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Constituents' Corner |
We invite you to use this space that we reserve for you to share your successes and opinions. You may submit your ideas and articles for future issues of the FYI from the NHLBI to NHLBI.Listens@nih.gov.
From First Candle/SIDS Alliance
The First Candle/SIDS Alliance and the International Stillbirth Alliance are
co-sponsoring a conference on September 15-18, 2005, in Arlington, Virginia.
Titled “Together Making a World of Difference,” it will bring together
families, health professionals, and researchers from around the world to share
knowledge and experiences. To request conference materials, visit First Candle
or call 1-800-221-7437.
Submitted by Laura Reno, First Candle/SIDS Alliance
From The Mended Hearts, Inc.
Recognizing that heart disease affects all ages, Mended Hearts is now offering
support to parents and families of children through its Mended Little Hearts
program. The core of the new program is parent-to-parent visits based on the
visiting model developed by Mended Hearts. Dedicated to inspiring hope for parents
of children with heart defects or heart disease, the program will connect families
in crisis with others who have survived the shock of learning a child has a
heart problem and navigated the maze of medical decisions. Ongoing support through
group meetings, health education resources, and workshops is also offered.
Mended Little Hearts or Mended Hearts may be reached at 1-888-HEART99 (1-888-432-7899) or by visiting Mended Hearts. Mended Hearts is a nationwide patient-to-patient support group affiliated with the American Heart Association.
Submitted by Tim Elsner, The Mended Hearts, Inc.
From Pulmonary Hypertension Association
The Pulmonary Hypertension (PH) Association is hosting the 2005 PH Resource
Network Symposium: Learning Together, Moving Forward on September 30-October
1, 2005, in Bethesda, Maryland. Nurses, therapists, physician assistants, and
other PH treating medical professionals will gather for lively discussions,
diverse educational sessions, and opportunities to meet and network. For more
information, visit Pulmonary Hypertension Association.
Submitted by Justine Elliot, Pulmonary Hypertension Association