|
National Patient |
Below is a list of resources compiled to help patients and family members navigate through the health system. NPSF is committed to helping to engage patients and families in their care.Agency for Healthcare Research and Quality AHRQ is a free of charge, public national database which receives its data from the state government licensing board. The specific options available on the website include: -Clinical information, such as effective health care, preventive services, and clinical practice guidelines -Funding opportunities -Research findings -Specific population information -Public health preparedness -Consumer and patient information -Data and surveys -Quality and Patient Safety
American Academy of Orthopaedic Surgeons (AAOS) In the patient section of the American Academy of Orthopaedic Surgeons, you will find information mainly concerning orthopaedics, which is the study of problems and solutions involving the skeletal system, muscles, joints, and ligaments. Options include: -Arthritis -Joint Replacement -Osteoporosis -Patient-Centered Care -Patient Stories -Tumors -Women’s Health
American Association for Justice: See Association of Trial Lawyers of America
American Health Information Management Association AHIMA, which stands for American Health Information Management Association, is an association of HIM (Health Information Management) and is composed of 50,000 members whose main concern is to provide the public with the best healthcare possible. AHIMA was started in 1928 to ensure better quality of medical records, and is still devoted to assisting the public.
American Hospital Association Founded in 1898, AHA, or American Hospital Association, represents many of the countrys’ hospitals, healthcare networks, and the patient and family responsibilities that accompany them. It is comprised of nearly 5,000 hospitals, networks, and healthcare providers, and also includes 37,000 individual members. The American Hospital Association works to meet members’ needs and opinions through representation and advocacy activities.
American Medical Association The American Medical Association (AMA) strives to help physicians with professional resources, an agenda, and a newsroom; however, there is a patient section of the site that includes a helpful Doctor Finder which has information on about 690,000 physicians in the United States. The Doctor Finder section has Frequently Asked Questions, Search Hints, and Member Benefits and Services.
Association of Trial Lawyers of America The Association of Trial Lawyers of America (ATLA), also known as American Association for Justice, is the world’s largest trial bar and focuses on ensuring rights and justice for victims. It provides information on the civil justice system and the right to trial by jury.
Bridge Medical Bridge Medical offers information on medications, data analysis, specimen ID, and services. Mederrors.com is a link to Bridge Medical, and focuses mainly on medication errors and adverse drug events. It offers: -an interactive course called Anatomy of an Error -an extensive library of article summaries -specialized features -resources -a list of events -Frequently Asked Questions
Center for Medical Consumers The Center for Medical Consumers focuses on both national and statewide attempts at better healthcare. It is a non-profit advocacy organization that receives its funds from private donators and subscriptions from newsletters. It is also supported by the Judson Memorial Church. The website contains many helpful articles concerning patient safety.
Centers for Disease Control and Prevention The Centers for Disease Control and Prevention is part of the Department of Health and Human Services, which is the main organization in the United States concerning patient safety and human services. The website includes Health and Safety Topics, Publications and Products, and Data and Statistics.
Citizens For Health Citizens for Health is a national, non-profit consumer advocacy group, and focuses on making healthy choices concerning diet, drugs, medicinal herbs, and wellness as a whole. There are many helpful news articles, a resource center, and a consumer center.
Compassionate Friends The goal of Compassionate Friends is to help families and family friends grieve in a healthy way after the death of a child. Information is provided on how to be supportive to those in mourning. Compassionate Friends is a non-profit and national support organization that hopes to aid grief-stricken parents, siblings, grandparents, and others.
Consumer Health Information Corporation The Consumer Health Information Corporation strives to educate patients and offer resources. These resources come in the form of educational programs, services and fact sheets for consumers, health care providers, and pharmaceutical companies. Because the media center is quite expansive, there is a search bar for the topic being researched.
Consumers Advancing Patient Safety (CAPS) Consumers Advancing Patient Safety hopes to create a successful relationship between consumers and providers so as to prevent misunderstandings and potentially harmful mishaps. The website features news, programs, and resources.
Emergency Care Research Institute (ECRI) ECRI, or Emergency Care Research Institute, is a nonprofit health services research agency that focuses on devices and technology involved in patient safety and the quality of healthcare. Medical Device Safety Reports (MDSR) is an area of ECRI that mostly looks at the causes and effects of device errors.
Families USA Families USA is non-profit, national, and non-partisan. It strives to provide fair and affordable healthcare for everyone in the United States. On the website you will find issue areas, such as Medicare, prescriptions, and minority health, as well as resources and resource centers.
