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National MPS Society, Inc.
4220 NC Highway 55
Suite 140
Durham,  NC  27713
Tel: 877-MPS-1001 919-806-0101
Fax: 919-806-2055
EMail: info@mpssociety.org
http://www.mpssociety.org

Description: Dedicated to finding cures for mucopolysaccharidosis (MPS) and related diseases. Provides hope and support for affected individuals and their families by sponsoring research, advocacy, and awareness programs.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.