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ORD collaborates with Institutes, Centers, and Offices at NIH to stimulate rare diseases research by cosponsoring scientific conferences where research is lagging or to take advantage of scientific opportunities.
Upcoming Conferences -
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6th International Conference on Unstable Microsatellites and Human Disease, January 17, 2009 - January 22, 2009
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Protein Misfolding and Misprocessing in Disease, January 27, 2009 - January 28, 2009
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Drug Discovery for Neurodegeneration, February 2, 2009 - February 3, 2009
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2009 Salivary Glands and Exocrine Secretion Gordon Research Conference, February 8, 2009 - February 13, 2009
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Safe and Effective Instruments and Devices for Use in NICU, February 12, 2009 - February 13, 2009
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Lysosomal Disease Network-5th Annual WORLD Symposium, February 18, 2009 - February 20, 2009
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Bipolar Disorder in Children and Adolescents: New Data to Inform Classification, February 26, 2009 - February 27, 2009
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2009 Gordon Research Conference on Cilia, Mucus, and Mucociliary Interactions, February 27, 2009 - March 1, 2009
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Testicular Cancer and Testicular Dysgenesis Syndrome: Current Perspectives and Future Directions, February 28, 2009
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Genomic Instability and DNA Repair, March 1, 2009 - March 6, 2009
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Developmental Aspects of the Upper Airway Workshop, March 5, 2009 - March 6, 2009
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Second International Hidradenitis Suppurativa Research Symposium, March 5, 2009
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Weinstein Cardiovascular Development Conference, March 7, 2009 - March 9, 2009
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Methods for Translational II Research in Sickle Cell Disease (Working Group), Spring 2009
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Hyper IgE Recurrent Infection (Job’s) Syndrome Symposium, Spring 2009
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The First Workshop on Epigenetic Basis of Intellectual and Developmental Disabilities (IDD), Spring 2009
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Diagnosis and Management of Severe Combined Immune Deficiency (SCID) and Combined Immune Deficiency (CID) Prior to Allogeneic Hematopoietic Cell Transplantation: Practice Guidelines and Research Questions, Spring 2009
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Should newborn screening be considered for Gaucher disease?, Spring 2009
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Multidrug Efflux Systems, March 22, 2009 - March 27, 2009
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Basic Mechanisms of the Epilepsies Workshops, March 22, 2009 - March 27, 2009
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Tourette Syndrome GWAS Replication Workshop, March 2009
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Contributions of Inflammatory and Hemostatic Mediators, Genetic Modifiers, and Hemolysis to Pathogenesis of Disease in Hemoglobinopathies, March 2009
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Primary Care Management of Sickle Cell Disease: Review of Treatment Guidelines, March 2009
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Clinical and Translational Workshop on Niemann-Pick Disease, Type C, April 3, 2009 - April 4, 2009
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2009 Fight SMA Researchers Conference, April 19, 2009 - April 21, 2009
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6th International Human Peroxidase Meeting, April 19, 2009 - April 22, 2009
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Humanized Mice for Immunology Research, April 22, 2009 - April 23, 2009
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Primary Immunodeficiency Disease Consortium Conference, May 5, 2009 - May 6, 2009
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IPCC 2009 Symposium: Planning for Effective Delivery of Nucleic Acids to Skin, May 5, 2009 - May 6, 2009
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Flavivirus Immune Epitope Analysis, May 12, 2009 - May 13, 2009
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Workshop on Clinical Trial Endpoints for Acute Graft-versus-Host Disease (Acute GVHD) after Allogeneic Hematopoietic Stem Cell Transplantation (HCT), and the Identification of Future Scientific Directions Needed to the Prevention of Acute GVHD, May 19, 2009 - May 20, 2009
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Clinical Research Priorities for Thalassemia, May 20, 2009 - May 21, 2009
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Fifth International Conference on Pediatric Mechanical Circulatory Support Systems and Pediatric Cardiopulmonary Perfusion, May 28, 2009 - May 30, 2009
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ASM Conference on DNA Repair and Mutagenesis, May 30, 2009 - June 5, 2009
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Nutritional Challenges in the High Risk Infant, May 2009
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2009 Triplet Repeat Disorders Gordon Conference, May 31, 2009 - June 5, 2009
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Workshop to Plan Consortial Activities for Clarifying the Etiology of Male Breast Cancers, May 2009
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Ion Channel Regulation, June 7, 2009 - June 12, 2009
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International Workshop on Phosphodiesterases: Their Genetics Function and Human Diseases (PDE2009), June 8, 2009 - June 9, 2009
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United Mitochondrial Disease Foundation Annual Symposium, June 24, 2009 - June 27, 2009
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Workshop on the Biology, Prevention, and Treatment of Relapse after Allogeneic Hematopoietic Stem Cell Transplantation, June 2009
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Targeted Therapy for Hypereosinophilic Syndromes, July 12, 2009
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Workshop on RUNX Transcription Factors in Development and Disease, August 16, 2009 - August 19, 2009
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Cystic Fibrosis and the Liver, August 31, 2009
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Advances and Opportunities in Scrub Typhus Research, August 2009
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1st International Conference on Thymic Malignancies, September 24, 2009 - September 25, 2009
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The 6th Annual North American Genetic Analysis of ABC Transporters Workshop, September 24, 2009 - September 25, 2009
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International Workshop on Cholangio-carcinoma and Hepatocellular Carcinoma, October 6, 2009
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Cellular and Cytokine Interactions in Health and Disease, October 17, 2009 - October 21, 2009
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The Third Multiple Hereditary Exostoses (MHE) Research Conference, October 29, 2009 - November 1, 2009
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Scientific Advances in Adaptive Clinical Trial Design, October 2009
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Translational Genomics of Neuroblastoma (TGiN) year 3, October 2009
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Implications of the Discovery of MCV on the Etiology, Pathogenesis, and Clinical Management of Merkel Cell Carcinoma, November 2009
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Adaptive and Innate Immune Responses to Neglected Tropical Diseases, January 28, 2010 - January 30, 2010
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International Conference on Mobile DNA, Winter 2010
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