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Oak Ridge Reservation: Health Needs Assessment Work Group


Needs Assessment Work Group
Meeting Minutes
October 1, 2003

ORRHES Members:

James Lewis (Co-chair), Donna Mosby (Co-chair), Kowetha Davidson (ORRHES chair), Karen Galloway, Susan Kaplan, David Johnson, Charles Washington (via telephone), Barbara Sonnenburg (via telephone)

Guests:

Al Brooks, Timothy Joseph.

ATSDR Staff:

Melissa Fish, Libby Howze, Terrie Sterling, Bill Taylor, Subha Chandar, Theresa NeSmith, Michael Hatcher, Via conference phone: Lorine Spencer, Marilyn Palmer, Jerry Pereira.

Meeting Agenda

  • Call to Order
  • Discussion of a new work group
    - Sunsetting NAWG
    - Sunsetting COWG ?
    - New work group charge (Kowetha, ORRHES August 26: Page 17 of the meeting minutes)
    - New work group name
    - New work group composition
    - New work group ground rules
    - Check By-laws and review work group mission/charge
    - Require resolution go to ORRHES
    - Require By-laws change
  • Discussion of previous community studies and surveys (such as the 1994 UT report) as source material for future actions – Mr. James Lewis (time permitting).
  • Other business.

The meeting began at approximately 6:10 p.m.

Donna Mosby asked Kowetha Davidson about the charge for the new work group. Kowetha Davidson said the charge was discussed at the last ORRHES meeting. Kowetha said the agenda items concerning renaming or combining the work groups have to be decided by ORRHES because the work groups are listed in the Bylaws. Lorine Spencer sent out copies of the Bylaws last week. Lorine said that in the current Bylaws the Health Needs Assessment and Public Health Assessment work groups are mentioned and they were not mentioned in the original ORRHES Bylaws.

Donna Mosby said she could not find a written description of the charge to the Health Needs Assessment work group and asked Kowetha if she had it. Kowetha said she had not looked for it. Lorine Spencer said she did not find the charge for any of the work groups in the Bylaws or on the web site. Kowetha Davidson said they were included in ORRHES and work group reports. Donna Mosby said they need to find the charge or mission of the work groups to discuss combining or forming new ones.

Al Brooks asked if there was agreement that the NAWG was established as a standing committee. Several people said yes. Libby Howze asked whether it was expressly created to advise the George Washington University team or if it had a broader mandate. Al Brooks said it was to address questions of outreach to the community, questions of concerns, questions of needs, and to assist George Washington University in any way it could. Kowetha Davidson said ORRHES originally thought all of it could be covered by the Communications and Outreach Work Group but decided it would be too large a task for one work group. So ORRHES formed a separate work group for the Needs Assessment. James Lewis agreed and said that after listening to George Washington University and considering the task and the timeline, they formed the new work group so as not to hold up the IRB approvals. James said the work group completed their task and met the deadline. James said he thought the work group members expected to continue to be involved throughout the process with GWU, but they were cut off and there was no further discussion between the work group and GWU.

James Lewis said the only outstanding issue for him is that the ORRHES submitted a recommendation to DHEP but had not received a response. Libby Howze said the response was coming. James said he did not want a verbal response. Libby said they were preparing a written response. James also said the ad hoc group submitted their comments and expected a response. Donna Mosby said the whole purpose of the work group was centered on the needs assessment process. Donna said the purpose of the NAWG started out broader, but every time a meeting was called it was to discuss the needs assessment. James Lewis added that they had anticipated interaction in a similar way to the PHA effort. Susan Kaplan agreed with James and said the meetings stopped happening early in the process.

Al Brooks said that if there is a question about the scope of the work group it should not be necessary to sunset the NAWG but rather have ORRHES assign it a new scope. Al said there is a different configuration with different players, but he did not see why it is necessary to sunset a working group. Al said there is not a very big pool to draw from in the community and a new group will consist of mostly the same people. Donna Mosby said that to be objective they should broaden the group. Al said it is an open room: If anyone wants to come they can come. You can appoint more members to it, but you don’t need to dissolve it.

Kowetha Davidson said that the question that came up was combining it with another work group. Kowetha said she had said they could not do that because it was named; you can dissolve this work group, but you cannot just combine two work groups. James Lewis said Jerry Pereira first brought up the concept of combining the work groups. We talked about collapsing the work groups into one work group because the same workers were involved and there was some duplication of effort. Because of having to drive in for these meetings, and there is a similarity in the work of the two groups (COWG and NAWG) we were thinking of combining them.

Libby Howze said that if this was the time to talk about merging work groups and the Needs Assessment group had worked to support the development of the Needs Assessment document, that this might be the time to create a health education or health promotion work group with some other name. Libby said they would continue to look at what the issues are, but there is a lot of bad feeling about the needs assessment group. Libby said she is committed to taking a different path and these thoughts are on the table for discussion.

Donna Mosby said that Libby Howze’s comments made sense and said the group should see what direction we want to go and develop a committee that will follow that path. Al Brooks said, “Or assign it to a committee already in existence that has some knowledge of the problem.” Donna Mosby said if there is something we could look at in this health education and promotion direction that we want to go in with the community, then that should be the task. Donna said the task is no longer the needs assessment and there are too many bad feelings surrounding the needs assessment and the group needs to move on into the next thing. Susan Kaplan asked if the needs assessment is being abandoned. Libby Howze said the report is being abandoned, but DHEP and the work group would develop a process of looking at what the issues are and what directions to go in. Libby said DHEP does not feel like the document can be resurrected. Libby said she did not know at this time what the key areas were they would focus on.

