) 293-5407
E-mail: jan@jan.wvu.edu
Internet: www.jan.wvu.edu

Description:
The Job Accommodation Network (JAN) is funded by the U.S. Department of Labor’s Office of Disability Employment Policy. JAN is an information and consulting service that provides users with individualized solutions for workplace accommodations. JAN also provides information regarding the Americans with Disabilities Act, the Rehabilitation Act, and other disabilityrelated legislation. In addition, JAN consultants have access to a vast network of resources, organizations, support groups, government agencies, and more that can provide assistance to persons with disabilities. JAN is used primarily by employers, rehabilitation professionals, and individuals with disabilities. All services are free and confidential. Professional/consumer publications are available.

Learning Disabilities Association of America (LDA)

Executive Director: Sheila Buckley
Address: 4156 Library Road, Suite 1, Pittsburgh, PA, 15234-1349
Voice: (412) 341-1515
Toll-free Voice: (888) 300-6710
Fax: (412) 344-0224
E-mail: info@ldaamerica.org
Internet: www.ldaamerica.org

Description:
The Learning Disabilities Association of America (LDA) is a nonprofit organization dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. LDA encourages effective identification and intervention, fosters research, and protects the rights of individuals with learning disabilities under the law. The association is an information and referral service for both parents and professionals. Information packets are available on any type of learning disability. LDA, which has more than 300 local chapters across the country, sponsors an annual conference and offers membership. Professional journals, news briefs, and brochures are available. Some Spanish materials are available.

League for the Hard of Hearing (LHH)

Executive Director: Laurie Hanin, Ph.D.
Director of Public Education: Amy K. Boyle
Address: 50 Broadway, New York, NY, 10004
Voice: (917) 305-7700
TTY: (917) 305-7999
Fax: (917) 305-7888
Internet: www.lhh.org

Description:
The nonprofit League for the Hard of Hearing (LHH) works to improve the quality of life for people with all degrees of hearing loss and to offer comprehensive services regardless of age or mode of communication. Services include hearing assessment, hearing aid fitting and dispensing, speech-language and auditory evaluation and therapy, otology, cochlear implant evaluation and training, career development and job placement, research projects, and a speakers bureau. Holds monthly cochlear implant support group and other meetings. Print and online publications are available.

Media Access Group at WGBH

Director: Larry Goldberg
Public Information Contact: Mary Watkins
Address: 1 Guest Street, Boston, MA, 02134
Voice: (617) 300-3400
TTY: (617) 300-2489
Fax: (617) 300-1035
E-mail: access@wgbh.org
Internet: access.wgbh.org

Description:
The Media Access Group at WGBH consists of the Caption Center,which provides captioning for television, multimedia, and feature films; the Descriptive Video Service, which creates audio descriptions for blind and visually impaired audiences; and the Corporation for Public Broadcasting/WGBH National Center for Accessible Media, which promotes accessibility for classrooms, the Internet, movie theaters, and more through ongoing research and development, outreach, and public policy initiatives. E-mail news updates and professional/consumer fact sheets are available. Some materials are available in Braille.

MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)

President: Susan J. Moreno
Office Manager: Jenni Pause
Address: P.O. Box 524, Crown Point, IN, 46307
Voice: (219) 662-1311
Fax: (219) 662-0638
E-mail: info@maapservices.org
Internet: www.maapservices.org

Description:
MAAP Services for Autism and Asperger Syndrome (MAAP Services)is a nonprofit organization dedicated to providing information and advice to families of more advanced individuals with these and other pervasive developmental disorders. MAAP Services provides information and referrals to parents, caregivers, and professionals who are experiencing this spectrum of challenges as well as helping the individuals themselves. The organization also provides a Web site; printed materials; annual conferences; public presentations; and personal contact via e-mail, phone, and written correspondence. The MAAP Services newsletter is distributed in 56 countries.

Monell Chemical Senses Center

Director/President: Gary K. Beauchamp, Ph.D.
Public Information Contact: Leslie Stein, Ph.D.
Address: 3500 Market Street, Philadelphia, PA, 19104
Voice: (267) 519-4700
Fax: (267) 519-4702
E-mail: mcsc@monell.org
Internet: www.monell.org

Description:
The Monell Chemical Senses Center is the world’s only nonprofit basic research institute devoted to the study of taste, smell, and chemical irritation. Its research focuses on fundamental knowledge about the chemical senses as well as their relationship to significant public health and quality-of-life issues across the lifespan, including obesity, diabetes, hypertension, pediatric health, occupational safety, and environmental pollution. Monell’s Chemosensory Clinical Research Center, funded by the National Institutes of Health and administered in collaboration with Thomas Jefferson Hospital, evaluates individuals with chemosensory disorders. The center has an education and training program for postdoctoral scientists, senior scientists, and graduate students. Monell is a resource for information about the chemical senses for medical professionals, the media, and academics. A newsletter is available.

National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services (OSERS)

Acting Director: Richard Fisher
Address: 550 12th Street, SW, Room 6056, Washington, DC, 20024-6122
Voice: (202) 245-7640
Fax: (202) 245-7630
E-mail: richard.fisher@ed.gov
Internet: www.ed.gov/about/offices/list/osers/nidrr/index.html

Description:
The National Institute on Disability and Rehabilitation Research (NIDRR) is part of the Office of Special Education and Rehabilitative Services (OSERS), U.S. Department of Education. NIDRR supports a comprehensive program of national and international research into all aspects of the rehabilitation of people with disabilities and their successful integration into education, work, and community life. Grants are awarded to institutions of higher education and qualified organizations; the fellowship program provides grants to individuals with advanced rehabilitation credentials. NIDRR administers the Interagency Committee on Disability Research. An online directory of projects and publications is available.

