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Colorado Birth Defects Tracking Program Program Title: Colorado Responds to Children with Special Needs
Organization: Division of Disease Control and Environmental Epidemiology,
Colorado Department of Public Health
Project Period: March 2005–February 2010
Project Directors: Lisa Miller, MD, MSPH and Carol Stanton, MBA
Grant Title: Population-Based Birth Defects Surveillance Programs and the
Utilization of Surveillance Data by Public Health ProgramsProject Summary
Colorado Responds to Children with Special
Needs (CRCSN) is a statewide, population-based program to monitor
and prevent birth defects. CRCSN collects data from many sources on
children with birth defects or risk factors for developmental delay
from before birth to 3 years of age. It uses these data to improve
access to health services and early intervention programs.
Project Goals and ActivitiesSurveillance
- Maintain the program’s ability to monitor trends in birth
defects.
- Achieve timely and complete reporting of the Colorado Health
and Hospital Association’s discharge data set.
- Use new surveillance methods that describe the data in
greater depth.
Prevention
- Work with the Colorado Folic Acid Task Force
to increase awareness and use of folic acid to prevent neural
tube defects (NTDs).
- Counsel women who have an NTD-affected
pregnancy to prevent those defects in future pregnancies.
- Use population-based surveillance on fetal
alcohol syndrome to target prevention activities.
Referrals
- Expand activities to improve the access of
children with birth defects to comprehensive, community-based,
family-centered care. CRCSN is working with the Health Care
Program for Children with Special Needs to automate both
referrals and the collection of tracking and outcome evaluation
data.
- Evaluate progress in improving access to
services.
- Evaluate how well referral activities work
and what impact they have on affected children and families.
Date:
January 03, 2008
Content source: National Center on Birth Defects and Developmental
Disabilities
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