Health Care Choices http://www.healthcarechoices.org Health Care Choices is a non-profit organization based in New York. It educates the public about the current health care system. On the website there is a large section concerning different kinds of cancer, hospital and physician information, and hospital report cards.
Health Grades HealthGrades consists of many rated and profiled hospitals, nursing homes, physicians, consumers, corporations, and health plans. The website features two separate search engines for hospitals and physicians.
Hospice Patients Alliance The Hospice Patients Alliance is a nonprofit charitable organization that works to agree with standards of care during the end-of-life period. There is a search engine run through Google on the website to find whatever topic is needed.
Institute for Family-Centered Care The Institute for Family-Centered Care is a non-profit organization that supports the development of patient and family-centered care. The Institute offers aid in producing patient and family advisory councils, educating patients/families on various topics, and, among other aspects, educates students and trainees. The website includes -services -advancing the practice -profiles of change -events -resources -tools for change
Institute for Healthcare Improvement The Institute for Healthcare Improvement, or IHI, is a non-profit organization that is based in Cambridge, MA. Its main focus is to improve world-wide healthcare. People viewing the website can search through programs, topics, community, workspace, results, and product areas of the site.
Institute for Safe Medication Practices The Institute for Safe Medication Practices (ISMP) is based in Philadelphia, and is devoted to medication error prevention and safe medication use. The website offers information on -education and awareness -medication safety tools and resources -products -news and events -industry There is also an area to report errors in.
Institute of Medicine The Institute of Medicine works to improve the health of the nation by acting as an advisor and, to do so, provides well researched information to the public. The website of The Institute supplies such subjects as -Aging -Diseases -Food and Nutrition -Public Health and Prevention -and treatment, among others.
Joint Commission International Center For Patient Safety http://www.jcipatientsafety.org/ The Joint Commission is independent and nonprofit, and strives to set standards in health care for the nation. The website enforces solutions for patient safety, and several of its website divisions are patients and families, WHO Collaborating Centre for Patient Safety Solutions, and patient safety goals.
MassGeneral Hospital for Children http://www.mgh.harvard.edu/mghfc/index.htm
Massmed http://www.massmed.org//AM/Template.cfm?Section=Home Massmed, or Massachusetts Medical Society, is the oldest medical society (continuously operating) in the country. It focuses on patient advocacy and public health. The website of Massmed provides a search engine and areas for patients, public health, and news and publications.
Medical Error and Patient Safety Learning The website for Medical Error and Patient Safety Learning offers many resources such as books, articles, booths, and fact sheets. For providers to the site, there are consultation services and a forum.
Medically Induced Trauma Support Services (MITSS) MITSS, or Medically Induced Trauma Support Services, focuses on those who experience trauma for a medical reason. The website includes areas for patients and families, clinicians, and healthcare organizations. In the patient and family section, there is an opportunity to share personal stories, as well as a chance to read stories concerning the medically induced trauma of others. There are also patient and family resources.
Medicare The website for Medicare offers numerous resources, which include billing and publications, and there is both Medicaid enrollment and appeals. Also, the website provides a participating physician directory and a good amount of information on prescription drugs.
Medline Plus Health Information Medline Plus Health Information website strives to answer the health questions of its users. To do so, Medline Plus receives facts from agencies and organizations like the National Institutes of Health (NIH). On the website one can find 740 different health topics as well as a medical encyclopedia and dictionary.
Medscape The Medscape website provides health professionals, medical information, and tools for education. It also has many specialty sites and a current news source concerning medical information.
Medwatch http://www.fda.gov/medwatch/index.html Medwatch, which is the FDA Safety Information and Adverse Event Reporting Program, is a site available to both healthcare professionals and the public. It offers clinical information and discusses safety problems, such as drugs, medical devices, and biological products.
National Academies Press The website for the National Academies Press provides reports on patient safety. These reports include catalogs for sale and free online articles. There is also a topic section that includes such topics as agriculture, education, food and nutrition, and health and medicine.
National Association for Healthcare Quality (NAHQ) The website of the National Association for Healthcare Quality (NAHQ), an organization for healthcare professionals, provides -publications -information on the Journal for Healthcare Quality -NAHQ plus -affiliated organizations -Job Mart
National Center For Patient Safety Established in 1999, the National Center for Patient Safety (NCPS) strives to create safety within and throughout the Veterans Health Administration. The website of NCPS includes a patient-specific section, along with a newsroom, publications, and resource areas.