National Organization for Hearing Research Foundation (NOHR)

President: Geraldine Dietz Fox
Public Information Contact: Sarah Schreiner
Address: 225 Haverford Avenue, Suite 1, Narberth, PA, 19072-2234
Voice: (610) 664-3135
TTY: (610) 664-3135
Fax: (610) 668-1428
E-mail: smsnohr@att.net
Internet: www.nohrfoundation.org

Description:
The National Organization for Hearing Research Foundation (NOHR) is a 501(c)(3) public foundation whose primary objective is to fund research into the prevention, causes, treatments, and cures for hearing loss and deafness. NOHR grant proposals target innovative auditory projects and are reviewed by members of NOHR’s Scientific Review Committee. The most important review criteria for research proposals are scientific value and potential to yield significant new insights in the field of auditory science. Regeneration of sensory hair cells of the inner ear is a research funding priority, and examinations by other scientific disciplines are encouraged. Online publications and grant applications are available.

National Board for Certification in Hearing Instrument Sciences (NBC-HIS)

Executive Director: Linda K. Jackson
Executive Assistant: Jennifer Swider
Address: 16880 Middlebelt Road, Suite 3, Livonia, MI, 48154
Voice: (734) 522-2900
Fax: (734) 522-0900
E-mail: info@nbc-his.com
Internet: www.nbc-his.com

Description:
The National Board for Certification in Hearing Instrument Sciences (NBC-HIS) is an independent, nonprofit corporation established to develop and promulgate eligibility standards for certification; to develop, process, administer, and score certification examinations based on research; and to award board certification to successful applicants. A professional directory, fact sheets, and online publications are available.

National Technical Institute for the Deaf (NTID)

Vice President /Dean: T. Alan Hurwitz, Ph.D.
Address: 52 Lomb Memorial Drive, Rochester, NY, 14623-5604
Voice: (585) 475-6400
TTY: (585) 475-6400
Fax: (585) 475-5623
E-mail: ntidmc@rit.edu
Internet: www.rit.edu/NTID

Description:
The National Technical Institute for the Deaf (NTID), a college of the Rochester Institute of Technology (RIT), is the world’s first and largest technological college for students who are deaf or hard-of-hearing. NTID offers associate degrees in more than 30 technological and professional programs as well as bachelor’s or master’s degrees in more than 200 programs offered by RIT’s seven other colleges. NTID also is home to the Center for Hearing and Speech Research, which conducts groundbreaking research in age-related hearing loss. A professional journal, other publications, and computer software/assisted education are available.

National Association of the Deaf (NAD)

Chief Executive Officer: Nancy J. Bloch
Address: 8630 Fenton Street, Suite 820, Silver Spring, MD, 20910-4500
Voice: (301) 587-1788
TTY: (301) 587-1789
Fax: (301) 587-1791
E-mail: www.nad.org/contactus
Internet: www.nad.org

Description:
The National Association of the Deaf (NAD), founded in 1880, is a federation of state associations, organizational and corporate affiliates, and individuals advocating for the civil rights of deaf and hard-of-hearing Americans. NAD’s advocacy work encompasses a broad spectrum of areas such as accessibility, education, employment, health care, mental health, rehabilitation, technology, telecommunications, and transportation. The NAD Web site offers advocacy information and resources related to legal rights and other concerns affecting individuals who are deaf or hard-of-hearing.

National Dissemination Center for Children with Disabilities (NICHCY)

Director: Suzanne Ripley, Ph.D.
Public Information Contact:: Information Specialists
Address: P.O. Box 1492, Washington, DC, 20013-1492
Voice: (202) 884-8200
Toll-free Voice: (800) 695-0285
TTY: (202) 884-8200
Toll-free TTY: (800) 695-0285
Fax: (202) 884-8441
E-mail: nichcy@aed.org
Internet: www.nichcy.org

Description:
The National Dissemination Center for Children with Disabilities (NICHCY) is a national information and referral center that provides information on disabilities and disability-related issues to families, educators, and other professionals. With a special focus on children and young adults ages birth to 22, NICHCY provides personalized responses to specific questions in both English and Spanish. Fact sheets on specific disabilities, state resource sheets, parent guides, bibliographies, research briefs, and information about the Individuals with Disabilities Education Act are available.

National Black Association for Speech-Language and Hearing (NBASLH)

Chairperson: Cathy Runnels
Public Information Contact: Diane Yenerall
Address: 800 Perry Highway, Suite 3, Pittsburgh, PA, 15229
Voice: (412) 366-1177
Fax: (412) 366-8804
E-mail: nbaslh@nbaslh.org
Internet: www.nbaslh.org

Description:
The National Black Association for Speech-Language and Hearing (NBASLH) is a nonprofit organization dedicated to promoting the sharing of information about communication impairments and differences among black people; professional development of speech-language pathologists, audiologists, and students; and advocacy of quality service delivery to the black community. Holds annual convention; contact NBASLH for date and location. A professional journal and newsletter/bulletin are available.

National Institute for Rehabilitation Engineering (NIRE)

Director and Executive Vice President: Donald Selwyn
Address: P.O. Box 1088, Hewitt, NJ, 07421
Voice: (973) 853-6585
Toll-free Voice: (800) 736-2216
Fax: (928) 832-2894
E-mail: nire@warwick.net
E-mail: dons@warwick.net

Description:
The National Institute for Rehabilitation Engineering (NIRE) is a nonprofit 501(c)(3) organization. This organization provides personalized information, counseling, and referrals without cost to people with disabilities. NIRE’s support services are available to people of all ages with hearing, speech, reading and writing, and other communication disabilities. Although medical advice is not given, callers receive information on functional disabilities and assistive technology. Papers published by NIRE are available in the “Library” section of the ABLEDATA Web site (www.abledata.com).

National Aphasia Association (NAA)

Executive Director: Ellayne Ganzfried, M.S., CCC-SLP
Address: 350 7th Avenue, Suite 902, New York, NY, 10001
Voice: (212) 267-2814
Toll-free Voice: (800) 922-4622
Fax: (212) 267-2812
E-mail: naa@aphasia.org
Internet: www.aphasia.org

Description:
The mission of the National Aphasia Association (NAA) is to educate the public about aphasia as a disorder that impairs a person’s ability to communicate without impairing a person’s intellect. NAA provides people with aphasia, their families, support systems, and health care professionals with resources that can help individuals affected by aphasia recover lost skills, compensate for skills that cannot be recovered, and minimize the psychosocial impact of a language impairment. Holds biennial conference; contact NAA for date and location. A professional/consumer newsletter, directory, fact sheets, and other publications are available.

