Illinois
Principal Investigator: Alonso, Estella
Title: Quality of Life in Children After Liver Transplantation
Institution: Children's Memorial Hospital, Chicago, IL
E-mail: e-alonso@nwu.edu
Project Dates: 09/30/02-09/29/04
Project No.: R03 HS13270
Summary: This cross-sectional study will: (1) evaluate 150 children aged 12-18 at the 2-year anniversary of their transplant, (2) describe the health-related quality of life of children who survive liver transplantation, and (3) examine the impact of disease severity at transplant and the type of graft received on long-term health related quality of life.
Principal Investigator: Ariza, Adolfo
Title: Piloting Tools to Improve Nutritional Health in Primary Care
Institution: Children's Memorial Hospital, Chicago, IL
E-mail: aariza@childrensmemorial.org
Project Dates: 09/30/03-12/31/04
Project No.: R03 HS14431
Summary: This pilot study will test and refine the implementation of a computerized system to aid health providers in the interpretation of child growth and the routine delivery of nutritional counseling in two diverse Pediatric Practice Research Groups. It is designed to provide sufficient data to support widespread evaluation of the program across an array of diverse practice settings. The project will: (1) determine changes effected by the program in the rates of identification of overweight or at risk for overweight children, in the provision of counseling on healthy behaviors, and in patient flow; (2) assess practice use of and reactions to the new systems; (3) obtain feedback leading to improvements in the proposed changes to common practice processes and the software; (4) examine the cost of implementing this system. Participants included in this study are expected to be Hispanic and African-American children.
Principal Investigator: Baker, Alison
Title: Child Abuse Recognition, Research, Education, and Translation (CARRET) Conference—September 14-15, 2006 (Elk Grove Village, IL)
Institution: American Academy of Pediatrics, Elk Grove Village, IL
E-mail: abaker@aap.org
Project Dates: 04/01/06-03/31/07
Project No.: R13 HS16359
Summary: The purpose of this conference was to bring together a multidisciplinary group of 35-40 professionals who treat, manage, and advocate for maltreated children, to discuss the results of a recently completed study, "Child Abuse Recognition Experience Study (CARES)," and other studies that examine health care provider decisionmaking related to possible child abuse. The conference had three goals: (1) to understand the roles and relationships between health care professionals, investigative agencies, and the legal system; (2) to develop strategies for enhancing physicians' capabilities and confidence in their reporting of suspected child abuse and/or neglect; and (3) to enhance working relationships among the participants and striving for the implementation of strategies developed during the conference, including dissemination of the results.
Principal Investigator: Binns, Helen
Title: Pediatric Practice Research Group (PPRG): Retooling for the 21st Century, Phase 2
Institution: Children's Memorial Hospital, Chicago, IL
E-mail: hbinns@northwestern.edu
Project Dates: 09/30/01-09/29/02
Project No.: U01 HS11248
Summary: The aims of this project are to: continue to examine methods of computerized data collection and develop a plan for phased trials of such in the practice setting; strategize with PPRG physicians on ways to implement studies that lead to enhanced patient care; and conduct a National Ambulatory Medical Care Survey among willing PPRG practitioners to examine the challenges and the diversity of clinic flow patterns.
Principal Investigator: Broos, Timothy
Title: Linking Rural Providers to Improve Patient Care and Health*
Institution: Katherine Shaw Bethea Hospital, Dixon, IL
E-mail: tbroos@ksbhospital.com
Project Dates: 09/30/04-09/29/05
Project No.: P20 HS015023
Summary: The aim of this project is to plan the development of a central electronic health record system that will facilitate standards-based data sharing of health information between a local acute care hospital, an associated medical group, the county health department; and the local behavioral health organizations This study will provide coordination of quality and safe health care services for disparate groups, including rural, economically disadvantaged, ethnic/racial minority residents, and older and younger persons with special/complex health care needs.
Principal Investigator: Budetti, Peter
Title: Impact of Publicly Funded Programs on Child Safety Nets
Institution: Northwestern University, Evanston, IL
E-mail: p-budetti@northwestern.edu
Project Dates: 09/30/99-07/31/03
Project No.: U01 HS10423
Summary: This project will describe the relationship between characteristics of publicly funded programs and survival/financial viability of pediatric safety net providers; and determine the differential effects of Medicaid managed care and the SCHIP for pediatric safety net providers relative to pediatric federally qualified health centers.
Principal Investigator: Christoffel, Katherine K.
Title: PPRG: Retooling for the Twenty-First Century
Institution: Children's Memorial Hospital, Chicago, IL
E-mail: kkauferchristoffel@nwu.edu
Project Dates: 09/30/00-09/29/01
Project No.: P20 HS11248
Summary: This well-established regional pediatric network involves 43 Chicago-area primary care practices in urban, suburban, and rural areas. The planning grant will enhance the Practice-based Research Network's (PBRN) ability to enroll practices in low-income areas and its data collection methods.
Principal Investigator: Flaherty, Emalee G.
Title: CARES: Child Abuse Reporting Experience Study
Institution: Children's Memorial Hospital, Chicago, IL
E-mail: e-flaherty@nwu.edu
Project Dates: 09/30/01-09/29/05
Project No.: R0l HS10746
Summary: The aim of this prospective descriptive study of practitioner management of 16,000 childhood injuries is to provide the first comprehensive analysis of the management of suspected child abuse in primary care practices.
