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Home » Health Information » Information about Retinoblastoma

Information about Retinoblastoma

Retinoblastoma is a type of cancer that forms in the retina (the light-sensitive tissue at the back of the eye). The disease usually occurs in children younger than 5 years and may be in one eye or in both eyes. In some cases the disease is inherited from a parent.

Retinoblastoma is a serious, life-threatening disease. However, with early diagnosis and timely treatment, in most cases, a child's eyesight and life can be saved.

For detailed disease information, please see the retinoblastoma information page prepared by the National Cancer Institute: http://www.cancer.gov/cancertopics/types/retinoblastoma/.

The following organizations also provide information and support for families affected by retinoblastoma:

image of the eye

Institute for Families
P.O. Box 54700
Mail Stop 111
Los Angeles, CA 90054-0700
(323) 669-4649
http://www.instituteforfamilies.org

National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
1-800-999-6673
(203) 744-0100
(203) 797-9590 (TDD)
http://www.rarediseases.org

Retinoblastoma International
c/o Children's Hospital Los Angeles
4650 Sunset Boulevard MS #88
Los Angeles, CA 90027
(323)669-2299
http://www.retinoblastoma.net/

This page was last modified in February 2008