Al Brooks said he could not see why a committee that had done a good job in a bad situation was being disbanded. Susan Kaplan said it almost sounded like the committee is getting blamed for a bad report that it did not have input on. Susan said she is a writer and if she screws something up in a report and gets comments about it, she has to go fix it. Susan asked Libby if this means DHEP is not going to fix the needs assessment report. Kowetha Davidson said work groups are disbanded when their task is concluded and it has nothing to do with what kind of response results—it has to do with whether or not the work group has completed its task. Kowetha said work groups cannot become permanent; under FACA they are temporary. It is always an option of disbanding a work group and it is in the ORRHES Bylaws. It is not about whether they function well or not. Susan Kaplan said that was not her point. Susan asked whether the work is complete; she said she thought if they scrap the report, the work is not complete—you have to fix it. Is it over? Al Brooks answered, “It is over.”

James Lewis said we need to wait until we receive the written comments. But there is another key issue here. James asked whether there is a mandatory requirement for a needs assessment. Is there something in the needs assessment that is specifically there to support the public health assessment process? James said he has been told there is not a mandatory requirement for a needs assessment—it can be looked upon as an enhancement. James said he looked at the needs assessment to see what could be extracted from it. James said Dr. Falk expected some of these things to come out ahead of the PHA effort to guide or assist with it. James said he kept wondering what it is that DHEP does and when it is going to come out. James then presented a table from the Public Health Assessment Guidance Manual. It included conclusion categories and possible follow-on actions. James said it amazed him that under the three PHA conclusion blocks it shows health education whether there is a hazard identified or not. James said the footnote indicates that some conclusions and recommended public health actions may occur early in the public health assessment process.

[Barbara Sonnenburg joined the meeting at this time.]

James Lewis said the community has been involved for two and a half years and a lot of things are going on that appear to fall into some kind of health education and promotion effort. James said he has seen little or no input or involvement from DHEP. He said he is still at a loss as to what DHEP does, when do they do it, and how does it fit into the community. James said they had asked for some completed work to show how DHEP has applied these tasks in the past. They had been told, “Go away.” or “Wait.” And whatever the community will receive they will receive. James said it would help the entire group for some kind of information to be presented to get a feel for whatever DHEP does. James asked Libby Howze if that makes sense.

Libby Howze replied that it does make sense and that is going to be on the agenda for the next ORRHES meeting. Libby said they are on the next ORRHES agenda for an hour and 15 minutes. In the interim, for tonight’s agenda, we had talked about talking about how we want to work together and is there some value in collapsing the groups so that people will not be over-extended. The charge from the last ORRHES meeting was to look at having a new committee. Whether it is a new committee with the same people reincarnated with a different name, it doesn’t matter. But DHEP would like to see a fresh start that would involve taking a look at community needs to the extent that we can as a group, and also for DHEP to get involved fairly quickly in some direction. Libby Howze said that was what she took from the last conference call last week.

James Lewis said he always thought maybe DHEP had the cart before the horse. James said some gaps were created. If there were some products or items that were supposed to come out of the needs assessment to assist the PHA effort, they should be identified by the management team and evaluated to see what they are and how are they going to support the PHA. Terrie Sterling asked what James meant by “assist the PHA effort.” Terrie asked whether James was referring to the public health assessments that are being done. James Lewis answered that he meant the public health assessments. James said the public health assessments do two things: they are evaluating whether or not there have been exposure and they are trying to answer the concerns and issues. Terrie said that when James said “PHA effort” she did not know what he meant. Al Brooks said that there are two things about this process: One is the public health assessment of several contaminants, some for which there have been documented releases, and one can look at them quantitatively and semi-quantitatively. But also there is the perception and concerns of the public, which may not be based upon the physical presence of the contaminants. But those concerns are sufficiently serious to warrant the public health assessment looking at the problem and asserting the place is clean. Al said his understanding was that the listing of the concerns would come out early enough in the process to tell the public health assessment people what needs to be looked at.

Libby Howze said DHEP would maybe see it more broadly than that.

Barbara Sonnenburg asked Libby Howze what are the work groups called in other communities that DHEP works with. Libby responded that having a FACA is an unusual situation and most of the communities they work in do not have FACAs. Libby asked Theresa NeSmith what the work groups at Savannah River or other DOE FACAs are called. Theresa NeSmith said that Savannah River did have a needs assessment working group for a short period of time, and they worked closely on that and then disbanded. They do have an outreach group and an agenda group, and possibly a bylaws group. Theresa said they have very similar names. Barbara Sonnenburg said she was trying to figure out why they should change the name or eliminate the committee. Barbara said she didn’t understand what was going on. Terrie Sterling said she didn’t think they wanted to eliminate the committee; they wanted to move beyond needs assessment into what it is that they need to be doing next to address the concerns of the community. By sticking with needs assessment, that implies that all they are going to do is assess needs and not do any kind of program or intervention. Terrie said DHEP wants to move beyond needs assessment, and that was the understanding they had gotten from the ORRHES meeting. Al Brooks asked then whether a name change and a redefinition of purpose would help DHEP abandon the previous effort including the report. Terrie replied that she thought it would help everyone. Donna Mosby said she was in favor of disbanding the group and forming a new work group.