National Committee for Quality Assurance (NCQA) The site for the National Committee for Quality Assurance (NCQA) provides information on accreditation programs, along with publication and products, and education and events. There are articles based on assorted healthcare topics.
National Empowerment Center http://www.power2u.org/what.html The National Empowerment Center strives to support those who have been diagnosed with any sort of mental illness. The website includes helpful stories of recovery, resources and links, and numerous kinds of publications.
National Family Caregivers Association http://www.thefamilycaregiver.org/ The National Family Caregivers Association (NFCA) offers support to those who care for the health of loved ones. On the website one can find information on family caregivers, resources, the NFCA store, and initiatives.
National Institutes of Health (NIH) The National Institutes of Health (NIH) is part of the U.S. Department of Health and Human Services, and is a Federal agency that supports and aids medical research. On the website, one can browse health categories and find quicklinks to different health topics.
National Quality Forum The National Quality Forum is private and nonprofit, and measures healthcare quality in the country. The website includes an area to browse healthcare topics, opportunities for members, and publications.
NHS Direct Online NHS Direct Online offers not only healthcare online, but also through a telephone healthcare service that is based in the United Kingdom. The website offers -a health encyclopedia -common health questions -self-help guide -Mind and body magazine -useful links
P.U.L.S.E. (Persons United Limiting Substandards and Errors in Healthcare) The website of PULSE (Persons United Limiting Substandards and Errors in Healthcare) provides useful information on both the national and local divisions of the organization. On the website one can find: -Advocacy -Education -Support -News and Events -Resources -True Stories -Physician profiles
Partnership for Patient Safety (P4PS) The site for Partnership for Patient Safety, or P4PS, includes information about the Partnership symposia, links, the latest healthcare news, products (such as patient safety books and “First, Do No Harm” video) and projects.
Patient Advocate Foundation The Patient Advocate Foundation is non-profit and strives to keep patients safe through various effective methods. The website offers personal help, resources, programs, news, as well as an opportunity to research through the search bar.
Patient Safety Institute The Patient Safety Institute is non-profit and led by consumer, hospital, and physician advocates. It works to allow healthcare providers access to Personal Healthcare Records (with permission). The website offers news, resources, and various articles.
Premier, Inc. http://www.premierinc.com/safety/ The website of Premier, Inc. provides resources for both patients and healthcare professionals. One can access the electronic newsletter, the online store, and view public health updates.
Society of Critical Care Medicine The Society of Critical Care Medicine was founded in 1970 in order to support critically ill patients. On the website, one can find information on: -Annual Congress -Professional Development -Public Health and Policy -Publications -and the SCCM store, among other topics.
The LeapFrog Group http://www.leapfroggroup.org/about_us The Leapfrog Group is a voluntary program that strives to enforce leaps and improvements in the quality of healthcare in the United States. Another initiative of Leapfrog is to praise and reward those organizations who have exemplified such noteworthy behavior. The Leapfrog website has a different section each for consumers, members, hospitals, and data partners, with a main division that explains the mission and initiatives, and lists members, staff, and board.
The Patient and Family Resource Center The Patient and Family Resource Center (PFRC) website offers confidential, free information. It is run by the New York University Medical Center and provides aid to its members. Visitors to the website can search through online resources, ask a librarian, view patient handouts, and read common questions.
The Smile Train http://www.smiletrain.org/site/PageServer
Voice4Patients.com http://www.voice4patients.com/ Voice4Patients.com is a site that provides information and resources for those who have been victimized by healthcare error. It is run by consumers, and therefore is not a professional organization. The site offers resources, disease support, a medical dictionary, articles, and patient stories, among others.
World Health Organization The World Health Organization, or WHO, is a global attempt to supply premium healthcare to all people. The WHO website explains in greater depth what the World Health Organization is, lists the countries involved, health topics, publications, data and statistics, and programs and projects. |
ADDITIONAL RESOURCES FOR PATIENTS AND FAMILIES MORE >
|
| HOME | ABOUT US | CONTACT | EMPLOYMENT | SEARCH | ||
|
HEALTHCARE PROFESSIONALS | PARTNERS & PROFESSIONALS | PATIENTS & FAMILIES | RESEARCHERS | MEMBERS | ANNUAL CONGRESS |
||
|
PROGRAMS | CONFERENCES | RESOURCES | RESEARCH | PATIENT SAFETY FORUM | PATIENT SAFETY STORE | PRESS ROOM |
||