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     September 21, 2008 Volume 14, Number 37 First Published in June 1995     
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Upcoming CWD Conferences and Events
Seattle 2008   CWD Focus on Technology
Marriott Bethesda North
Bethesda, Maryland
September 26-28, 2008

Marco 2009   CWD Focus on Best Practices
Marco Island Marriott Resort
Marco Island, Florida
January 1-4, 2009

Orlando 2009   Friends for Life 2009 Conference and Expo
July 7-12, 2009
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- Quilt D.C. 2008, Orlando, Seattle, Marco Island, Minneapolis, Toronto
-- Upcoming CWD Conferences and Events


Headlines
Beginning on Wednesday, October 1, 2008, the weekly What's New in Children with Diabetes email newsletter will change to Wednesday delivery from Sunday.

Our report from the Friends for Life 2008 conference is now online.

We are running a survey about issues surrounding transitioning from pediatric to adult care to help the National Diabetes Education Program, a federally-sponsored initiative of the NIH and CDC.

If you value having access to the full text of research paid for by your tax dollars, Tell Congress you oppose the Fair Copyright in Research Works Act.

A Randomized, Controlled Trial Comparing Twice-a-Day Insulin Glargine Mixed With Rapid-Acting Insulin Analogs Versus Standard Neutral Protamine Hagedorn (NPH) Therapy in Newly Diagnosed Type 1 Diabetes. Free full text available in HTML and PDF formats.

In vivo reprogramming of adult pancreatic exocrine cells to beta-cells. See also Diabetes researchers convert pancreas cells to produce insulin, New technique finds a faster way to change one cell type into another, and Researchers Create Insulin-Producing Cells from Adult Pancreatic Cells.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring?

Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

In Type 1 diabetic patients with good glycaemic control, blood glucose variability is lower during continuous subcutaneous insulin infusion than during multiple daily injections with insulin glargine.

Continuous subcutaneous insulin infusion therapy: effects on quality of life. Free full text available in PDF format.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

Strong association between time watching television and blood glucose control in children and adolescents with type-1 diabetes mellitus.

Every family is encouraged to download a copy of Helping the Student with Diabetes Succeed: A Guide for School Personnel from the web site of the National Diabetes Education Program, a joint program of the National Institutes of Health and the Centers for Disease Control and Prevention. If the 88-page PDF file is too large for you to download, you can request a free copy of the document by printing the order form and faxing or mailing it to the NDEP.

The ADA's Legal Rights of Students with Diabetes is an authoritative and comprehensive tool for families seeking to ensure that their children with diabetes are afforded all of their legal rights while they are at school. This document is indispensable for all families. You can download the complete PDF from the ADA web site or from the Children with Diabetes web site.

The Family Support Network now includes over 3,880 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 677 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
You can read the transcript of last week's chat about the Friends for Life: Orlando 2009.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Featured Book of the Week

[RECOMMENDED!] Dare to Dream: Flying Solo With Diabetes by Douglas Cairns. Published by Albyne Press, 2005. $16.95. ISBN 0954992903.

Book cover   "You are a diabetic, and you were a pilot." With those words, Douglas Cairns' career as an RAF fighter pilot came to an abrupt end. But his love of flying never waned. Several years later, after learning that the US will grant a pilot's license to people with type 1 diabetes, Douglas headed to America to return to doing what he loved -- flying. And fly he did. Beginning in Omaha, Nebraska on September 24, 2002, Douglas, along with a safety pilot, flew around the world in 159 days. Dare to Dream is a fabulous story of this flight and the challenges associated with flying a small plane around the world. It's also a testament to one person's refusal to take no for an answer in the face of diabetes, and a reminder to all of us that being diagnosed with diabetes does not mean you have to put your dreams aside.
-- Jeff Hitchcock

  Order Dare to Dream: Flying Solo With Diabetes from The Diabetes Mall
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Does the signal for an insulin pump affect a cochlear implant processor or the processor affect the pump? (18 Sep 2008)
-- Answers to over 18,450 questions
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From the Diabetes Dictionary
Glucagon
A hormone that raises the level of glucose (sugar) in the blood. The alpha cells of the pancreas, in areas called the islets of Langerhans, make glucagon when the body needs to put more sugar into the blood. An injectable form of glucagon is available as a prescription item, for use to treat severe insulin reactions. The glucagon is injected and raises blood glucose levels within a half-hour. It is frequently recommended that people with Type 1 diabetes, and other people taking insulin injections, have a family member learn how to administer glucagon.

