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Agenda
Updated September 3, 2008
Participation at the workshop will be announced on the website soon.
Time of Event |
Event |
|---|---|
| 6:30 a.m. | NIH security clearance at hotel lobby (Marriott Pooks-Hill) |
| 7:00 a.m. | Departure of bus from Marriott Pooks-Hill to the Cloisters at the NIH |
| 7:30 a.m. | Coffee and light refreshments |
| 7:50 a.m. |
Opening remarks for conference and introduction to agenda on CRMO/SAPHO |
| 8:00 a.m. | The clinical and genetic spectrum of CRMO/SAPHO
and an introduction to mouse models |
| 8:30 a.m. | Pathogenesis and clinical presentation of SAPHO
Robert Inman, M.D., Director of the Arthritis Center of Excellence, University of Toronto, Toronto, Canada |
| 8:50 a.m. | Skin lesions in CRMO/SAPHO and clinical scoring of severity
Edward Cowen, M.D., Staff Clinician, Dermatology, NCI, NIH, Bethesda, Maryland |
| 9:10 a.m. | Majeed syndrome
Hatem El-Shanti, M.D., Director, Shafallah Medical Genetics Center, Doha, Qatar |
| 9:30 a.m. | DIRA, a new autoinflammatory disease with new insights into CRMO? Raphaela Goldbach-Mansky, M.D., Translational Autoinflammatory Disease Section, NIAMS, NIH, Bethesda, Maryland |
| 9:40 a.m. | Coffee Break |
| 10:00 a.m | Imaging of CRMO Geetika Khanna, M.D., Professor of Radiology, University of Iowa, Iowa City, Iowa |
| 10:20 a.m. | Long term outcome of CRMO and clinical evaluation of the context of a clinical trial
Chantal Job-Deslandre, M.D., Professor of Rheumatology, Hôpital Cochin, Paris, France |
| 10:40 a.m. | Evaluating and quantifying gastrointestinal disease
Colleen Hadigan, M.D., Head, Pediatric Gastrointestinal Consult Service, NIAID, NIH, Bethesda, Maryland |
| 11:00 a.m. | Treatment trials of CRMO
Ronald Laxer, M.D., CM, FRCPC, Professor of Divisions of Rheumatology, The Hospital for Sick Children, Toronto, Canada |
| 11:20 a.m. | Functional outcome measures in chronic diseases? Scott Paul, M.D., Rehabilitation Department, Clinical Center, NIH, Bethesda, Maryland |
| 11:40 a.m. | Total body MRI in relapsing CRMO Paivi Miettunen, M.D., Pediatric Rheumatology, Alberta Children’s Hospital, Calgary, Canada |
| 11:50 noon | Lunch (Box lunch at the Cloisters) |
| 12:30 p.m. | Immunological evaluation of bone lesions
Deborah Novack, M.D., Assistant Professor, Pathology and Immunology, Washington University St. Louis, St. Louis, Missouri |
| 12:50 p.m. | Immunology of gastrointestinal and mucosal inflammatory lesions
Warren Strober, M.D., Chief, Mucosal Immunity Section, Laboratory of Host Defenses, NIAID, NIH, Bethesda, Maryland |
| 1:10 p.m. | Trapped receptors in TRAPS: a case study in understanding pathogenesis of an autoinflammatory syndrome
Richard Siegel, M.D., Ph.D., Head, Immunoregulation Unit, NIAMS, NIH, Bethesda, Maryland |
| 1:30 p.m. | Evaluating aberrant innate immune responses in clinical trials Steven Holland, M.D., Chief, Laboratory of Clinical Infectious Diseases, NIAID, NIH, Bethesda, Maryland |
| 1:50 p.m. | Choosing Clinical trials Endpoints Edward H. Giannini, MSc, DrPH, Professor, Division of Rheumatology at Cincinnati Children's Hospital, Cincinnati, Ohio |
| 2:10 p.m. | Coffee Break |
| 2:30 p.m. | Concurrent Workshops
CLINICAL WORKSHOPS: BIOMARKER WORKSHOPS: Please review the attached workshop assignment sheets for your workgroup assignment. If you do not find your name on this particular afternoon, please identify a discussion group you would like to participate in. Maps with assigned location for each workshop can be found at the reception area. |