National Rehabilitation Information Center (NARIC)

Project Director: Mark X. Odum
Public Information Contact: Catherine Graves, Library Information Specialist II
Address: 8201 Corporate Drive, Suite 600, Landover, MD, 20785
Voice: (301) 459-5900
Toll-free Voice: (800) 346-2742
TTY: (301) 459-5984
Fax: (301) 459-4263
E-mail: naricinfo@heitechservices.com
Internet: www.naric.com

Description:
The National Rehabilitation Information Center (NARIC) is a library and information center focusing on disability and rehabilitation research. NARIC’s collection contains more than 40,000 documents, both federally funded and commercially produced. NARIC’s information specialists provide quick information and referrals, customized database searching, and document delivery. Internet users can access NARIC’s databases, bulletins, and a live reference chat service at the NARIC Web site. Referral sheets, general information packets, and customized literature searches are available.

National Spasmodic Dysphonia Association, Inc. (NSDA)

Executive Director: Kimberly A. Kuman
Address: 300 Park Boulevard, Suite 415, Itasca, IL, 60143
Voice: (630) 250-4504
Toll-free Voice: (800) 795-NSDA (6732)
Fax: (630) 250-4505
E-mail: NSDA@dysphonia.org
Internet: www.dysphonia.org

Description:
The National Spasmodic Dysphonia Association (NSDA) is a nonprofit 501(c)(3) organization dedicated to advancing medical research into the causes of and treatments for spasmodic dysphonia; promoting physician and public awareness of the disorder through outreach; and sponsoring support activities for people with spasmodic dysphonia and their families through educational materials, annual symposiums, support groups, and online resources. NSDA is the only organization that is dedicated solely to spasmodic dysphonia.

National Temporal Bone, Hearing, and Balance Pathology Resource Registry

Director: Joseph B. Nadol, Jr., M.D.
Public Information Contact: Julie Rose, Registry Coordinator
Address: Massachusetts Eye and Ear Infirmary, 243 Charles Street, Boston, MA, 02114-3096
Voice: (617) 573-3711
Toll-free Voice: (800) 822-1327
Toll-free TTY: (888) 561-3277
Fax: (617) 573-3838
E-mail: tbregistry@meei.harvard.edu
Internet: www.tbregistry.org

Description:
The National Temporal Bone, Hearing, and Balance Pathology Resource Registry, which is sponsored by the National Institute on Deafness and Other Communication Disorders, promotes research into hearing and balance disorders through the study of the temporal bone and related brain structures. The registry maintains a computerized database of all U.S. temporal bone collections, disseminates information on temporal bone donation, enrolls individuals with hearing/balance disorders as temporal bone donors, educates professionals about temporal bone research, and conserves at-risk collections. Free searches of the registry’s database are available to interested otopathologic researchers. A professional/consumer newsletter, brochures/pamphlets, and online publications are available.

Noise Pollution Clearinghouse (NPC)

Executive Director: Les Blomberg
Public Information Contact: Information Specialists
Address: P.O. Box 1137, Montpelier, VT, 05601-1137
Voice: (802) 229-1659
Toll-free Voice: (888) 200-8332
Fax: (802) 223-3266
E-mail: npc@nonoise.org
Internet: www.nonoise.org

Description:
The mission of the Noise Pollution Clearinghouse (NPC) is to create more livable cities and more natural rural and wilderness areas by reducing noise pollution at the source. NPC seeks to raise awareness about noise pollution; creates, collects, and distributes resources on noise pollution; and establishes networks among environmental, professional, medical, governmental, citizen, and activist groups working on noise pollution issues. Consumer fact sheets and newsletters are available.

National Cued Speech Association (NCSA), Deaf Children’s Literacy Project

President: Sarina Roffé
Public Information Contact : Amy Ruberl, Executive Director
Address: 5619 McLean Drive, Bethesda, MD, 20814
Voice: (301) 915-8009
Toll-free Voice: (800) 459-3529
Toll-free TTY: (800) 459-3529
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org

Description:
The National Cued Speech Association (NCSA) and its Deaf Children’s Literacy Project promote the effective use of cued speech for communication, language acquisition (in more than 50 languages), and literacy through the use of cued speech. NCSA provides education, awareness, and support for people with language, hearing, speech, and learning needs through publications, exhibits, family/professional learning vacations, and conferences. NCSA sets standards of cueing and certifies instructors of cued speech. Visit NCSA’s bookstore for books, games, computer software, and more.

National Association of State Directors of Special Education, Inc. (NASDSE)

Executive Director: Bill East, Ed.D.
Address: 1800 Diagonal Road, Suite 320, Alexandria, VA, 22314
Voice: (703) 519-3800
TTY: (703) 519-7008
Fax: (703) 519-3808
E-mail: nasdse@nasdse.org
Internet: www.nasdse.org

Description:
The National Association of State Directors of Special Education, Inc., (NASDSE) is a nonprofit organization established to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE provides services to state agencies to facilitate their efforts to maximize educational outcomes for individuals with disabilities. Holds annual meeting; contact NASDSE for date and location. Miscellaneous reports are released throughout the year, with most available online.

NISH

President/CEO: E. Robert Chamberlin
Public Information Contact: Barbara Van Allen, Vice President of Communications, Public Policy, and Training
Address: 8401 Old Courthouse Road, Vienna, VA, 22182
Voice: (571) 226-4660
TTY: (703) 560-6512
Fax: (703) 849-8916
Internet: www.nish.org

Description:
NISH is a national nonprofit organization established in 1974 under the Javits-Wagner-O’Day (JWOD) Act. Its mission is to create employment opportunities for individuals with severe disabilities by securing federal contracts. A network of more than 600 nonprofit agencies affiliated with the AbilityOne program (formerly the JWOD program) employ people with blindness or severe disabilities who deliver quality services and products to federal customers nationwide. NISH provides nonprofit agencies and federal partners with the tools they need to manage contracts successfully.