James Lewis said to Donna there is a difference between cursory involvement and getting people involved in what we try to do. James said this is a key item: We were supposed to have surveyed the various counties in this area to come up with the issues that are out there. We were supposed to have had various focus groups to deal with these specific issues. We are going down a path and the train has already left. If the community challenges ORRHES—how did you survey?, how did you canvas the area?, what are the issues in those areas?—it seems very important that we gather the information especially from a historical review, lay it on the table and see how that can supplement what we are doing, so that the train that has already left can address those issues, like Al and Susan were saying. Donna Mosby said she didn’t think anyone was disbanding those ideas. But if someone has been deeply involved that is another reason for changing the committee. James Lewis said to Donna that he thinks Donna thinks he was too deeply involved and he doesn’t mind addressing the issue. James noted that Kowetha had also noted, that on the PHAWG side of the house we drafted an approach and we have check points when we can look at things and when we can deliver things. James said they had attempted to do that with this current group so they could get things back, but those things didn’t happen. James said that if the issue is him—that’s one thing. But he said his concern is about the needs of the public health assessment: getting the information out to the lay people. And as Dr. Falk stated, it is about packaging the science. It is a problem if we don’t capture these issues and put them together in the right place. James said that Ms. Galloway eloquently stated that it is institutional arrogance that we don’t want to hear from the community to capture these issues, and that is a negative thing. So as a group, we need to look back and look at what impact not completing the needs assessment may have on what we are trying to do.

Libby Howze said they are not trying to abandon the needs assessment. James said that is where we should have hit the ground once we knew that there were weaknesses. Libby Howze said that’s past but we can start now to begin to identify what we need to have and to do together. Barbara Sonnenburg asked why do we need to have a whole new committee of different people? Libby Howze said she did not think that was what was proposed but was a perception here. Barbara said that’s what Donna just said.

Donna Mosby said she was in favor of establishing a new committee, but not new people. Donna said she is in favor of a new committee with a new concept and a new way of thinking. Barbara said to Donna that she (Donna) also said to have different people on it. Libby Howze said that certainly is not what DHEP is proposing. Barbara said that that was what Donna said: Does Donna want to get rid of her (Barbara)? Does Donna want to get rid of James? Al Brooks said the committee has no control over who is a member.

Charles Washington said he thought James Lewis is right. Charles said that we had put out in the public arena the idea that we were going to do a needs assessment and that is what the public is looking for. If that is not the will of the group then you need to justify why you are changing in the middle of the stream, and what are you going to call it and why. Charles said he personally did not find anything wrong with the needs assessment if it is based on the kinds of materials that were used at the plant, and stick with the environs of the Oak Ridge community and the seven county area, and the possible consequences—both short term and long-term. Charles said he does not understand why there is a hang-up with the needs assessment. Barbara Sonnenburg said she agreed with Charles.

Jerry Pereira said everyone’s input is valid but if you will recall from the last ORRHES meeting, one of the focuses for any health promotion or health education issue is to develop the effort as needed, based on the PHAs as they are completed—the eight or nine of them that are going to be done. That is one obvious avenue to look at. Jerry said he thought that arguing over whether to call it a needs assessment or some other name is beside the point. Jerry said what is more important, from this day on, is that one is very clear, very deliberate, and very purposeful, and understood by all. That is probably the more critical piece in what happens from here on in.

Kowetha Davidson had been looking at past ORRHES meeting minutes and said that this project got started at the second ORRHES meeting when Rebecca Parkin came in to talk about needs assessment, and she was talking about focus groups and how we would select them. Jeff Hill moved that the Communications and Outreach Work Group should explore what issues the focus groups should address when trying to form a recommendation from the Subcommittee, and that was voted on. But on the second day of the meeting, it was discussed that that would be too much work for one work group, and the subject was reconsidered and a new motion was passed to start a new work group to provide input to GWU on the health needs assessment with the first task to address the composition of the focus groups.

Barbara Sonnenburg said she still didn’t understand how we had gone from that to sunsetting the Needs Assessment Work Group. Kowetha Davidson said that the discussion that had come to her was combining the work groups and she said she did not think they could combine the work groups. We can disband workgroups because the Bylaws say that when the work group’s work is completed then that work group is supposed to be ended.

Al Brooks asked Libby Howze: If we proceed from where we are now, including looking at the various recommendations that were made to look at various things, how would she feel if someone asked in the future, “Why did you abandon your needs assessment? Or why did we change horses in midstream? Libby Howze said she thought they couldn’t ride that first horse. She said she couldn’t commit to continuing on that path. Al Brooks said that Libby might be comfortable in saying we had a crisis, we reacted to it, and this is the course we are on. Libby Howze agreed. Al Brooks said he wouldn’t try and cover it up; he’d say, yes—we changed horses in midstream. One of them fell down and drowned, so we got on another. This is where we came out and we think we have covered all the issues. (Lorine Spencer, on the conference phone, said she couldn’t hear Al. James Lewis said, “He said the horse drowned.”) Libby Howze said what she thinks the group has the opportunity to do here is decide what we want to know from the communities in the area and do the focus groups if we think together that’s the appropriate way to go. And use other methodologies we want to employ to learn about what the issues are or what directions to go in. And that’s an assessment—that’s a kind of assessment that Libby said she thinks we ought to be doing at this point.

