Angelman Syndrome   Autism
Behavior - Positive Support   Communication
Cerebral Palsy   Down Syndrome
Education   Family Support and Information
Fragile X Syndrome   Growth and Development
Learning Disabilities   Literacy
Organizations   General Disability Information

Angelman Syndrome

Angelman Syndrome Foundation, Inc.
http://www.angelman.org/
The Angelman Syndrome Foundation is dedicated to the advance of awareness and treatment of Angelman Syndrome through education, information exchange and research. They offer local contacts, regional representatives, and professional references to provide information to those interested.

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Autism

Jacob's Bridge through Autism
http://www.jbtautism.org/
A resource dedicated to helping families with children with autism gain the knowledge to help themselves and bridge the gap between diagnosis and the next steps. It contains information from allergy treatments to food shopping, and support resources from stress relief to local and national resource and support groups.

NH Dietary Intervention for Autism and Related Disorders
http://www.parenttoparentnh.org/p2p/nhdi/
This site offers dietary intervention for autism and related disorders. It provides help with dietary issues, finding appropriate foods locally, recipes, and monthly group meetings.

Autism and Pervasive Developmental Disorder Website
http://www.autism-pdd.net/introduce.html
A resource for parents who suspect that their child may have Autism.

Kids Health
http://www.kidshealth.org/parent/positive/learning/pervasive_develop_disorders.html
Dedicated to providing information regarding pervasive developmental disorders, such as Autism, this site provides information and links that range from emotions and behavior to nutrition and fitness. It is a comprehensive site offering parents the opportunity to learn more about the disorders.

Autism National Commitee
http://www.autcom.org/
This is the only autism advocacy organization dedicated to "Social Justice for All Citizens with Autism" through a shared vision and a commitment to positive approaches. Our organization was founded in 1990 to protect and advance the human rights and civil rights of all persons with autism, Pervasive Developmental Disorder, and related differences of communication and behavior.

Indiana Resource Center for Autism
http://www.iidc.indiana.edu/~irca/
The Indiana Resource Center for Autism staff conduct outreach training and consultations, engage in research, and develop and disseminate information focused on building the capacity of local communities, organizations, agencies, and families to support children and adults across the autism spectrum in typical work, school, home, and community settings. This web site includes many articles on supporting individuals who experience autism.

NICHD Autism Site
http://www.nichd.nih.gov/autism/
The National Institute on Child Health and Development (NICHD), part of the National Institutes of Health (NIH), is one of the primary Institutes doing research into various aspects of autism, including its causes, prevalence, and treatments. The goal of this site is to provide easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders.

State of the Science in Autism
http://www.nichd.nih.gov/publications/pubs/autism/index.htm
State of the Science in Autism: Report to the National Institutes of Health

Autism Society of America
http://www.autism-society.org/
Autism Society of America promotes lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA's efforts to carry forth its mission.

Autism Resource Network
http://www.autism-pdd.net
The purpose of this site is to guide you to the key issues associated with Autism spectrum disorders. Provides a wealth of information about children and adults with disabilities. Also provides many additional resource links.

Autism Society of New Hampshire
http://www.geocities.com/sv2833/
The Autism Society of New Hampshire is dedicated to individuals with Autism and Pervasive Developmental Disorders (PDD). It is membership organization consisting of individuals with Autism/PDD, families, professionals, friends, and community members. Through education, the Society hopes to foster the understanding, unqualified acceptance, and genuine appreciation of individuals with Autism/PDD.

Asperger's Association of New England
http://aane.autistics.org/
AspergerĀ¹s Syndrome was first described by Dr. Hans Asperger in a paper published in Vienna in 1944. Dr. AspergerĀ¹s research was unknown in the English speaking world until the late 1980s, and was not officially classified as a psychiatric disorder until 1994. While Asperger referred to the subjects of his study as "autistic," the syndrome differs from the classical definition of autism as it developed in the US. Some have referred to this disorder as autism without mental retardation.

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Behavior - Positive Support

Positive Behavioral Interventions and Supports
http://www.pbis.org/
The Technical Assistance Center on Positive Behavioral Interventions and Supports (PBIS) has been established by the Office of Special Education Programs, US Department of Education to give schools capacity-building information and technical assistance for identifying, adapting, and sustaining effective school-wide disciplinary practices.

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Communication

Aproxia Kids
http://www.apraxia-kids.org/
Apraxia-KidsSM Internet Resources - your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia.