Neurofibromatosis, Inc. (NF, Inc.)

President: Miguel Lessing
NF-2 Consultant: Marie Drew
Address: P.O. Box 18246, Minneapolis, MN, 55418
Voice: (301) 918-4600
Toll-free Voice: (800) 942-6825
E-mail: nfinfo@nfinc.org
Internet: www.nfinc.org

Description:
Neurofibromatosis, Inc., (NF, Inc.) is a national nonprofit organization dedicated to all people affected by neurofibromatosis and other related disorders. NF, Inc., distributes materials on neurofibromatosis type 1 (NF-1) and type 2 (NF-2); promotes national, state, and local community involvement; supports research; has a governing board with NF-2 representation; and provides real-time captioning at meetings. A toll-free helpline and Web site provide access to peer counseling and information 24 hours a day. A professional directory and professional/consumer publications are available.

National Hearing Conservation Association (NHCA)

President: Theresa Schulz
Public Information Contact: Karen Wojdyla, Executive Director
Address: 7995 East Prentice Avenue, Suite 100, Greenwood Village, CO, 80111
Voice: (303) 224-9022
Fax: (303) 770-1614
E-mail: nhca@gwami.com
Internet: www.hearingconservation.org

Description:
The National Hearing Conservation Association (NHCA), an association of hearing conservation professionals, is dedicated to preventing hearing loss caused by noise and other environmental factors in all sectors of society. NHCA promotes professional development by improving its members’ skills and practices, providing education and encouraging research, stimulating information exchange and distribution, promoting development of improved and more effective occupational hearing conservation programs, and participating in standards and regulatory activities. Holds annual conference; contact NHCA for date and location.

National Service Dog Center (NSDC)

President/CEO: Lawrence L. Norvell
Address: 875 124th Avenue, NE, #101 Bellevue, Bellevue, WA, 98055
Voice: (425) 679-5500
Fax: (425) 679-5539
E-mail: info@deltasociety.org
Internet: www.deltasociety.org

Description:
The National Service Dog Center (NSDC), a department of the Delta Society, provides information through its Web site about the selection, training, stewardship, and roles of service dogs; referral to service-dog training programs and related resources; education for businesses, health care professionals, and the general public on service-dog issues; and self-advocacy on behalf of people with service dogs.

National Stuttering Association (NSA)

Public Information Contact: Tammy Flores
Address: 119 West 40th Street, 14th Floor, New York, NY, 10018
Voice: (212) 944-4050
Toll-free Voice: (800) 937-8888
Fax: (212) 944-8244
E-mail: info@westutter.org
Internet: www.westutter.org

Description:
The National Stuttering Association (NSA) is a national network of support groups created to meet the needs of children and adults who stutter. NSA offers information and support, provides referrals to specialists, serves as an advocate for the stuttering community, and raises the consciousness of the general public about the disorder. Holds annual convention; contact NSA for date and location. Professional and consumer fact sheets, brochures/pamphlets, and books are available.

National Center on Deafness (NCOD)

Director: Roslyn Rosen
Address: 18111 Nordhoff Street, California State University, Northridge, CA, 91330-8267
Voice: (818) 677-2611
TTY: (818) 677-2611
Fax: (818) 677-4899
E-mail: ncod@csun.edu
Internet: ncod.csun.edu

Description:
The National Center on Deafness (NCOD) is housed in Jeanne M. Chisholm Hall on the campus of California State University, Northridge. Established in 1962, NCOD was the first postsecondary program in the nation to provide paid sign language interpreters for deaf students. The program has grown to be the largest of its type in the western United States, serving approximately 250 students who are deaf or hard-of-hearing each year. Access options for print communications are available. NCOD also provides outreach and training through several federal grants.

National Institute for Occupational Safety and Health (NIOSH)

Director: John Howard, M.D.
Public Affairs Director: Fred Blosser
Address: 395 E Street, SW, Suite 9200, Patriots Plaza Bldg. , Washington, DC, 20201
Toll-free Voice: (800) 232-4636
Fax: (202) 245-0664
E-mail: MRL1@cdc.gov
Internet: www.cdc.gov/niosh/

Description:
Noise-induced hearing loss (NIHL) is one of the most common workplace diseases and the second most self-reported occupational illness or injury. Industries with high numbers of exposed workers include agriculture, mining, construction, manufacturing and utilities, transportation, and the military. The National Institute for Occupational Safety and Health (NIOSH) conducts a vigorous research and prevention program to assist employers and workers in protecting workers’ hearing. Together with the National Institute on Deafness and Other Communication Disorders, NIOSH sponsors WISE EARS!®, a national public education campaign to prevent NIHL. Professional and consumer newsletters, brochures, and other resources are available in print and online.

National Captioning Institute (NCI)

President /CEO of NCI Operations: Gene Chao
Public Information Contact: Juan Mario Agedulo, National Director of Sales and Marketing
Address: 1900 Gallows Road, Suite 3000, Vienna, VA, 22182
Voice: (703) 917-7600
TTY: (703) 917-7600
Fax: (703) 917-9878
E-mail: mail@ncicap.org
Internet: www.ncicap.org

Description:
The National Captioning Institute (NCI) is a nonprofit organization that provides closed-captioning service to television networks, program producers, cable-casters, producers of home entertainment videos, advertisers, and other organizations in the federal and private sectors.

National Center for Learning Disabilities (NCLD)

Executive Director: James H. Wendorf
Public Information Contact: Teneille Craig
Address: 381 Park Avenue South, Suite 1401, New York, NY, 10016
Voice: (212) 545-7510
Toll-free Voice: (888) 575-7373
Fax: (212) 545-9665
E-mail: help@ncld.org
Internet: www.ld.org / www.GetReadytoRead.org

Description:
The National Center for Learning Disabilities (NCLD) is a national nonprofit organization dedicated to improving the lives of those affected by learning disabilities (LD). Services include information, resources, public outreach and communications, and legislative advocacy and public policy. NCLD’s Web site contains information and resources for parents, educators, individuals with LD, and others as well as a free e-newsletter. Get Ready to Read!, a program of NCLD, is a national campaign to build the early literacy skills of all preschool children.