Kowetha Davidson said that in listening to this discussion she thought one thing that needs to happen is to get finality on the GWU document, ASAP. Kowetha said the next thing we need is a blueprint from ATSDR to envision the next step. If the group does not have that blueprint, we cannot tell if we need a communications and outreach work group or a needs assessment work group or what type of work group. But if we don’t have that, we have no idea, because we do not know where we are going. Until we know where we are going, we do not know what we need to get there.

James Lewis added that we have a PHA effort that’s going down this track, which has covered a lot of ground. Is there something that is a part of that effort that is missing that you could help with or assist? We ought to do an internal assessment where we are. (While James was speaking, Libby was saying she agreed: Yes, yes.) James continued and asked, based on DHEP’s skill sets and backgrounds, is there something in those areas that DHEP can pull out and give?

Al Brooks responded, “Of course there are.” Al said we know there is a small population of off-site residents who believe they have been exposed. And we have no knowledge of any exposure possibility in the area. But that is a concerned group. And the question is, do you try to address that or not. Kowetha Davidson said that before we get to there we need a blueprint of how we are going to get there. But we do not know where we are going and until we know where we are going, we do not know what we are going to need to get there. We do not know whether we are going to need a plane, whether we are going to need a car, or whether we are going to need a cart or a bicycle. We have got to have a plan.

Lorine Spencer said we have a clear understanding of what the Communications and Outreach Work Group does. They are providing insight and input to communicate the findings of the PHA. If you look around you in the room, a lot of those charts of pathways and flow diagrams were created with input from the Communications and Outreach Work Group. Another thing that they are to do is get community input and find ways to get the community to be more involved, and that is the piece that we have had the biggest struggle with. There is a briefing book put together and the web site that we are continuing to work on. We have got a budget together to make that more user friendly; if we can get that approved we will be moving forward with that. We have fact sheets that we have put together with the community’s involvement, and all the other fact sheets that you see there in the office. Until we are sure that we know where we are headed with the health education—health promotion—needs assessment, then I guess we are not really clear. The COWG does a lot of their work around the PHAs and it is pretty clear what its task is, and I’m not really clear where we are going to go with the second stage, or whatever we are going to call this.

Kowetha Davidson said she would like to have a response on her earlier comment on the finality on the GWU report.

Donna Mosby said that all the discussions we are having are cast in what the group can look at. Donna said she did not think it has anything to do with forming a group. Whether the group looks at the needs of the community or looks at other reports or back gathering—all those are tasks, which the group will do. They have nothing to do with whether the name will be NAWG or COWG or both or something else.

Kowetha Davidson said she would like a response to her comment before we go on.

Terrie Sterling said that concerning “finality” of the needs assessment document, she was not sure what Kowetha meant. DHEP has said it would respond to the recommendations that were made by this group to ORRHES, that ORRHES passed, one of which was that the document not be used as a basis for health education—health promotion effort. DHEP responded verbally in that meeting that we concurred that it could not be used to form a health education effort. There were some other components that were in that recommendation. We had said that we would respond to all the recommendations in writing. The deadline we are shooting for is the December ORRHES meeting. Is that what you mean by “finality”?

Kowetha Davidson said yes, but also in that finality, if DHEP is not going to use that document, what is it going to do instead? And Kowetha said she needs something more than “work together.” Kowetha said she needs to see a blueprint because otherwise, we are the blind leading the blind. Kowetha said to Terrie and Libby, you are the experts and Kowetha would like to see them lay a plan on the table so that the group will have something to work on. Otherwise, the effort will be disjointed and is going to go here, there, here, and there with no real plan that is laid out. If you want to talk about the PHA—the PHA has a plan that is laid out: We are going to do these documents this way… That came from ATSDR. The work group and the Subcommittee had an opportunity to comment on their plans. Al Brooks added that there was a lot of input to that plan. Kowetha said that there was input, but ATSDR brought something to the table to start with initially. There was something for us to discuss and to develop.

Libby Howze said she asked Michael Hatcher to draw on the board a diagram that will give an idea of what points of intervention and points for assessment that we can talk about and use as a template. Libby said she takes issue about them being the experts. Libby said they are the experts about knowing some things to ask questions about. DHEP can do focus groups and a lot of process things. But the group knows the community. Libby said she would be offended if she lived here and some expert came in and told her what she needed in terms of community. Libby said that’s what happened the first time around, and she does not want to do that. Libby said that we could take an hour to lay out some issues. Libby said Al has already talked about the perception of a problem in this community and that has economic ramifications in terms of housing values, jobs, relocation here, and on and on. So it is not the same as the PHA process in a sense, but if we were to come in and tell you what you need and here is the package—Libby said she could not do that.

