Directory of Organizations
National Organization for Rare Disorders (NORD)
President: Abbey Meyers
Public Information Contact: Mary Dunkle, Vice President for Communications
Address: P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT, 06813-1968
Voice: (203) 744-0100
Toll-free Voice: (800) 999-6673
TTY: (203) 797-9590
Fax: (203) 798-2291
E-mail: orphan@rarediseases.org
Internet: www.rarediseases.org
Description:
The National Organization for Rare Disorders (NORD) is a
nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans. Cumulatively, there are more than 6,000 rare diseases affecting more than 25 million Americans. NORD is committed to the identification, treatment, and cure of rare diseases through education, advocacy, research, and service programs. NORD administers medication
assistance programs for certain rare-disease drugs as well as research grants and fellowships.
Top
|
|