National AMBUCS, Inc.

Executive Director: Joseph Copeland
Address: P.O. Box 5127, High Point, NC, 27262
Voice: (336) 852-0052
Fax: (336) 852-6830
E-mail: ambucs@ambucs.org
Internet: www.ambucs.org

Description:
The mission of National AMBUCS, Inc., is to create mobility and independence for people with disabilities, including communication disorders. The organization provides scholarships to therapy students and therapeutic tricycles, called AmTrykes, to children with disabilities. Informational brochures are available.

National Institute on Deafness and Other Communication Disorders (NIDCD)

Director: James F. Battey, Jr., M.D., Ph.D.
Public Information Contact: Patricia Blessing, Chief, Office of Health Communication and Public Liaison
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
Voice: (301) 496-7243
Toll-free Voice: (800) 241-1044
Toll-free TTY: (800) 241-1055
Fax: (301) 402-0018
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

Description:
The National Institute on Deafness and Other Communication Disorders (NIDCD), one of the National Institutes of Health, supports and conducts research and research training on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. NIDCD develops health information based on scientific discovery and disseminates it to health professionals, patients, educators, industry, and the general public. Since 1999, NIDCD has overseen WISE EARS!®, a national public education campaign to prevent noise-induced hearing loss. Currently, NIDCD is expanding its campaign efforts to reach youth ages eight to 12. NIDCD provides a toll-free telephone service through its information clearinghouse. Fact sheets, brochures, teaching curricula, and reports are available, with many in Spanish.

National Organization for Rare Disorders (NORD)

President: Abbey Meyers
Public Information Contact: Mary Dunkle, Vice President for Communications
Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org

Description:
The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication assistance programs for certain rare-disease drugs as well as research grants and fellowships.

National Center for Voice and Speech (NCVS)

Director: Ingo Titze, Ph.D.
Public Information Contact: Suzanne Collins
Address: The Denver Center for the Performing Arts, 1101 13th Street, Denver, CO, 80204-5319
Voice: (303) 446-4834
Voice: (303) 893-6080
Fax: (303) 893-6487
E-mail: NCVSWebmaster@dcpa.org
E-mail: kmontgomery@dcpa.org
Internet: www.ncvs.org

Description:
The National Center for Voice and Speech (NCVS) is an interdisciplinary team of investigators and health care professionals dedicated to vocology, which deals with the powers, limitations, and enhancement of voice and speech. A primary outreach of NCVS is the Summer Vocology Institute, which provides background in vocology and related topics as well as real-world experience in applying those concepts in laboratory, performance, and health services settings. NCVS is headquartered as a division of the Denver Center for the Performing Arts and is the only facility of its kind to be associated with a performing arts center. NCVS also performs research at the University of Iowa Department of Speech Pathology and Audiology. Professional/consumer publications are available, with some materials in Spanish and French.

National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention (CDC)

Director: Edward J. Sondik, Ph.D.
Address: 3311 Toledo Road, Hyattsville, MD, 20782
Voice: (301) 458-4000
Toll-free Voice: (866) 441-NCHS (6247)
Fax: (301) 458-4027
E-mail: nchsquery@cdc.gov
Internet: www.cdc.gov/nchs

Description:
The National Center for Health Statistics (NCHS), part of the Centers for Disease Control and Prevention (CDC), compiles statistical information to help guide policies to improve the health of the American people. Holds a biennial data user conference; consult the NCHS Web site for date and location. NCHS disseminates data and statistics online and in print.

National Family Association for Deaf-Blind (NFADB)

President: Linda Syler
Public Information Contact: Lori Bookstaver
Address: 141 Middle Neck Road, Sands Point, NY, 11050
Toll-free Voice: (800) 255-0411
Toll-free TTY: (800) 255-0411
Fax: (516) 767-1738
E-mail: nfadb@aol.com
E-mail: mfnfadb@aol.com
Internet: www.NFADB.org

Description:
The National Family Association for Deaf-Blind (NFADB) is founded on the belief that people who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other people. NFADB supports national policy to benefit people who are deaf-blind, encourages the founding and strengthening of family organizations in each state, shares information related to deaf-blindness, provides resources and referrals, and assists in the development of materials that benefit family members.

Office of Special Education Programs (OSEP), Office of Special Education and Rehabilitative Services (OSERS)

Acting Deputy/Assistant Secretary: William W. Knudsen
Address: 550 12th Street, SW, Room 4109, Washington, DC, 20202-2600
Voice: (202) 245-7426
Fax: (202) 245-7616
Internet: www.ed.gov/about/offices/list/osers/osep/index.html

Description:
The Office of Special Education Programs (OSEP), an office within the U.S. Department of Education, is dedicated to improving results for infants, toddlers, children, and youth with disabilities from birth through age 21 and to providing leadership and financial support to assist states and local districts. OSEP awards formula grants to states as well as discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. Professional and consumer publications are available.

Office of Disability Employment Policy (ODEP)

Acting Assistant Secretary: Karen Czarnecki
Public Information Contact: Charles Conaty, Supervisor of Education and Outreach
Address: U.S. Department of Labor, Suite S1303, 200 Constitution Avenue, NW, Washington, DC, 20210
Voice: (202) 693-7880
TTY: (202) 693-7881
Fax: (202) 693-7888
E-mail: infoodep@dol.gov
Internet: www.dol.gov/odep

Description:
The Department of Labor’s Office of Disability Employment Policy (ODEP) provides national leadership by developing and influencing disability and related employment policy as well as practices that affect the employment of people with disabilities.