Kowetha Davidson said that is not at all what she is saying. Kowetha said that DHEP should come and say these are some of the things that can be done, this is one way of doing it, and will this work for your community? Then we have something to discuss. We might say, this may not work, you may need to do this, and we may need to do this. But at least we have somewhere to start to put this in a coherent way. Kowetha said she does not want to bounce from one thing to the next: Why don’t we do this? Why don’t we do this? Why don’t we do this? It will turn out to be disjointed in the end and it will not be any better than what we have now. You can have all reasonable things come in. If they are not done in a coherent way, you are still going to end up with a mess.

James Lewis said that in the body of the recommendation that ORRHES submitted to DHEP is a comment. It says that the efforts that you go forward with should be tied to the PHA effort. James said as we go down the path and we flag those things and identify them for DHEP, they could respond how they want. Kowetha Davidson asked, “What do you do with that?” Nothing has been laid out to tell Kowetha what is done when information is given to DHEP. Libby Howze said that is what we need to talk about. The next couple meetings are about drafting a plan.

Michael Hatcher described the diagram that he drew on the board. He explained that if we know there are documented exposure pathways of contaminants in the human population the schematic sends us down different trails, whether it is past or current exposure, or future. If it is past and there are medical issues relative to diseases or screenings we would want to go into an advisement type of education activity to try to get the affected population in for whatever kinds of medical screenings that may be appropriate. Or educate them to risk behaviors that they need to be avoiding so they do not complicate any disease they have developed based on that past exposure. Also we would want to be sure that the medical community was prepared to deal with the particular kinds of toxicity and kinds of disease that could come out of it. What we have done over the last month or two is look at each of the kinds of media and look at the pathways of ingestion, inhalation, and dermal. If those were current, we would want to limit the concentration. These are the kinds of recommendations that come out of the public health assessment. Educational needs need to be based on exposure or perceived exposure.

Libby Howze said if there is not an exposure or if there is a perception of one, they have to deal with people’s perceptions. And also she said that some leaders in the community, such as the mayor or the ministerial association or others could help reinforce what we know. Al Brooks said there is no mayor for the eight counties.

Michael Hatcher said there would be recommendations from the public health assessment on how to limit concentrations or limit exposure. DHEP’s role becomes—if this is a documented exposure—we work to get adoption of those recommendations in whatever form we can. It may be efforts concerning mercury in fish, it may be a different way to prepare the fish so that fatty tissue is removed and it lowers the concentration of mercury in the fish being eaten. It may be that the community already has a program or wants to develop the response to that issue. So we are looking at how to educate the community to understand their risk and what can be done to lower it and how can we support them to adopt the kinds of individual behaviors that may be appropriate to lower their risk. And what are the enabling kinds of programs and services that the community can take to support individuals or the broader community on ways to lower risk or exposure. DHEP needs to take this to the next level based on what we understand may be useful from past assessments as well as what the group knows in terms of what the issues are. Looking at how we best communicate, there are specific approaches in terms of understanding ways to communicate with different populations. And that is one of the things that we would want to do that might involve some focus group work. There are specific ways in which we can help people adopt behaviors, whether on a community-wide or individual level. So those are the kinds of things we have to go to the next level on. This is where our educational planning starts becoming much more tangible, once we are able to agree on what those perceived risks are. If there is no documented exposure pathway then we have to educate and work with the community to help understand and trust the science or at least be comfortable with the things that they can do to prevent what they themselves perceive as a risk. So there are educational and communication activities relative to the perceived risk whether there are documented exposures or not.

Al Brooks said: “And Michael, you will fail as everybody else has failed.” If you don’t go out and sample some of their environment and establish in their environment that there is no damage, you will not sell it. Michael Hatcher said, “I agree…” Al Brooks said they have spent billions of dollars in this community trying to sell this point of view. Michael said he is hoping that this is what the public health assessments will do. Since they are not out yet, we do not have the evidence to use. Al Brooks said this is an official ATSDR study and rendering an opinion, but this is not a de novo study by any means. Libby Howze said that the work Michael described is not a health assessment; these are points of intervention. Libby said that Kowetha asked about how we might approach things. DHEP looks at issues that people might be concerned about, like what contaminants might be in their water or their air. You have to help people understand the science process, the results, and prepare the physicians.

Kowetha Davidson said the needs assessment that George Washington University did that we are not using was supposed to plug into this to tell you certain things to do to help you carry this out. We do not have that information so we are going to have to come up with another way of plugging into this.

James Lewis said he has a problem. When you say no hazard, which does not mean that there is not a pathway or that something did not get to the public. The issue is that the category relates to the amount of exposure and whether it constitutes a hazard. Sometimes when we make statements like this, everybody expects that if I receive any amount no matter how minute, then there is going to be some action taken. When we go into these various categories you will see that if there is a hazard there is a health education piece, if there is no hazard there is a health education piece. Also if the hazard is unknown, there is a health education piece. James said his question for DHEP is, if there is no hazard, what is the health education piece you do then?

Michael Hatcher said the diagram he drew would address James’ question, but that the diagram is not chemical specific. James said the Public Health Assessment Guidance Manual says, “Some conclusions and recommended public health actions may come early in the public health assessment process.” James said he asked himself, What does this mean? Next James put up a transparency with some work he did. The transparency has the key parts from the needs assessment document in a table. For each part James noted the effort was either “Not Successful” (Telephone Survey, Focus Groups, Literature Review) or “Questionable” (Key Informants only). For each item James listed “Proposed Corrective Action.” Underneath the table are “Other Recommended Future Activities and Revised Approaches.” (Copies of James’s transparency are available in the ATSDR Oak Ridge Field Office.) James explained that this was a rough attempt to look at the issues and pull them together to present to see if DHEP could work with us and is this a possible approach.

