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Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ   85718-3208 mda@mdausa.org http://www.mda.org Tel: 520-529-2000 800-344-4863 Fax: 520-529-5300	United Mitochondrial Disease Foundation 8085 Saltsburg Road Suite 201 Pittsburgh, PA   15239 info@umdf.org http://www.umdf.org Tel: 412-793-8077 Fax: 412-793-6477
National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT   06813-1968 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291