-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

The University of Florida is running a study about Cord Blood and Diabetes.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies


Diabetes Humor
My seven year old daughter was recently diagnosed with diabetes. A couple of weeks ago, my five year old son Brian told me that he wasn't feeling well because he cut his finger and saw the "hydrates coming out."
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... you return a pair of cargo pants because the pocket is too small for the blood meter and a roll of glucose tabs.
--More Parent Humor


Living With Diabetes
Photo
-- More children with diabetes
 

My name is Rachel. I am 11 years old and diagnosed with diabetes when I was 20 months old. I was diagnosed with a blood sugar of over 600. My parents and grandparents had been traveling in Aruba when I got sick. I spent many hours in the ER in Aruba and the doctors there told my mom I had the flu. A young woman on the plane home knew what was going on and had me picked up by an ambulance as soon as the plane landed. Mom calls Sarah my guardian angel, but I just call her friend.

I live in Massachusetts. I love to dance and perform. I belong to a dance studio. I have been dancing for 7 years. I love being on stage and having the lights on me.

I spend most of my summers at the Clara Barton camp for girls with diabetes. I love that at camp diabetes is the norm. I don't always enjoy having diabetes. There are many great thing though, I have met so many wonderful people through camp and support group meetings my mom runs. For us diabetes has become just one more thing in our routine. I always laugh when I call mom after school and tell her my blood sugar first thing and my mom will say ok but first how was your day.

-- Visit Rachel's page

 

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Current Poll

  What insulin regimen do you or your child use most often?  
 

Insulin Pump Therapy

 
   

Pump - NovoLog

 
   

Pump - Apidra

 
   

Pump - Humalog

 
   

Pump - Regular

 
 

Lantus Basal-Bolus

 
   

Lantus & NovoLog

 
   

Lantus & Apidra

 
   

Lantus & Humalog

 
   

Lantus & Regular

 
 

Levemir Basal-Bolus

 
   

Levemir & NovoLog

 
   

Levemir & Apidra

 
   

Levemir & Humalog

 
   

Levemir & Regular

 
 

NPH-based Therapy

 
   

NPH & NovoLog, Humalog or Apidra

 
   

NPH & Regular

 
 

Other

 
   

Pre-mixed insulin

 
   

Other insulin regimen

 
   

I don't use insulin

 


 

Poll Results

 

What insulin regimen do you or your child use most often?

 
 

Insulin Pump Therapy

 
     

Pump - NovoLog

 
 

48%

 

 
     

Pump - Apidra

 
 

2%

 

 
     

Pump - Humalog

 
 

14%

 

 
     

Pump - Regular

 
 

0%

 

 

 
 

Lantus Basal-Bolus

 
     

Lantus & NovoLog

 
 

12%

 

 
     

Lantus & Apidra

 
 

0%

 

 

 
     

Lantus & Humalog

 
 

9%

 

 
     

Lantus & Regular

 
 

0%

 

 

 
 

Levemir Basal-Bolus

 
     

Levemir & NovoLog

 
 

2%

 

 
     

Levemir & Apidra

 
 

0%

 

 

 
     

Levemir & Humalog

 
 

2%

 

 
     

Levemir & Regular

 
 

0%

 

 

 
 

NPH-based Therapy

 
     

NPH & NovoLog, Humalog or Apidra

 
 

4%

 

 
     

NPH & Regular

 
 

0%

 

 

 
 

Other

 
     

Pre-mixed insulin

 
 

2%

 

 
     

Other insulin regimen

 
 

0%

 

 

 
     

I don't use insulin

 
 

0%

 

 

 
-- View Results & More Polls

Diabetes Marketplace
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Diabetes Marketplace

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Strawberry Smoothy
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Top E-mailed Pages
1. Information for Teachers
2. Bethesda 2008 Conference
3. 2009 Conference and Expo
4. Disetronic
5. One-Page Care Guide
6. Insulin Pump Therapy
7. Sample 504 and IEP Plans
8. Type 2 Diabetes in Children
9. Readers' Favorite Recipes
10. Strawberry Smoothy
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Top Rated Pages
1.   Nick Jonas Reveals He Has Diabetes
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3.   Continuous Glucose Sensors
4.   Chat Room Guest Login
5.   Diabetes Warning Signs
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7.   Eat Smart Nutrition Scale
8.   What is Type 1 Diabetes?
9.   Reduced-Sugar Cupcakes
10.   Sample 504 and IEP Plans
Top 20 Rated Pages

Find US Schools By
Blood Testing Rules

Find schools where blood testing is allowed


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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Sun Sep 21 09:49:54 2008
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