Libby Howze said, “Absolutely.” Libby then read through the Proposed Corrective Actions for those on the telephone. Libby said those are the kinds of things that would be highly appropriate and exactly the kind of thing we want to do together. We should sit down and look at what we know, where the gaps are, if we have the information we should look at it, if we need to create it we should create it. Libby said she was glad James made up the table and she likes it. Though Libby said this was only one part of the work of the new group and they would move on after that.

Barbara Sonnenburg moved to drop any procedures from going forward from the items listed under #2 of the agenda. Barbara said she just wanted to move forward in the way that Libby had said. Charles Washington seconded the motion. Al Brooks asked Libby Howze if the baggage of the old name would seriously hamper Libby. If we pass this motion to perpetuate this committee without a name change and move along in the lines that James has projected on the wall; if we truly make a clean break with the past, abandon the old report, and get on with the new approach, will the baggage brought along by the old name cause Libby a problem? Libby Howze said yes. Libby said it is time for a fresh start. Al Brooks said it would be a fresh start for everything except the name. Barbara Sonnenburg asked Libby if she needed to have the name changed. Libby Howze said she would like to. Barbara asked what name she would like. Libby said it was for the group to decide and suggested Community Health Education (Work Group). Barbara asked, How can we educate before we’ve assessed? Libby said it is part of the process. Barbara asked, Can we say Needs Assessment and Education?

Jerry Pereira said part of the problem that the agency and he (Jerry) has is that the term “needs assessment” refers to a specific product, and not a process. Al Brooks asked if it is true beyond Oak Ridge. Jerry said yes.

Al Brooks moved to amend the motion to say that the committee name be changed to (with input from Libby Howze): “community health promotion working group.” Jerry Pereira said you might want education in there. Libby and others said “health promotion” includes education. Barbara asked if Libby wanted anything about assessment in the name. Libby said that is part of “promotion” too. Al Brooks said that’s a part of it, but it has a lot of baggage that everybody from ATSDR agrees we should not take with us. David Johnson seconded the amended motion. Donna Mosby asked Barbara whether her concern was that the needs assessment part not be lost. Barbara said that’s right because it has to be done. But Barbara did not care if the group did not want it in the name. Libby Howze suggested they form a new group with a new name and they outline very specifically what it’s going to do: finish the assessment, take actions that come out of the assessment, and whatever other language we want to put in so that it is very clear exactly what we are going to do. Donna confirmed with Barbara that that was her concern. Barbara said that that was her concern along with Donna’s effort to disband the committee and start out with all new members. Donna Mosby said to Barbara, “If you heard me say that, then hear me say this: I did not say that.” Barbara said all right. Kowetha said that when the group was talking about combining work groups that she (Kowetha) said there is no basis for it, but that you can disband them. Next everyone was talking at once.

Al Brooks said let’s work on the motion. Donna Mosby said she thought that what had been said was the needs assessment process would not stop even if there were a new committee. Tim Joseph said that although ATSDR and most of us know that education and outreach are included in promotion, he did not think the public knows that. Jerry Pereira agreed. Tim Joseph said he does think the name is important because a working group that is working on something that is going to go out into the public is going to have the public’s eye. Tim said he really likes the words “education” and “outreach.” Tim said he knows what “promotion” means but he wasn’t sure the public knows. There was more discussion about the words. Finally Libby Howze suggested “community health education and promotion work group” and “community promotion and education work group.” Different people repeated one or the other of these. Barbara Sonnenburg asked Charles Washington if he would accept the amended motion and Charles said yes. Barbara Sonnenburg said that that would be the main motion. Jerry Pereira asked if they would have the same membership. Barbara said yes. Libby Howze said that’s a separate question. There was some discussion. Donna Mosby said if this motion passes it will go to the Subcommittee in the form of a recommendation and then there will be a new work group and anyone who wants to be on it can join. Al Brooks said no, because it is a motion that calls for a change of name; it doesn’t say a brand new work group. Barbara Sonnenburg said, I think we need to settle that. Donna said that Kowetha said we couldn’t rename a group. Barbara asked why not. Kowetha said she said we couldn’t combine work groups. Kowetha and Al agreed that the work group could take this motion to the Subcommittee as a recommendation. Al asked to see if the group had an agreement on the name. After a couple tries, Donna Mosby read, “community health education and promotion work group.” Barbara added, “with the same members plus any others that wish to join us.” Kowetha Davidson said work group membership is a voluntary thing anyway. Barbara said, I think there’s something going on here that we don’t know. Donna Mosby said, “You’re creating it, Barbara.” Kowetha said membership has always been voluntary. Donna Mosby called the question and the motion is to establish “community health education and promotion work group.” Al Brooks said that wasn’t the original motion and he thought it was to rename the work group. Barbara Sonnenburg said that was her understanding, too. Kowetha asked Barbara if what Al said was what her motion is. Barbara said yes. Donna asked if we are ready to vote on changing the name of the existing work group. Kowetha said no, it was on naming the group. Then Kowetha said they could not make that motion. Libby Howze said that’s what she thought and that they really have to create a new group. Kowetha said if we vote to change the name then we’ve also voted on both functions. Barbara said she dropped the original motion because she was talking about the entire #2 on the agenda. Kowetha said that for expediency, we should vote on Al’s motion. Al said his motion was to change Barbara’s motion as an amendment, and to change the name. Kowetha said the motion is to change the name to “community health education and promotion work group.” Al said that would cover it. Barbara asked Al if he also had put in that the existing membership would continue. Kowetha said all membership is voluntary; we cannot compel membership on a work group. Barbara asked Kowetha, “What are you trying to do?” Kowetha said we can not do what Barbara asked. Donna said: “All those in favor of changing the name from Needs Assessment Work Group to Community Health Education and Promotion Work Group.” There were many “ayes.” Donna then said, “Opposed?” Donna said “aye.” The motion passed.