Childhood Apraxia of Speech
http://www.asha.org/public/speech/disorders/Developmental-Apraxia-of-Speech.htm
Childhood apraxia of speech is a disorder of the nervous system that affects the ability to sequence and say sounds, syllables, and words. It is not due to muscular weakness or paralysis. The problem is in the brain's planning to move the body parts needed for speech (e.g., lips, jaw, tongue). The child knows what he or she wants to say, but the brain is not sending the correct instructions to move the body parts of speech the way they need to be moved.

First Words Project
http://firstwords.fsu.edu
FIRST WORDS Project is a model early identification and intervention program based in the Department of Communication Disorders at Florida State University. Staffed by speech-language pathologists and interdisciplinary consultants, they evaluate the communication development of children from 6 to 24 months of age. They are also developing educational materials for training of healthcare and childcare providers to build their capacities for earlier detection of communication problems in young children.

The Hanen Centre
http://www.hanen.org/
The Hanen Centre, a Canadian not-for-profit charitable organization with an international outreach, is committed to helping young children with - or at risk of developing - language delay learn to communicate and interact effectively.

Communication Aid Manufacturers Association
http://www.aacproducts.org/
The Communication Aid Manufacturer's Association (CAMA), a not-for-profit association of the world's leading manufacturers of augmentative communication technology, is recognized as a leader in helping professionals and consumers with a wide range of experience maintain their proficiency and enhance their skills regarding AAC.

CAST: Center for Applied Special Technology
http://www.cast.org/
The Center for Applied Special Technology, CAST is an educational, not-for-profit organization that uses technology to expand opportunities for all people, especially those with disabilities.

Augmentative Communication Intervention
http://www.aacintervention.com/
The web site is maintained by clinicians who work in the field of augmentative communication. The site contains many helpful tips for using augmentative communication in everyday situations.

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Cerebral Palsy

United Cerebral Palsy
http://www.ucpa.org
UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, UCP's mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities.

Cerebral Palsy Information Site
http://www.cerebralpalsy.com/
Created and maintained by the parents of an 11 year old child with Cerebral Palsy, this site shares information, experience, and research with other parents, professionals, and interested individuals. It provides a discussion forum and resources for families with a child with Cerebral Palsy.

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Down Syndrome

The National Down Sydrome Society
http://www.ndss.org/
The National Down Syndrome Society has become the largest non-governmental supporter of Down syndrome research in the United States. Today, NDSS continues to increase public awareness about Down syndrome and discover its underlying causes through research, education and advocacy. NDSS strives to increase awareness and acceptance of people with Down syndrome.

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Education

School Success Information
http://www.schoolsuccessinfo.org
All parents want their children to succeed in school. Children whose parents are involved in their education are more likely to. But for many parents, it is hard to know how or where to start. This website is here to help those parents find answers. Today's parents work long hours, extra jobs and must handle other responsibilities that limit their time. This site can offer tips and ideas so you can use what little time you have to ask the right questions, know where to turn and help your child succeed. Also, many grandparents and other guardians are taking primary responsibility for children. This is for you too. No matter who you are, this information can help you get more involved - both at home and at school.

NH Department of Education
http://www.ed.state.nh.us/
The mission of the Department of Education is to provide educational leadership and services which promote equal educational opportunities and quality practices and programs than enable New Hampshire residents to become fully productive members of society.

IDEA Practices Home Page
http://www.ideapractices.org/
This web site is dedicated to promoting best practices for the implementation of special education legislation, IDEA'97.

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Family Support and Information

The New Hampshire Challenge, Inc.
http://www.nhchallenge.org/
The New Hampshire Challenge, Inc. is a federally recognized 501(c)(3) nonprofit organization which serves the state of New Hampshire. Their primary work is the publication of a statewide quarterly newspaper, The New Hampshire Challenge, for families who have members with disabilities. The Challenge also reaches thousands of readers world-wide through its online edition.

WGBH Parent's Pages
http://www.wgbh.org/kids/parents
WGBH enriches people's lives through programs and services that educate, inspire, and entertain, fostering citizenship and culture, the joy of learning, and the power of diverse perspectives. As part of WGBH's online services for families (Parents' Pages), various issues and advice is offered surrounding behavior and development, communication, disabilities, health and safety, reading and language, school and education, work and family, and media awareness.

Parent to Parent of New Hampshire
http://www.parenttoparentnh.org/ns/nsindex.html
Parent to Parent of New Hampshire offers:

  • Emotional support, insight and understanding for parents when they learn their child has special needs, or when their child may be going through a transitional period.
  • Parent Matches between Supporting Parents, who "have been there" with referred parents of children with special needs (medical, developmental, emotional, learning).
  • Information and Referral to community resources, services, support groups, state support programs, and others; Training for parents who would like to become volunteer Supporting Parents.
  • A state-wide network of regional Parent to Parent coordinators.