Occupational Safety and Health Administration (OSHA)

Director: Kevin Ropp
Public Information Contact: Camilla McArthur, Chief, Communications Production
Address: 200 Constitution Avenue, NW, Room N-3647, Washington, DC, 20210
Voice: (202) 693-1999
Toll-free Voice: (800) 321-OSHA (6742)
Toll-free TTY: (877) 889-5627
Fax: (202) 693-1635
Internet: www.osha.gov

Description:
The Occupational Safety and Health Administration (OSHA), a division of the U.S. Department of Labor, is the lead federal organization devoted to protecting the safety and health of America’s workers. OSHA produces and enforces protective standards for occupational safety and health and also provides employers and employees with technical and consultative assistance. OSHA also works with employers through various programs and partnerships to help them develop effective safety and health systems to reduce injuries and illnesses in the workplace. Assistance products and tools are available. Additional resources are available through the OSHA Publications Office.

Postsecondary Education Programs Network (PEPNet) Address: , , --Select Other--,
E-mail: pepnet@pepnet.org
Internet: www.pepnet.org

Description:
The PEPNet Regional Centers are currently in their third funding cycle (October 1, 2006 - September 30, 2011), and the OSERS Office of Special Education Programs called for the PEPNet regional centers to cooperatively create a shared identity and develop best practices for ensuring that services are available virtually anywhere within the United States and its territories. OSERS also expanded the group of stakeholders to which PEPNet provides resources to include secondary education staff, students, and parents. These stakeholders are in addition to the stakeholders previously served, which included postsecondary institutions, vocational rehabilitation, and community agency personnel. PEPNet now provides services that support a deaf or hard of hearing student's transition from high school to advanced educational programs, colleges and universities, and other training programs. PEPNet's regional centers have changed their names to emphasize the shared identity within PEPNet and the ongoing collaboration and coordination of activities and services. The four regional centers are: PEPNet-Midwest at Saint Paul College; PEPNet-Northeast at Rochester Institute of Technology; PEPNet-South at the University of Tennessee, Knoxville; PEPNet-West at California State University, Northridge.

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

Executive Director: Tom Gorski
Public Information Contact: Emily Gegg, Director of Operations
Address: 1700 North Moore Street, Suite 1540, Arlington, VA, 22209-1903
Voice: (703) 524-6686
TTY: (703) 524-6639
Fax: (703) 524-6630
E-mail: info@resna.org
Internet: www.resna.org

Description:
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) is an interdisciplinary association for the advancement of rehabilitation and assistive technologies. Members range from rehabilitation professionals to providers and consumers. RESNA is dedicated to promoting the exchange of ideas and information for the advancement of assistive technology. Holds annual meeting; contact RESNA for date and location. RESNA also administers a federal grant that provides technical assistance and information to the 50 states and U.S. territories. Professional books and audiovisuals are available. Materials in alternative formats are available upon request.

Rocky Mountain Taste and Smell Center

Director: Thomas E. Finger, Ph.D.
Public Information Contact: Miriam Linschoten, Ph.D.
Address: Box B205, University of Colorado Health Sciences Center, 4200 East Ninth Avenue, Denver, CO, 80262
Voice: (303) 315-6600
Fax: (303) 315-8787
E-mail: miriam.linschoten@uchsc.edu
Internet: www.uchsc.edu/rmtsc/

Description:
The Rocky Mountain Taste and Smell Center (RMTSC) brings together multidisciplinary investigators to examine the fundamental cellular processes that underlie the chemical senses, including their dysfunctions and clinical implications. The program includes collaborative, multifaceted studies on the neurobiology of the senses of taste and smell in humans and other vertebrates, with a focus on elucidating basic biological and clinical problems related to chemical senses. The center receives support from the National Institute on Deafness and Other Communication Disorders.

Registry of Interpreters for the Deaf, Inc. (RID)

President: Cheryl Moose
Director of Communications: Tina Schultz
Address: 333 Commerce Street, Alexandria, VA, 22314
Voice: (703) 838-0030
TTY: (703) 838-0459
Fax: (703) 838-0454
E-mail: publications@rid.org
Internet: www.rid.org

Description:
The mission of the Registry of Interpreters for the Deaf, Inc., (RID) is to provide international, national, regional, state, and local forums with an organizational structure for the continued growth and development of the profession of interpretation and transliteration of American Sign Language and English. Holds biennial conference; contact RID for date and location. Professional journal, newsletter, directory, fact sheets, brochures, and books are available.

Recurrent Respiratory Papillomatosis Foundation (RRPF)

Director: Bill Stern
Address: P.O. Box 6643, Lawrenceville, NJ, 08648-0643
Voice: (609) 530-1443
Fax: (866) 498-7559
E-mail: rrpf@rrpf.org
Internet: www.rrpf.org

Description:
The Recurrent Respiratory Papillomatosis Foundation (RRPF) was created to provide family support; promote public awareness; and aid in the prevention, cure, and treatment of recurrent respiratory papillomatosis (RRP), a rare disease that affects the voice. The most common symptoms of RRP are a hoarse or strained voice, dysphonia (i.e., difficulty in speaking), or aphonia (i.e., loss of voice). The organization focuses primarily on networking within the RRP community, including patients, families, medical practitioners, and researchers. Its goal is to stimulate more RRP-related research that may lead to more effective treatments and, ultimately, a cure for this disease. Professional/consumer brochures/pamphlets are available.

Society of Otorhinolaryngology and Head-Neck Nurses, Inc. (SOHN)

Executive Director: Sandra Schwartz, M.S., R.N., CORLN
Address: 202 Julia Street, New Smyrna Beach, FL, 32168
Voice: (386) 428-1695
Fax: (386) 423-7566
E-mail: sohnnet@aol.com
Internet: www.sohnnurse.com

Description:
The Society of Otorhinolaryngology and Head-Neck Nurses, Inc., (SOHN), an organization of professional registered nurses, promotes continuing education opportunities within the field of otorhinolaryngology nursing and endorses professional standards for clinical practice and research. Holds annual congress and symposium; contact SOHN for date and location. A professional newsletter and journal are available.