Bill Taylor said he would like to raise a point about membership. It is true that anyone can come to these meetings and vote. But ATSDR maintains a list of membership of the work groups, and those individuals have to be ORRHES members, and those individuals who are officially members of the work group are paid for coming to the work group meetings. Kowetha Davidson suggested that if the motion is passed by ORRHES that everybody re-sign-up for the work group if you are going to continue so that ATSDR will know exactly who is on the work group. And then there won’t be a question. Kowetha said she would ask for that.

Al Brooks asked Libby Howze if she would be willing to draw up a draft statement of purpose of this new committee as she sees it. Libby Howze said yes. Al added that they could then work on it. Al said that it would indicate the direction that DHEP is thinking. Donna Mosby said that then perhaps we should have one more meeting before the Subcommittee meeting to hash through that so that the scope of the work group could become a part of the recommendation. Kowetha said that another thing she recommends is to go back and look through the minutes and find the original focus of the work group. Kowetha said it needs to be found and those things that are still there need to roll over, otherwise what we are looking at is a brand new work group and not a continuation of an old one. Kowetha said it should be in the ORRHES minutes after January 2001. Charles Washington said he thought Barbara Sonnenburg had addressed that. Barbara said she was out of this circle and just listening.

Donna Mosby referred to the agenda. Donna said it didn’t look like they would have to change the bylaws, other than the name, if all they were doing is changing the work group name and if some of the tasks on the original needs assessment work group are remaining under the new one. Al Brooks said they had certainly covered all the items under #2 on the agenda.

Al Brooks asked to once more clarify if they were a standing committee or an ad hoc committee. Al said he asked once whether they were a standing committee and everyone agreed, then Kowetha pulled out the bylaws and read where they were all ad hoc committees and all have to be abandoned at the end of their mission. Al said they all ought to have a mutual understanding of what kind of committee they are. Kowetha Davidson said that according to FACA, we cannot have a work group that is permanent, so all work groups are considered not permanent. Al said usually a non-standing committee is one that has a very limited special task and then it’s gone. And usually one that extends over several meetings is known as a standing committee. Kowetha said that all she is saying is what we are. We are a work group and that is a committee; but you cannot be a permanent work group. That’s why we put in the statement about them being disbanded. Al asked, “From meeting to meeting?” Kowetha said, no, for the whole process: It means that the work group can be disbanded when the task is completed. Al said a work group could be disbanded at anytime. Kowetha read from the ORRHES bylaws: “Once a work group has fulfilled its purpose the Subcommittee shall determine whether to continue or disband the group.” Al said that is the definition of a standing committee. Kowetha said it is a description that we have in our bylaws that determines how we function. Donna Mosby asked whether anyone else had an issue with whether we were an ad hoc or standing or whatever kind of committee we are? Charles Washington said no and Donna said okay.

Donna Mosby said the only thing left on the agenda that they had not addressed is new work group ground rules.

Barbara Sonnenburg asked Kowetha if she would accept all volunteers on the new committee. Kowetha said yes; she said she does not tell volunteers that they can or cannot serve on work groups, nor does she propose to do so. Barbara said, all right.

Al Brooks asked Donna Mosby why she said “new work group ground rules” when we do not have a new work group. Donna said she was just referring to the agenda. Al asked whether the old ground rules would come across. Libby Howze said that what she does not have a sense of is there being ground rules. Donna said there are some ground rules in a document they adopted from the Guidelines and Procedures Work Group. Donna said they had worked real hard on that document. Libby said there needs to be a discussion about it because from DHEP’s perspective there are questions about what procedures are followed. Libby said Al follows Robert’s Rules of Order, but nobody else does, for example. Libby said that is not a criticism, that is an observation, but it impedes the functioning of the work group effectively. Libby said there are issues of communication between the co-chairs that seem to be getting in the way of effective functioning. Then there are issues of speaking over people and storming out of meetings. Libby said she comes in as an outsider, but it seems if we want to attract people to the meeting, we have got to talk about how we want to work together. We want to communicate effectively and have a certain amount of predictability. Karen Galloway said they had established those types of ground rules but they were termed as suggestions to work group chairs on how to manage a meeting.

[Charles Washington exited the meeting at this time.]

Kowetha Davidson read from the bylaws: During work group meetings all participants shall adhere to all rules of conduct and decorum that govern participants and Subcommittee members.