The Family Village
Waisman Center, University of Wisconsin-Madison
E-mail: familyvillage@waisman.wisc.edu
http://www.familyvillage.wisc.edu/
A global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, for their families, and for those that provide them services and support.

Children's Disabilities Information
http://www.childrensdisabilities.info/
A parent support website for families of children with special needs. Professional and parent articles, newsletters, mailing lists and resource directories provide parents with information they need to provide the best care for their children.

Beach Center on Disability
http://www.beachcenter.org/
The Beach Center has a commitment to listen to the priorities of families, incorporate family priorities into the Center's research agenda, carry out research in a participatory way, and to ensure that the research makes a meaningful and sustainable difference in the lives of families who have children with disabilities. Current priorities focus more explicitly on improving policies as a means of enhancing family quality of life.

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Fragile X Syndrome

The National Fragile X Foundation
http://www.fragilex.org
The National Fragile X Foundation unites the fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for fragile X syndrome.

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Growth and Development

Developmental Delay Resources
http://www.devdelay.org
DDR is a nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas. DDR provides a network for parents and professionals and current information after the diagnosis to support children with special needs.

The National Academy for Child Development
http://www.nacd.org
The majority of NACD's work has been directed to understanding and assisting in the development of individuals with developmental inefficiencies. As such NACD has for over twenty years been a pioneer in such areas as Autism, ADD, Down Syndrome, Cerebral Palsy, Brain injury and Learning Disabilities.

Keep Kids Healthy
http://www.keepkidshealthy.com/welcome/conditions/developmentaldelays.html
This site offers general information about developmental delays.

National Center for Health Statistics - Growth Charts
http://www.cdc.gov/growthcharts
The individual growth charts, with one chart per page, have the grids aligned to English units (lb, in), with metric units (kg, cm) on the secondary scale. Individual charts are available for boys and for girls.

American Dietetic Association
http://www.eatright.org/ Your guide to nutrition and health, including information on the food pyramid, and healthful eating.

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Learning Disabilities

Learning Disabilities Association of America
http://www.ldanatl.org/
Learning Disabilities Association of America is dedicated to identifying causes and promoting prevention of learning disabilities and to enhancing the quality of life for all individuals with learning disabilities and their families. They do so by encouraging effective identification and intervention, fostering research, and protecting their rights under the law. LDA seeks to accomplish this through awareness, advocacy, empowerment, education, service and collaborative efforts.

National Center for Learning Disabilities
http://www.ncld.org/
The National Center for Learning Disabilities (NCLD) is dedicated to increasing opportunities for all individuals with learning disabilities to achieve their potential and participate fully in society. It strives to increase public awareness and understanding of learning disabilities, conducting educational programs and services that promote research-based knowledge, and providing national leadership in shaping public policy.

Children with Disabilities
http://www.childrenwithdisabilities.ncjrs.org/
This web site offers families, service providers, and other interested individuals information regarding advocacy, education, employment, health, housing, recreation, technical assistance, and transportation covering a broad array of developmental, physical, and emotional disabilities.

Learning Disabilities Online
http://www.ldonline.org/
Regarded as "The leading web site on learning disabilities for parents, teachers, and other professionals," this site offers a chance for one to stay informed of recent news, research, and events with respect to learning disabilities, and offers information on finding assistance.

Nonverbal Learning Disabilities on the Web
http://www. nldontheweb.org/
This site offers an extensive amount of knowledge with respect to the background and diagnosis of Nonverbal Learning Disabilities. It also provides users with information regarding advocacy, assessment, intervention, local resources, and other useful links.

Keep Kids Learning
http://www.keepkidslearning.org/
Keep Kids Learning is an advocacy web site designed to inform others of their education campaign and to keep individuals informed and up-to-date on issues that affect education and children with learning disabilities.

Kid Source
http://www.kidsource.com/kidsource/pages/dis.learning.html
Kid Source offers all individuals a chance to view important articles and information on education and disabilities, and speech and language development. The site also offers opportunities to view other links to specific learning periods, organizations, health topics, and products.

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Literacy

Center for Learning and Disability Studies
http://www.med.unc.edu/ahs/clds/index.html
The Center's mission is to promote literacy learning and use for individuals of all ages with disabilities. It is the belief of the CLDS that disabilities are only one of many factors that influence an individual's ability to learn to read and write and to use print throughout their life and across their living environments. All individuals, regardless of their abilities or disabilities, have the right to an opportunity to learn to read and write in order to increase and enhance their educational opportunities, vocational success, communicative competence, self-empowerment capabilities, and independence.

