The President's Emergency Plan for AIDS Relief: First Annual Report to Congress Released by the Office of the U.S. Global AIDS Coordinator May 23, 2005 Chapter 9 -- Improving Accountability and Programming
Accountability for results is a cornerstone of the President’s Emergency Plan for AIDS Relief (PEPFAR/Emergency Plan) and serves as the basis for program and policy development, implementation, and improvement. Fiscal year 2004 program accomplishments in prevention, capacity building, care, and treatment provide critical information for future funding cycles, mid-course program adjustments, and the identification of best practices in the field. Collecting and analyzing HIV/AIDS data for program accountability and improvement in the developing world poses certain strategic information challenges. Tracking patients and maintaining records is particularly difficult in under-resourced settings. Often, over-extended physicians and other health practitioners focus on delivering the best quality services as quickly as possible, with little time to focus on patient record-keeping. A key contributor to patient record-keeping and timely information-sharing is a robust health management information system infrastructure. In many of the focus countries, lack of such an infrastructure presents a challenge to both routine monitoring and program evaluation efforts. In response to these challenges, the Emergency Plan has begun implementation of key strategic information systems identified in the U.S. Five-Year Global HIV/AIDS Strategy. Such strategies include the improvement of surveillance activities to ensure a clearer understanding of the epidemic; accurate reporting to enhance program accountability; design and upgrade of information management systems to support patient tracking and program monitoring activities; and prioritization and coordination of special studies across countries. In addition, the Office of the U.S. Global AIDS Coordinator (OGAC) has engaged in a number of activities to build country capacity for strategic information and to enhance coordination and cooperation across U.S. Government agencies and external donor organizations, such as UNAIDS, WHO, and the Global Fund to Fight AIDS, Tuberculosis and Malaria. Surveillance Information to Track HIV Incidence, Prevalence, and Mortality Surveillance efforts are also providing improved information for Emergency Plan programs in Botswana. One effort focuses on improving the tracking of TB cases through an electronic TB register. This system has been successful and Botswana reported more than 10,000 HIV-positive individuals receiving TB care and treatment in an AIDS palliative care setting during fiscal year 2004. Key fiscal year 2004 outcomes of HIV surveillance efforts also include improved methods for estimating and projecting HIV prevalence and incidence, an improved definition for AIDS case reporting, and development of methods for antiretroviral drug resistance surveillance. A number of baseline data collection activities were undertaken, establishing baselines for measuring changes in the pandemic over time. Program Reporting and Monitoring Mechanisms Health Management Information Systems A number of countries have already seen improvements in their information systems. In Ethiopia, for example, Emergency Plan funding is facilitating the adoption of a national monitoring and evaluation plan and framework in site-level database systems for prevention of mother-to-child HIV transmission, TB, antiretroviral treatment, and counseling and testing, and is also expanding public health information systems to all Ministry of Health offices. To begin this work, U.S.-supported program staff created operations manuals for implementers, developed database formats, and trained information officers, 400 to 600 of whom will be trained by early 2005. In Namibia, the Emergency Plan is also working with the National Planning Commission, the Ministry of Health, the United Nations Development Program, and others to improve reporting of estimates and projections on the impact of HIV/AIDS on key demographic and health indicators. The Emergency Plan is providing technical assistance to the central statistics office and the monitoring and evaluation unit in the Ministry of Health. In Botswana, the President, his cabinet, and other stakeholders have advocated a centralized computer-based information management system. The current system produces quarterly paper-based reports on program implementation at the national and district levels. It is highly dependent on information inputs from sources such as government and private health sectors, institutions, individuals, and financiers and donors across Botswana. U.S. support will allow for further development of the framework and full implementation of monitoring and evaluation services for all sectors by 2006. An example of how focus countries are benefiting from tools developed in the United States comes from Uganda, where Emergency Plan funds are being used to adapt and test the U.S. Health Resources and Services Administration’s CAREWare, an electronic medical record and reporting system first developed to track HIV patients in the United States. Key accomplishments in fiscal year 2004 included publication in May of a concept paper, Developing Facility-Based Management Information Systems, which describes the strategy for achieving Emergency Plan HMIS objectives. Three countries -- Haiti, Côte d’Ivoire, and Mozambique -- initiated HMIS planning and assessment in fiscal year 2004. Recommendations and action steps were developed for each country and are in various stages of implementation. Five additional U.S. missions are anticipated to participate in the HMIS planning and assessment process in fiscal year 2005. An HMIS Assessment Guide has been developed to assist U.S. missions that have not yet initiated an HMIS assessment. An inventory was also developed to support U.S. missions that plan to use software in the management of patients receiving ART. This inventory describes about a dozen software packages, including their functions, system specifications, availability, and suitability to various settings. Two of the software tools, the CAREWare tool for patient care and management and the Epi-Info data analysis tool of the Centers for Disease Control and Prevention (CDC), were modified to make them more suitable for Emergency Plan requirements. In fiscal year 2005, a new area of focus for the inventory will be laboratory information systems. Additionally, software packages currently supported by Emergency Plan funds, including CAREWare and the UNAIDS Country Response Information System, will be updated and/or enhanced. Enhanced support and management of geographical information systems activities is anticipated, as well as support to WHO for its HealthMapper and Service Availability Mapping projects. Identifying Best Practices In 2004, OGAC convened a standing subcommittee on targeted evaluations under its Scientific Steering Committee. This group of U.S. Government program implementers, evaluators, and research scientists has agreed upon critical evaluation questions for the first year of Emergency Plan implementation and conducted a technical review for proposed targeted evaluation activities in the fiscal year 2005 country operational plans. Based on input from this technical review, OGAC will determine the need for centralized mechanisms for technical assistance to countries implementing studies and address gaps in the evaluation agenda. Joint U.S. Government Planning Through coordinated strategic information planning, in fiscal year 2004 U.S. Government agency headquarters and country teams achieved the following: In addition, U.S. missions in focus countries have established strategic information functions with staff for program reporting and gathering surveillance impact and outcome information. Table 9.1 summarizes the results of capacity building efforts for strategic information in Emergency Plan focus countries during 2004. International Coordination Beginning in 2004 and continuing into 2005, OGAC pursued harmonization efforts with WHO, UNAIDS, and the Global Fund. In late 2004, senior strategic information managers from the Global Fund and Emergency Plan drafted plans for coordination in four new systems areas - joint monitoring and evaluation systems (to be created in 2005); a central technical support body for monitoring and evaluation; jointly developed estimation methods and data release dates; and coordinated evaluation plans. Additionally, data confidentiality and international data collection protocols were discussed and are now being established and reinforced. To ensure that data systems are suited to resource-poor settings and enable easy data sharing, in 2005 the Global Fund and OGAC have agreed to: The Emergency Plan, the Global Fund, WHO, and UNAIDS have also agreed to an ongoing dialogue with regard to study results and epidemiologic estimates. Donors saw a need to coordinate national WHO and UNAIDS epidemiologic estimates to enhance consistency in reporting, with attention to clarifying what the estimates can include and how they relate to Emergency Plan and Global Fund epidemiologic data. Among the needs are consistent estimates of people on ART and how to attribute the contributions of various donors. Donors also recognized a need for coordination on information collected about funded programs. Plans for the future include: Key Challenges and Future Directions |