[Barbara Sonnenburg exited the meeting at this time.]

Libby Howze suggested that a couple people could meet to set up regularly established meetings and set up an agenda that everyone could agree on. Kowetha said she thought the two co-chairs and ATSDR should do that.

Donna said that from the past it seemed that there were separate tracks on establishing agendas and establishing meetings, and different people sending out emails and most of the work was established without the department that was involved with that. Donna said it was an issue for her that those types of things were generated outside of the department that the group was supposed to function and work with. And then we would get an agenda that was sent out and then we would get another agenda that was sent out. And sometimes James and she would talk about the agenda and every time they would come to a meeting there would be a whole long schpeel about the agenda and the things on it that were not agreed upon. Donna said the agenda and the meeting time have always been a source of confusion to her. Donna suggested establishing a general day of the month for the meetings, and if we do not have business then we do not have a meeting. But have the day and time on the calendar and know that that is the time in which we meet. Then the people who are involved with the department and the chair will be involved with establishing the agenda and then the chairs make sure that the email gets out. But various conversations that “he said” and “she said” and “I didn’t know” need to not continue.

James Lewis said that he agreed with Donna Mosby. James said that Bill Taylor and Melissa Fish have done a good job and if the chairs would spend some time to set down the agenda and set down goals, and make sure we got our ducks in a row, we would be better off. We almost need to have work session meetings to get our things together so we will know what it is that we are going to do. That is very helpful to us. Our problem is that we have got volunteer help and a lot of times everybody cannot meet at the same time. That coupled with not a whole lot of things coming to us to do, we wind up fighting amongst ourselves. In order to draw people to the room, I think we need to talk about getting the web site up to date so we can identify things and people will be familiar with the work. So there is a point there, and this is the same problem we run into on the PHA work group. And if chairs adopt a philosophy to work the meeting agendas out in advance, we can move forward.

Libby Howze said DHEP would really like to be a part of that process, and work with the co-chairs and Bill and Melissa and Kowetha, and come up with an agenda at a specified time of the month. Kowetha Davidson said she thought the two co-chairs should get together first to work on the agenda then bring their suggestions for the agenda to ATSDR. Kowetha said the co-chairs need to be in communication with each other first. Libby Howze said that she is not sure she wants to work that way. If time is short and precious, why go through the two-step process when we can just sit down together on the phone and deal with it. Kowetha said, as long as both of the co-chairs are there it will work. But if only one of them is there, it is not going to work. They have to both be there or they have to communicate before the meeting.

David Johnson said that when Michael Hatcher made his presentation he made reference to trust. In order to work in this community you have to be flexible. If you come in with a rigid plan of action, you will be thrown out of the community. So whatever you say and whatever you do, if you’re not flexible and sensitive to the mood of the community you’re at a disadvantage. With trust—that’s something that has to be built and developed.

Al Brooks said, concerning the agenda process, the chairs should be putting out a message to the permanent membership of the committee to turn in items for the agenda. Anybody who wants to bring up a topic for discussion ought to have an opportunity to have it on the agenda.

Donna Mosby said that the action items are to get our hands on the Guidelines and Procedures document, to go back and try and find out what is the original mission of the NAWG, and try to write down a focus or mission or purpose for the Community Health Education and Promotion Work Group (the “CHEP” Work Group). Kowetha added that the group should review the section in the bylaws and the appendix having to do with meeting decorum. That information is already there.

Lorine Spencer said that it seems we will have to have a bylaws change to have a new work group.

James Lewis said that the key to having an effective work group is preparation. We have to take a little time in the committee to bring everybody up to speed. But if everybody is prepared and has done their homework, we should click off rather well.

Libby Howze said she is checking her calendar. After some discussion of available dates and times to hold another NAWG meeting before the next ORRHES meeting (October 21) it was decided to hold it the morning of the ORRHES meeting: October 21 at 10:00 a.m. It is understood that not everyone will be able to come that early because some people work at their regular jobs in the morning and have to travel to Oak Ridge. But Libby and Terrie want to meet once more, face-to-face, to try and get more accomplished before the ORRHES meeting. Libby Howze and Terrie Sterling said that they could start at 10:00 a.m. and look at the documents. And for people who couldn’t join until 11:00 a.m., they could say this is what we have looked at, and then make assignments about how we want to review those or what else we need to look at.

Lorine Spencer asked Donna Mosby if the group had established a regular meeting date. Donna Mosby looked at her calendar. After some discussion Donna said it looks like the fourth Monday or fourth Tuesday of the month will work best for most of the group. The group will look and see which of those dates will be better for them and it will be discussed again at another meeting. Donna asked if the next meeting was going to cover finding the scope of the group, looking at James Lewis’s document, and considering the next step. Libby Howze said that she also would like to schedule when the chairs and DHEP would talk about the agenda. Donna Mosby suggested that since the meetings would be the fourth Monday or Tuesday of the month, the agenda discussion should be the second Monday or Tuesday of the month—two weeks prior to the meeting. Libby said the other thing to develop is the ground rules. Libby said she would look at what we already have.

Finally, Libby Howze asked how long Donna Mosby and James Lewis had been co-chairs. The response was, since the work group was formed, since the second ORRHES meeting. The meeting was adjourned at approximately 8:10 p.m.

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