Society for Ear, Nose, and Throat Advances in Children (SENTAC)

President: Seth Pransky, M.D.
Address: Children's Hospital of San Diego, 3030 Children's Way, San Diego, CA, 92123
Voice: (760) 942-9965
Fax: (760) 942-7305
E-mail: spransky@chsd.org
Internet: www.sentac.org

Description:
The Society of Ear, Nose, and Throat Advances in Children (SENTAC) is an interdisciplinary society of health professionals who share an interest in ear, nose, and throat diseases in children, including communication disorders. Its membership includes physicians, nurses, speech therapists, audiologists, and social workers. The annual meeting provides a forum for the presentation and exchange of ideas and information; contact SENTAC for date and location. A professional newsletter, directory, and brochures are available.

Sertoma International

Executive Director: Stephen Murphy
Address: 1912 East Meyer Blvd., Kansas City, MO, 64132-1174
Voice: (816) 333-8300
Toll-free Voice: (800) 593-5646
TTY: (816) 333-8300
Fax: (816) 333-4320
E-mail: infosertoma@sertomahq.org
Internet: www.sertoma.org

Description:
Sertoma International (SERvice TO MAnkind) is a volunteer service organization of 18,000 members in 650 clubs across North America. Its primary focus is communication disorders, but its clubs also sponsor projects focusing on national heritage, youth, and other community needs. Sertoma offers scholarships for graduate study in audiology and speech pathology and for undergraduate students with hearing loss who are pursuing degrees in any field. Holds annual convention; contact Sertoma for date and location. Professional online publications are available.

Stuttering Foundation of America (SFA)

President: Jane Fraser
Public Information Contact: Joan Warner, Coordinator
Address: 3100 Walnut Grove Road, Suite 603, Memphis, TN, 38111
Voice: (901) 452-7343
Toll-free Voice: (800) 992-9392
Fax: (901) 452-3931
E-mail: info@stutteringhelp.org
Internet: www.stutteringhelp.org / www.tartamudez.org

Description:
The Stuttering Foundation of America (SFA) provides resources, services, and support to individuals who stutter, their families, and professionals who serve them. SFA offers comprehensive, up-to-date information on stuttering in the form of DVDs, books, brochures, workshops, and conferences. In addition, SFA supports research into the causes of stuttering. SFA’s worldwide referral list provides names of speech-language pathologists who specialize in stuttering treatment. SFA also sponsors the annual National Stuttering Awareness Week during the second week of May. Some materials are online and may be available in Spanish, French, and Italian. SFA also provides information through its Spanish-language Web site, www.tartamudez.org.

The Triological Society (formerly the American Laryngological, Rhinological, and Otological Society)

Executive Secretary: Patrick E. Brookhouser, M.D.
Administrator: Gail Binderup
Address: 555 North 30th Street, Omaha, NE, 68131
Voice: (402) 346-5500
Fax: (402) 346-5300
E-mail: info@triological.org
Internet: www.triological.org

Description:
The Triological Society is an international society of otolaryngologists and head and neck surgeons. The society provides continuing education opportunities for its members through its meetings. Holds an annual meeting as well as four section meetings each year; contact the society for dates and locations.

TASH

Executive Director: Barb Trader
Public Information Contact: Tabitha Johnson-Graham, Membership Coordinator
Address: 1025 Vermont Avenue, 7th Floor, Washington, DC, 20005
Voice: (202) 263-5600
Fax: (202) 637-0138
E-mail: info@tash.org
Internet: www.tash.org

Description:
TASH is an international membership association of people with disabilities, their family members, other advocates, and professionals who work in the disability field. The association promotes the full participation of people with disabilities in integrated community settings that support the same quality of life available to people without disabilities. Sponsors an annual conference and topical workshops. TASH provides information and referral resources, renders targeted advocacy, and produces a magazine and quarterly journal.

Testing, Evaluation, and Certification Unit, Inc. (TECUnit )

President: Shellie Burrow
Public Information Contact: Tarina Cornia, Office Manager
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
Toll-free Voice: (800) 523-0964
Fax: (435) 654-0319
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org

Description:
The Testing, Evaluation, and Certification Unit, Inc., (TECUnit) is the national certifying body for transliterators who work primarily between spoken and cued English. TECUnit administers the Cued Language Transliterator National Certification Examination and also has developed an assessment tool for use by state agencies. TECUnit also administers standardized tests designed to assess expressive and receptive cueing proficiency. Ultimately, TECUnit is responsible for establishing, maintaining, and promulgating national standards for the profession of cued language transliteration. Professional fact sheets and online publications are available.

Telecommunications for the Deaf and Hard of Hearing, Inc. (TDI)

Executive Director: Claude L. Stout
Public Information Contact: James House
Address: 8630 Fenton Street, Suite 604, Silver Spring, MD, 20910-3803
Voice: (301) 589-3786
TTY: (301) 589-3006
Fax: (301) 589-3797
E-mail: info@tdi-online.org
Internet: www.tdi-online.org

Description:
The mission of Telecommunications for the Deaf and Hard of Hearing, Inc., (TDI) is to promote equal access to telecommunications, media, and information technology for people who are deaf, late-deafened, hard-of-hearing, or deaf-blind. TDI accomplishes its mission through consumer advocacy, public education, and policymaking strategies with Congress, the Federal Communications Commission, and other government agencies. Holds biennial conference; contact TDI for date and location. Professional/consumer fact sheets, brochures, and books are available.

United States Society for Augmentative and Alternative Communication (USSAAC)

President: Patricia Ourand, M.S., CCC-SLP
Public Information Contact: Barbara Figueiredo, USSAAC Office Manager
Address: P.O. Box 10906, Baltimore, MD, 21214
Voice: (877) 887-2222
Fax: (410) 296-5710
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org

Description:
The purposes of the United States Society for Augmentative and Alternative Communication (USSAAC) are to enhance the communication effectiveness of people who can benefit from augmentative and alternative communication and to support the goals of the International Society for Augmentative and Alternative Communication. USSAAC supports individuals in their right to communicate and participate fully in society; promotes public awareness; influences national and state public policy and legislation; disseminates legislative, regulatory, and funding information; facilitates high-quality service delivery; and promotes transdisciplinary professional education. Sponsors a bienniel conference; visit the USSAAC Web site for date and location.

