Newborn Screening: A Test That Can Save Your Baby’s Life
Currently over 4 million babies are born every year in the United States. Even though every newborn born in the United States receives a newborn screening test, how many diseases are screened for is determined by the state a child is born in. Thus, where a child is born can determine whether or not an affected child lives a healthy, normal life. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment shortly after birth. More
The Baio Family Advocates for Comprehensive Newborn Screening
Actor Scott Baio (Charles in Charge, Happy Days) and his wife Renee may be more high profile that most couples. But they share an experience common to many first time parents when their child Bailey was born and screened positive for a life threatening metabolic disorder detectable through newborn screening. Naturally, they were scared and didn't know where to turn. Further tests showed that their newborn was healthy but other parents may not be so lucky. Baio and his wife will be talking about their experience at a press conference, in conjunction with the Save Babies Through Screening Foundation, Friday September 5, 2008, 11:00 AM at UCLA's Mattel Children¹s Hospital located at 757 Westwood Plaza in Los Angeles, California. www.baileybaioangelfoundation.com
View the new Public Services Announcement.
September is National Newborn Screening Awareness Month
During September, across the United States, Canada and the United Kingdom, Foundation advocates make a special effort to reach out to expectant families to let them know what newborn screening (NBS) is, and what they can do to ensure that their newborn is screened comprehensively and successfully. Awareness and knowledge is key to helping affected children live a normal, healthy life, which they may not have otherwise. 1 in 750 babies is born with a condition detectable through the newborn screening test. Doctors say catching the problem in time can make all the difference. More about: Mission
The Save Babies Through Screening Foundation is the only national non-profit organization devoted exclusively to the advocacy of newborn screening.
The mission of the Save Babies Through Screening Foundation is to improve the lives of children by working to prevent death and disabilities resulting from disorders detectable through newborn screening tests. The Foundation is a leader in the national grassroots advocacy movement, media awareness and actively participates on local, state and federal levels to improve newborn screening. The Foundation’s goal is to see that every child born is screened successfully, effectively and comprehensively. More about: Mission
A Family Story
Our son Seth was born on November 26, 2002, healthy, beautiful and responsive. We would never suspect anything to be wrong with him until we got the call from the Metabolic Genetic Clinic when he was five weeks old... More about: Family Story
Save Babies Through Screening Foundation, Inc.
P. O. Box 5037 • Douglasville, GA 30154
Toll Free: 1-888-454-3383 • Fax: (770) 726-4635