When Your Child Is Diagnosed with DIABETES:
PARENTS' QUESTIONS for the Health Care Team
Parents of children with diabetes often have concerns about the disease, its impact on their family, and how to keep their children safe and healthy. Use these questions to talk with your child's health care team and learn about your child's diabetes care needs at diagnosis and later on as well. To find out more about possible answers, use the links under each set of questions.
What are the different types of diabetes?
What does this mean for other members of our family?
What are my child's treatment goals?
What other health care team members can help care for our child's diabetes?
How can we work together as a family to help our child?
How can we help our child check blood glucose, take insulin, eat healthy foods, be more active, and learn about diabetes?
Who can help us work together as a family?
What emotional issues might our child and family face?
Will diabetes affect the way our child behaves?
When do we start letting our child manage his/her own diabetes care?
Who can help us cope with these issues?
Should we tell friends and family about our child's diabetes?
Who can help us if we don't have medical insurance?
What resources are there to help our child in school?
What research is going on?
Three large nation-wide studies are under way.
The TODAY study wants to find the best ways to care for type 2 diabetes in children and teens and has begun in 13 medical sites. To find out if you can join go to www.TODAYstudy.org.
Type 1 Diabetes TrialNet is a group of studies looking at ways to prevent or to treat type 1 diabetes early. To find out if you can join go to www.diabetestrialnet.org/public.html or call1- 800- HALT- DM1(1-800-425-8361).
The SEARCH for Diabetes in Youth study will help us learn about how type 1 and type 2 diabetes differ, what medical problems arise, the health care children receive, and how diabetes shapes their daily lives. www.searchfordiabetes.org
A lot of other research is going on. To find studies in your area, talk to your health care team and visit the JDRF and ADA (links below).
Additional Resources for Parents and Children
National Diabetes Education Program
www.ndep.nih.gov or call 1-800-438-5383
Juvenile Diabetes Research Foundation International (JDRF)
www.jdrf.org or call 1-800-223-1138
Children with Diabetes
American Diabetes Association ( ADA )
www.diabetes.org or call 1-800-DIABETES (1-800-342-2383)
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