University of Pennsylvania Smell and Taste Center

Director: Richard L. Doty, Ph.D.
Public Information Contact: Tiffany Bellamy
Address: 3400 Spruce Street, Ravdin Bldg., 5th Floor, Philadelphia, PA, 19104
Voice: (215) 662-6580
Fax: (215) 349-5266
Internet: www.med.upenn.edu/stc

Description:
The University of Pennsylvania Smell and Taste Center has three primary goals: to provide clinical evaluation, treatment, and counseling for patients experiencing smell and taste disorders; to provide facilities and intellectual focus for research in basic and applied aspects of chemosensation; and to provide training for students, doctoral-level scientists, and other professionals interested in chemoreception sciences. Professional/consumer brochures are available.

UConn Taste and Smell Clinic

Program Director: Norman Mann, Ph.D.
Address: University of Connecticut Health Center, Taste and Smell Clinic, 263 Farmington Avenue, MC 1718, Farmington, CT, 06030-1718
Voice: (860) 679-2459
Fax: (860) 679-4760
E-mail: tasteandsmell@neuron.uchc.edu
Internet: www.uchc.edu/uconntasteandsmell/

Description:
The UConn Taste and Smell Clinic is run by a multidisciplinary team of clinicians dedicated to developing ways to evaluate and treat patients with chemosensory disorders. Data from the evaluation enable the clinic to maintain an extensive research database on chemosensory problems. The UConn Taste and Smell Clinic was established with funding from the National Institute on Deafness and Other Communication Disorders. Professional/consumer print and online publications are available.

Council of American Instructors of the Deaf (CAID)

President: Kathy Obenhaus
Address: P.O. Box 377, Bedford, TX, 76095-0377
Voice: (817) 354-8414
TTY: (817) 354-8414
E-mail: caid@swbell.net
Internet: www.caid.org / www.caidconference.org

Description:
The mission of the Council of American Instructors of the Deaf (CAID) is to establish and bring together state and regional organizations of teachers of students who are deaf and hard-ofhearing as well as support personnel for the purpose of promoting quality education. Holds regional meetings and biennial conventions; contact CAID for dates and locations. A professional journal and newsletter and online publications are available.

Vestibular Disorders Association (VEDA)

Executive Director: Lisa Haven, Ph.D.
Address: P.O. Box 13305, Portland, OR, 97213-0305
Voice: (503) 229-7705
Toll-free Voice: (800) 837-8428
Fax: (503) 229-8064
E-mail: info@vestibular.org
Internet: www.vestibular.org

Description:
The Vestibular Disorders Association (VEDA) is a nonprofit organization that provides information, support, and advocacy to people with vestibular disorders and the health professionals who treat them. Such disorders include labyrinthitis, benign paroxysmal positional vertigo, Ménière’s disease, ototoxicity, and perilymph fistula. Frequently reported symptoms of these disorders are dizziness, unsteadiness or imbalance, vertigo, nausea, hearing loss, and tinnitus. A newsletter, lists of specialists, explanatory publications, books, and DVDs/videos are available, with some in Spanish.

Voice Academy

Project Director: Julie Ostrem, M.B.A.
Public Information Contact: Thea Carruth, M.P.H., Health Education Consultant
Address: University of Iowa, Speech Pathology & Audiology, Iowa City, IA, 52242
Voice: (319) 335-6600
Fax: (319) 335-6603
E-mail: julie-ostrem@uiowa.edu
Internet: www.voiceacademy.org

Description:
The Voice Academy is a self-paced, no-cost Web site created to help school teachers prevent and self-manage voice disorders, which, unfortunately, are common in the profession. This Web site features a virtual school where teachers explore topics such as voice production basics, safe classroom acoustics, amplification system use, and the healthy body/healthy voice connection. The Web site also features an auxiliary curriculum for school-based speech/language pathologists or other advocates to present a 50-minute healthy voice seminar to their teacher colleagues.

Virginia Merrill Bloedel Hearing Research Center (VMBHRC)

Director: Jay Rubinstein, M.D., Ph.D.
Address: University of Washington, Box 357923, Seattle, WA, 98195-7923
Voice: (206) 685-2962
Fax: (206) 616-1828
E-mail: bloedel@u.washington.edu
Internet: depts.washington.edu/hearing

Description:
The Virginia Merrill Bloedel Hearing Research Center (VMBHRC) at the University of Washington is dedicated to interdisciplinary research on hearing, hearing loss, and related communication disorders. The center serves researchers and the general public by offering educational conferences and lectures and by providing speakers for various organizations and support groups.

The Voice Foundation

Chairman: Robert T. Sataloff, M.D., D.M.A.
Public Information Contact: Katherine Darius, Executive Director
Address: 1721 Pine Street, Philadelphia, PA, 19103
Voice: (215) 735-7999
Fax: (215) 735-9293
E-mail: office@voicefoundation.org
Internet: www.voicefoundation.org

Description:
The Voice Foundation is the world’s oldest and leading organization dedicated to voice medicine, science, and education. This nonprofit organization is committed to funding research; sponsoring an annual, international symposium; publishing professional and scientific publications and audiovisual materials; and disseminating knowledge internationally. Holds annual symposium (Care of the Professional Voice) in Philadelphia, PA, usually the first week of June; contact the Voice Foundation for date and location.

World Federation of the Deaf (WFD)

President: Markku Jokinen
Address: P.O. Box 65, FIN-00401, Helsinki, Finland,
Voice: +358-9-580-3573
TTY: +358-9-580-3573
Fax: +358-9-580-3572
E-mail: info@wfdeaf.org
Internet: www.wfdeaf.org

Description:
The World Federation of the Deaf (WFD) is dedicated to promoting the human and social rights of people who are deaf. WFD advocates for their full participation in society by equalizing opportunities, strengthening the status of sign language, advancing educational opportunities for people who are deaf and promoting their access to information, and stimulating the efforts of national associations of the deaf to improve the overall situation of deaf communities in every country. For information about conferences, camps, and meetings, contact WFD. Informational materials are available.

Have a Question? Talk to a health specialist toll-free
Voice:	(800) 241-1044
TTY:	(800) 241-1055