Barbosa M; International Conference on AIDS.
Int Conf AIDS. 1996 Jul 7-12; 11: 388 (abstract no. Tu.D.2719).
Barbosa M
Issues: Cooperation between scientists and community based organizations in HIV/AIDS research. Project: The primary objective of the Praca Onze Project is to determine the HIV seroincidence in a cohort of 1,000 homosexual or bisexual men aged 18 to 50. Considering that homosexual behaviors are not restricted to gay groups, the investigators identified Non-Governmental Organizations (NGOs) that are active in HIV prevention, in AIDS patient care or, especially, Human Rights militants. Formal working relationships were established and the NGOs participated in the implementation of the project and in the educational activities provided to study volunteers. The organizations involved are Universidade Federal do Rio de Janeiro, Johns Hopkins University (USA) and the NGOs Grupo Pela Vidda/RJ, Grupo Pela Vidda/Niteroi and Grupo NOSS. Results: (1) Ten activists trained to coordinate workshops; (2) 37 workshops carried out on Safer Sex, living with AIDS, HIV/AIDS Vaccines, AIDS: questions and answers and Volunteers for research projects; (3) Special workshops were carried out for investigators, other NGOs, business companies, Gay projects, heal care providers, thus enlarging their role as recruitment activities; (4) pilot testing of the study questionnaires. Learned lessons: The direct participation of NGOs in research projects effectively enlarges the spectrum of actors in the complex field of AIDS research. The integration of academic and non-academic institutions requires ample and transparent negotiations between the responsible individuals, thus allowing the resulting relationship to be based on mutual trust. Formal agreements, development of subprojects and regular meetings are important indicators of this possibility. (This study was supported by a grant from Family Health International)
Publication Types:
Keywords:
- Acquired Immunodeficiency Syndrome
- Brazil
- HIV Infections
- HIV Seropositivity
- Health Services
- Homosexuality, Male
- Human Rights
- Humans
- Male
- Organizations
- Research
- education
- organization & administration
Other ID:
UI: 102218787
From Meeting Abstracts