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New Information from NINDS Application processes at NIH are changing. Applicant organizations are encouraged to start preparing for this transition by registering with Grants.gov and NIH eRA Commons now.

Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)
Release Date: February 8, 2008
Announcement Number: RFA-OD-08-001
Application Receipt Date:
August 20, 2008   
Letter of Intent Date: July 20, 2008

Funding Contact: Danilo Tagle, Ph.D.
Program Area: Neurogenetics

Brief Description:
The NIH ORD, NIAMS, NIDDK, NICHD, NINDS, NIA, NIAAA, NCI, NIDCR and NHLBI invite new and renewal cooperative agreement applications to continue the Rare Diseases Clinical Research Network (RDCRN). The Network has two main components: Rare Diseases Clinical Research Consortia (RDCRC) and a Data Management and Coordinating Center (DMCC) (formerly known as Data Technology Coordinating Center, DTCC). The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement applications for RDCRCs that individually focus on a subset of related rare diseases. A separate FOA has been published to invite new and renewal cooperative agreement applications for DMCC at http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-002.html. The purpose of the Network is to facilitate clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I , II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects 4) a test bed for distributed clinical data management that incorporates novel approaches and technologies for data management, data mining, and data sharing across rare diseases, data types, and platforms; and 5) access to information related to rare diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay public. Items 1-3 and 5 must be addressed in RDCRC application and item 4 must be addressed in DMCC application (http://grants.nih.gov/grants/guide/rfa-files/RFA-OD-08-002.html)

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