Four Blocks
http://www.wfu.edu/~cunningh/fourblocks/
This web site presents information, sources, teaching ideas, answers to common questions, notices of workshops and other information periodically related to the Four Block model for literacy instruction. The Four Blocks focus on: Guided Reading, Self-Selected Silent Reading, Working with Words, and Writing.

Literacy Village
http://www.literacyvillage.org/
A resource on early literacy learning. With the recent release of the National Research Council's report, Preventing Reading Difficulties, the nation has turned its attention to the urgent need for more effective literacy support for preschool programs serving low-income children. This organization will employ distance education technology to improve teacher staff development in language and literacy, while also assessing the impact of this intervention on teachers, supervisors, and children.

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Organizations

Association for University Centers on Disabilities (AUCD)
http://www.aucd.org/
A network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Institute on Disability / University Of New Hampshire
http://iod.unh.edu/
The mission of the Institute on Disability is to promote the full inclusion of people with disabilities in their communities. To carry out that mission, the Institute on Disability runs a wide variety of programs and activities.

Dartmouth Hitchcock Medical Center
http://www.hitchcock.org/
Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire, is a nationally-recognized teaching and research institution affiliated with Dartmouth Medical School. It is home to the Norris Cotton Cancer Center (NCCC), a nationally-designated comprehensive cancer center; CHaD, New Hampshire's only children's hospital; more than 900 primary and specialty physicians located throughout New Hampshire and Vermont.

Maternal and Child Health Bureau
http://www.mchb.hrsa.gov/
The mission of the Maternal and Child Health Bureau is to provide national leadership and to work in partnership with states, communities, public-private partners and families to strengthen the maternal and child health infrastructure, assure the availability and use of medical homes and build the knowledge and human resources in order to assure continued improvement in the health, safety and well-being of the MCH population. The MCH population includes all America's women, infants, children, adolescents and their families, including fathers and children with special health care needs.

TASH
http://www.tash.org/
Group of people holding sign Inclusion for all (6835 bytes)TASH is an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.

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General Disability Information

Family Village
http://www.familyvillage.wisc.edu/
A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support. This site includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and much, much more!

National Council on Disability
http://www.ncd.gov/
The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate. NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

Quality Mall
http://qualitymall.org
A showcase of promising practices and innovations that promote quality of life for persons with developmental disabilities. The primary purpose of QualityMall.org is to collect and disseminate information related to or useful in promoting quality of life for persons with developmental disabilities. It is not a retailer or vendor of products or services, but uses the theme of a shopping mall to help connect visitors to the best products and services available. People involved with, experienced with, or simply aware of such services are invited to visit QualityMall.org, shop the many "stores," and make recommendations for new products and services.

Center on Human Policy
http://soeweb.syr.edu/thechp/
The Center on Human Policy (CHP) is a Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities. The Center is involved with a broad range of local, statewide, national and international activities, including policy studies, research, information and referral, advocacy, training and consultation, and information dissemination. Since its founding, the Center has been involved in the study and promotion of open settings (inclusive community opportunities) for people with disabilities.

EP (Exceptional Parent) Magazine
http://www.eparent.com
EP's on-line resource. Continuing 32 award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.

National Organization on Disability
http://www.nod.org
A site dedicated to community involvement, economic participation, and access to independence. The mission of the National Organization on Disability (N.O.D.) is to expand the participation and contribution of America's 54 million men, women and children with disabilities in all aspects of life. By raising disability awareness through programs and information, together we can work toward closing the participation gaps.

Council for Exceptional Children
http://cec.sped.org
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically under-served individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

IDEA Practices
http://www.ideapractices.org/
This Web site is brought to you by ASPIIRE (service providers) and ILIAD (administrators), who represent two of the four IDEA Partnerships. The IDEA Partnerships are four national projects funded by the U.S. Department of Education's Office of Special Education Programs (OSEP) to deliver a common message about the landmark 1997 reauthorization of the Individuals with Disabilities Education Act (IDEA). The IDEA Partnerships, working together for five years, inform professionals, families and the public about IDEA '97 and strategies to improve educational results for children and youth with disabilities.

National Information Center for Children and Youth with Disabilities
http://www.nichcy.org/
NICHCY is the national information center that provides information on disabilities and disability-related issues. Anyone can use our services-families, educators, administrators, journalists, students. Our special focus is children and youth (birth to age 22). This site provides information about: specific disabilities, special education and related services for children in school, individualized education programs, parent materials, disability organizations, professional associations, education rights and what the law requires, early intervention services for infants and toddlers, transition to adult life, and much, much more!

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