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Florida Birth Defects Tracking Program Program Title:
Florida Birth Defects Registry
Organization: Florida Department of Health
Project Period: September 2003–June 2008
Project Director: Prakash S. Patel, MBBS, MPH
Grant Title: Population-Based Birth Defects Surveillance
Programs and the Utilization of Surveillance Data by Public Health
Programs
Project Summary
The Florida Birth Defects Registry (FBDR) works
with state and local programs serving children with special health
care needs to improve access to health services and early
intervention programs. Through this project, the FBDR will enhance,
expand, and evaluate public health initiatives related to statewide
population-based birth defects surveillance in Florida. The project
will focus on prevention and referral programs targeted to women of
childbearing age, children with special health care needs and their
families, and families with a history of birth defects.
Project Goals and ActivitiesSurveillance
- Expand current rapid identification of birth defects to
include all central nervous system defects, anotia, microtia,
orofacial clefts, gastroschisis/omphalocele, chromosomal
abnormalities, and fetal alcohol syndrome.
- Investigate and develop new sources of data to identify
birth defects in Florida.
Prevention
- Work with the Florida Folic Acid Coalition
to continue effective programs to raise awareness and increase
use of folic acid. Develop and launch new programs.
- Educate health care providers about birth
defects recurrence to improve prevention.
- Counsel women who have an NTD-affected
pregnancy within 6 months of birth, pregnancy loss, or
termination.
- Participate in the Fetal Alcohol Spectrum
Disorders Action Group.
- Prepare and distribute a series of public
health briefs about conditions identified through active medical
records review.
Referrals
- Evaluate the feasibility of linking the FBDR
to other appropriate data sets.
- Support the use of birth defects data in
making decisions about health services planning, prevention
efforts, secondary disabilities prevention, and service
coordination.
- Improve data linkages, collaboration, and
referrals among the department’s programs serving families and
children with special health care needs, including the
Children’s Medical Services and Healthy Start Programs.
Date:
January 03, 2008
Content source: National Center on Birth Defects and Developmental
Disabilities
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