Also called: Also called: Electronic Health Records, Patient Health Record, Personal Health Record
You've probably seen your chart at your doctor's office. In fact, you may have charts at several doctors' offices. If you've been in the hospital, you have a chart there, too. To keep track of all this information, it's a good idea to keep your own records.
What kind of information would you put in a personal health record? You could start with
- Your name, birth date, blood type and emergency contact
- Date of last physical
- Dates and results of tests and screenings
- Major illnesses and surgeries, with dates
- A list of your medicines, dosages and how long you've taken them
- Any allergies
- Any chronic diseases
- Any history of illnesses in your family
- Your Personal Health Information: A Guided Tour(American Health Information Management Association) - http://www.myphr.com/resources/tour.asp
- Personal Health Records: FAQs(American Health Information Management Association) - http://www.myphr.com/faqs/index.asp
- Common Privacy Myths(American Health Information Management Association) - http://www.myphr.com/rights/common_myths.asp
- Confidentiality(American Psychiatric Association) - http://healthyminds.org/confidentiality.cfm
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Privacy and Your Health Information(Dept. of Health and Human Services, Office for Civil Rights) - Links to PDF - http://www.hhs.gov/ocr/hipaa/consumer_summary.pdf
Also available in Spanish http://www.hhs.gov/ocr/hipaa/consumer_summarysp.pdf
- Creating a Health Journal(American Academy of Family Physicians) - http://familydoctor.org/online/famdocen/home/pat-advocacy/healthcare/838.printerview.html
- Information for Caregivers(American Health Information Management Association) - http://www.myphr.com/rights/caregivers_info.asp
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Letting Your Personal Health Information Be Used and Shared for Research
(National Institutes of Health) - http://privacyruleandresearch.nih.gov/patients.asp
- Starting a Personal Health Record(American Health Information Management Association) - http://www.myphr.com/your_record/index.asp
- Video on Personal Health Records(Agency for Healthcare Research and Quality) - http://www.ahrq.gov/consumer/phrvid.htm
References and abstracts from MEDLINE/PubMed (National Library of Medicine)
- Article: PHRs raise many issues. - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=18717136&tool=MedlinePlus
- Article: Jumpstarting access to personal information with rights-based legislation. - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=18672728&tool=MedlinePlus
- Article: Openness, not privacy. Web site promotes sharing disease successes, hardships. - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=18604972&tool=MedlinePlus
- Personal Medical Records -- see more articles - http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=search&db=pubmed&term=patient+access+to+records[majr]+OR+(access+to+information[majr:noexp]+AND+confidentiality[majr])+AND+english[la]+NOT+letter[pt]&doptcmdl=summary&cmd_current=Limits&pmfilter_EDatLimit=last+1+Year&tool=MedlinePlus
- Dept. of Health and Human Services, Office for Civil Rights - http://www.hhs.gov/ocr/
- HIPAA Basic Facts(Centers for Disease Control and Prevention) - http://www.cdc.gov/privacyrule/privacy-HIPAAfacts.htm
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How to File a Health Information Privacy Complaint with the Office for Civil Rights(Dept. of Health and Human Services, Office for Civil Rights) - http://www.hhs.gov/ocr/privacyhowtofile.htm
Also available in Spanish http://www.hhs.gov/ocr/privacyhowtofilesp.pdf
- Notice of Privacy Practices for the Original Medicare Plan(Centers for Medicare & Medicaid Services) - http://www.medicare.gov/privacypractices.asp
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Your Health Information Privacy Rights(Dept. of Health and Human Services, Office for Civil Rights) - Links to PDF - http://www.hhs.gov/ocr/hipaa/consumer_rights.pdf
Also available in Spanish http://www.hhs.gov/ocr/hipaa/consumer_rightssp.pdf
- Your Health Information Rights(American Health Information Management Association) - http://www.myphr.com/rights/index.asp
- Family History - http://www.nlm.nih.gov/medlineplus/familyhistory.html
- Patient Safety - http://www.nlm.nih.gov/medlineplus/patientsafety.html
- Health System - http://www.nlm.nih.gov/medlineplus/healthsystem.html
- Personal Health Issues - http://www.nlm.nih.gov/medlineplus/personalhealthissues.html
- Social/Family Issues - http://www.nlm.nih.gov/medlineplus/socialfamilyissues.html