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NHLBI-Related Public Interest Organizations

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Focus of Organization: Cardiovascular Diseases | Lung Diseases | Blood Diseases and Resources | Sleep Disorders | Other Public Interest Organizations

Organizations Focusing on Cardiovascular Diseases
Adult Congenital Heart Association American Heart Association
Cardiac Arrhythmias Research and Education (C.A.R.E.) Foundation, Inc. CFC International (cardio-facio-cutaneous syndrome)
Children's Cardiomyopathy Foundation Children's Heart Foundation
Congenital Heart Information Network (C.H.I.N.) HELLP Syndrome Society, Inc.
Kawasaki Disease Foundation Kids with Heart: National Association for Children's Heart Disorders, Inc.
Mended Hearts, Inc. National Stroke Association
Preeclampsia Foundation Vascular Disease Foundation
WomenHeart: the National Coalition for Women with Heart Disease

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Organizations Focusing on Lung Diseases
Allergy and Asthma Network - Mothers of Asthmatics, Inc. Alpha 1 Advocacy Alliance
Alpha 1 Association Alpha 1 Foundation
American Association for Respiratory Care (AARC) Consumer Roundtable American Lung Association
ARDS Foundation (acute respiratory distress syndrome) Asthma and Allergy Foundation of America
Central Indiana Sarcoidosis Support Group Children's Interstitial Lung Disease (ChILD) Foundation
Coalition for Pulmonary Fibrosis COPD Foundation (chronic obstructive pulmonary disease)
COPD International (chronic obstructive pulmonary disease) COPD-Alert (chronic obstructive pulmonary disease)
Cystic Fibrosis Foundation Emphysema Foundation for our Rights to Survive (EFFORTS)
Foundation for Sarcoidosis Research LAM Foundation (lymphangioleiomyomatosis)
LAM Treatment Alliance (lymphangioleiomyomatosis) Let's Breath Sarcoidosis Support
National Emphysema/COPD Association (NECA) National Sarcoidosis Networking Society
National Sarcoidosis Resource Center PCD Foundation (primary ciliary dyskinesia)
Pulmonary Fibrosis Foundation Pulmonary Hypertension Association, Inc.
Sarcoid Networking Association Sarcoidosis Awareness Network
Sarcoidosis Network Foundation, Inc. Sarcoidosis of the Midlands of South Carolina
Sarcoidosis Research Institute Sarcoidosis Research Support Group
Sarcoidosis Support Group of Greater Washington

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Organizations Focusing on Blood Diseases and Resources
American Hemochromatosis Society (AHS) Aplastic Anemia and MDS International Foundation, Inc. (bone marrow diseases)
Cooley's Anemia Foundation, Inc. (thalassemia) Daniella Maria Arturi Foundation (Diamond-Blackfan anemia)
Diamond Blackfan Anemia Foundation, Inc. Familial TTP Foundation (thrombotic thrombocytopenic purpura)
Fanconi Anemia Research Fund, Inc. Foundation for Children with Atypical HUS (hemolytic uremic syndrome)
Hemophilia Federation of America HHT Foundation International, Inc. (hereditary hemorrhagic telangiectasia, Osler Weber Rendu syndrome)
Histiocytosis Association of America Iron Disorders Institute
Leukemia and Lymphoma Society Lymphoma Research Foundation
National Alliance for Thrombosis and Thrombophilia (NATT) National Hemophilia Foundation
Neutropenia Support Association, Inc. Platelet Disorder Support Association
Sickle Cell Disease Association of America, Inc.

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Organizations Focusing on Sleep Disorders
American Sleep Apnea Association First Candle/SIDS Alliance
Narcolepsy Network, Inc. National Sleep Foundation
Restless Legs Syndrome Foundation

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Other Public Interest Organizations
American Autoimmune Related Diseases Association American Obesity Association
Barth Syndrome Foundation, Inc. Caring Voice Coalition, Inc.
CFIDS Association of America, Inc.
(chronic fatigue and immune dysfunction syndrome)
Cushing's Support and Research Foundation
Hermansky-Pudlak Syndrome Network, Inc. Juvenile Diabetes Research Foundation International
Klippel-Trenaunay Support Group Lymphatic Research Foundation, Inc.
Malignant Hyperthermia Association of the United States (MHAUS) National Foundation for Transplants
National Lymphedema Network, Inc. National Marfan Foundation
National Minority Organ and Tissue Transplant Education Program (MOTTEP) National Organization for Rare Disorders, Inc.
Noonan Syndrome Support Group, Inc. Parent Project Muscular Dystrophy
Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER) Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia and Orthostatic Intolerance
Progeria Research Foundation, Inc. PXE International, Inc. (pseudoxanthoma elasticum)
Scleroderma Foundation S.L.E. Foundation, Inc. (systemic lupus erythematosus)
TMJ Association, Ltd. (temporomandibular joint disease) TOPS Club, Inc. (Take Off Pounds Sensibly)
Tuberous Sclerosis Alliance Wegener's Granulomatosis Association

Last modified: 6/9/06
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