NINDS Aicardi Syndrome Information Page

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What is Aicardi Syndrome?

Organizations

What is Aicardi Syndrome?

Under revision.

Select this link to view a list of studies currently seeking patients.

Organizations

Aicardi Syndrome Foundation
P.O. Box 3202
St. Charles, IL   60174
http://www.aicardisyndrome.org
Tel: 800-374-8518

Aicardi Syndrome Newsletter, Inc.
1510 Polo Fields Court
Louisville, KY   40245
aicnews@aol.com
http://www.aicardisyndrome.org
Tel: 502-244-9152

The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD   20910
Info@thearc.org
http://www.thearc.org
Tel: 301-565-3842
Fax: 301-565-3843 or -5342

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT   06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD   20892-2510
2020@nei.nih.gov
http://www.nei.nih.gov
Tel: 301-496-5248

National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda, MD   20892-9663
nimhinfo@nih.gov
http://www.nimh.nih.gov
Tel: 301-443-4513/866-615-NIMH (-6464) 301-443-8431 (TTY)
Fax: 301-443-4279

 


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Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892



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Last updated September 15, 2008