Principal Investigator: Lannon, Carole
Title: Partnership to Improve Children's Healthcare Quality
Institution: American Academy of Pediatrics, Elk Grove Village, IL
E-mail: carole.lannon@cchmc.org
Project Dates: 09/30/02-09/29/06
Project No.: U18 HS13721
Summary: This project will bring together pediatric organizations to use their coordinated efforts and resources to support large-scale activities that have been shown to be effective in improving care for children. These partners will engage state AAP chapters in evidence-based collaborative learning sessions as well as an interactive web-based quality improvement tool with the goal of supporting practice changes leading to improved care for children with ADHD.
Principal Investigator: Manheim, Larry
Title: Hospital Industry Restructuring: Impact on Safety Net
Institution: Northwestern University, Evanston, IL
E-mail: l-manheim@northwestern.edu
Project Dates: 09/30/99-09/29/01
Project No.: R01 HS10040
Summary: This project will study factors that affect participation of safety net hospitals in hospital systems or networks, the influence of affiliation on safety net hospitals' solvency, and the degree to which affiliation affects Medicaid patients' travel patterns for care. Includes children, but is not entirely child-focused.
Principal Investigator: Olson, Lynn
Title: Critical Challenges in Developing and Applying Pediatric Health Status and Outcome Measures—March 24-25, 2003 (Chicago, IL)
Institution: American Academy of Pediatrics, Elk Grove Village, IL
E-mail: lolson@aap.org
Project Dates: 05/01/02-04/03/03
Project No.: R13 HS12078
Summary: This invitational conference will bring together scholars and users to address both advances in the field of pediatric health status and outcome measurement, and barriers to application. The charge of the meeting is to consider the state-of-the art in pediatric patient-based measures (i.e., health status, quality of life, and functional outcomes).
Principal Investigator: Slora, Eric
Title: Translating National Pediatric PBRN Research into Practice
Institution: American Academy of Pediatrics, El Grove Village, IL
E-mail: eslora@aap.org
Project Dates: 09/30/02-09/29/04
Project No.: R21 HS13512
Summary: Pediatric Research in Office Settings (PROS), a national network of over 500 pediatric practices, will (1) develop a web-based information system for posting of confidential practice-specific feedback reports and enhance minority representation in patient populations served by pediatricians in PROS, and (2) test two different methods for translating research into practice on optimizing rates of pediatric immunizations.
Principal Investigator: Tompkins, Ronald
Title: Research Agenda for Pediatric Burns Outcomes Measurement—April 9-11, 2001
Institution: American Burn Association, Chicago, IL
E-mail: rtompkins@partners.org
Project Dates: 03/01/01-02/28/02
Project No.: R13 HS10950
Summary: Focusing on the issue of research on outcomes of care for burn injuries in children, this conference convened an invited group of clinicians and other experts on pediatric burn management and outcomes measurement to disseminate and discuss an instrument on functional outcomes in pediatric burn survivors. The conference will establish the need for a national research agenda for improving the quality of health care for children with burn injuries.
Principal Investigator: Wasserman, Richard C.
Title: Defining Patient Visits in a National Pediatric PBRN
Institution: The American Academy of Pediatrics, Elk Grove Village, IL
E-mail: rwasserm@zoo.uvm.edu
Project Dates: 09/30/01-09/29/02
Project No.: U01 HS11192
Summary: The aim of this study is to enroll 40 PROS (Pediatric Research in Office Settings) networks and the National Medical Association Pediatric Sections to compare a traditional paper/pencil data collection for the National Ambulatory Medical Care Survey (NAMCS) with NAMCS data collection accomplished via Web-based technologies. These analyses will compare completeness, accuracy, and practitioner satisfaction with data collected via the two methods.
Principal Investigator: Wasserman, Richard C.
Title: Enhancing the Capacities of a National Pediatric Practice-Based Research Network (PBRN)
Institution: American Academy of Pediatrics, Chicago, IL
E-mail: rwasserm@zoo.uvm.edu
Project Dates: 09/30/00-09/29/01
Project No.: P20 HS11192
Summary: This national PBRN's planning grant will address increasing involvement of minorities and rural populations in the network.
Principal Investigator: Weiss, Kevin
Title: National Asthma Disparities Conference—February 21-23, 2005
Institution: Northwestern University, Evanston, IL
E-mail: k-weiss@northwestern.edu
Project Dates: 02/21/05-08/31/05
Project No.: R13 HS15762
Summary: The purpose of this 2-day conference was to develop a parsimonious set of recommendations to serve as "next steps," for the research, clinical, policy, and consumer communities to use in reducing asthma disparities. Key issues were reviewed underlying asthma health disparities, current research, clinical care, and policy to address this problem. These recommendations will help reduce these disparities through new research opportunities, proposed new directions in clinical and public policy, and innovative consumer strategies to promote change. Additionally, a set of core dissemination tools will be developed and provided to key audiences as a source to communicate conference recommendations.
Principal Investigator: Weiss, Kevin
Title: Pediatric Asthma Care Patient Outcomes Research Team (Port) II
Institution: Rush-Presbyterian-St. Lukes Medical Ctr, Chicago, IL
E-mail: k-weiss@northwestern.edu
Project Dates: 09/30/96-09/29/01
Project No.: R01 HS08368
Summary: This large, 5-year randomized clinical trial will test the cost-effectiveness of recently developed practice guidelines designed to reduce asthma morbidity among children. In addition, researchers will test new educational and organizational approaches to deliver pediatric asthma care in managed care settings. The National Heart, Lung, and Blood Institute, which developed the guideline, is contributing to this study.
*Project includes children or children's health care issues but does not focus exclusively on children.
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