| 5:00 p.m. | Meet with the entire group to discuss trial design and possible agents for intervention |
| 6:30 p.m. | Dinner at the Cloisters (only for those who registered upfront for this event) |
| 8:00 p.m. | Shuttle back to the hotel |
Time of Event |
Event |
| 6:30 a.m. | NIH security clearance at hotel lobby (Marriott Pooks-Hill) |
| 7:00 a.m. | Departure of bus from Marriott Pooks-Hill to the Cloisters at the NIH |
| 7:30 a.m. | Coffee and light refreshments |
| 7:50 a.m. | Welcome to newcomers for Behçet's meeting and discussion of scope of today's meeting Raphaela Goldbach-Mansky, M.D., Translational Autoinflammatory Disease Section, NIAMS, NIH, Bethesda, Maryland Karyl Barron, M.D., Deputy Director, Division of Intramural Research, NIAID, NIH, Bethesda, Maryland Stephen Katz, M.D., Ph.D., Director, NIAMS, NIH, Bethesda, Maryland |
| 8:00 a.m. | Organizational and other help that CARRA can provide
Robert Fuhlbrigge, M.D., Ph.D., Boston Medical Center, Boston, Massachusetts. |
| 8:15 a.m. | Discussion of a clinical trial design and an international CRMO study consortium (continuation from previous evening) |
| 9:00 a.m. | Setting up and maintaining a database for sharing clinical data Lisa Rider, M.D., Environmental Autoimmunity Group, NIEHS, NIH, Bethesda, Maryland |
| 9:15 a.m. | Issues of setting up a pediatric Behçet’s database, access from the US, compliance and possibilities to add functionality such as a clinical data repository. Isabelle Kone-Paut, M.D., Department of Pediatrics and Pediatric Rheumatology, Hôpital de Bicêtre, Le Kremlin-Bicêtre, France |
| 9:30 a.m. | Specific issues of setting up a registry in patients with Behçet’s disease: How it could work? Yusuf Yazici, M.D., Assistant Professor, Hospital for Joint Diseases, New York, NY |
| 9:45 a.m. | Oral lesions in inflammatory conditions, studying the immune response of oral lesions Sharon Gordon, DDS, MPH, Ph.D., Department of Biomedical Sciences, University of Maryland, Baltimore, Maryland |
| 10:05 a.m. | Coffee Break |
| 10:15 a.m. | Genetics of Behçet’s disease and ongoing and planned research on the
etiopathogenesis of the disease Ahmet Gül, M.D., Professor of Rheumatology, Istanbul University, Istanbul, Turkey |
| 10:35 a.m. | Ongoing research in children and adolescents with Behçet's disease Emire Seyahi, M.D., Associate Professor of Rheumatology, Cerrahpasa Medical School, Istanbul, Turkey |
| 10:55 a.m. | Clinical spectrum of Behçet's disease in Japan and evaluation of
novel biomarkers in the determination of disease subsets and response to therapy Yoshiaki Ishigatsubo, M.D., Ph.D., Department of Medicine and Clinical Immunology, Yokohama City University, Yokohama, Japan |
| 11:15 a.m. | What we learnt from clinical trials in Behçets disease Hasan Yazici, M.D., Professor of Rheumatology, Istanbul University, Istanbul, Turkey |
| 11:35 a.m. | JIA Heterogeneity as seen through gene expression analysis of peripheral blood components Robert Colbert, M.D., Ph.D., Chief, Pediatric Translational Research Branch, NIAMS, NIH, Bethesda, Maryland |
| 11:55 a.m. | Lunch (Box lunch at the Cloisters) |
| 12:30 p.m. | Abnormalities in the adaptive immune system Graham Wallace, Ph.D., Senior Lecturer, Academic Unit of Opthalmology, University of Birmingham, Birmingham, United Kingdom |
| 12:50 p.m. | Detecting viruses in mucocutaneous lesions Jeffrey Cohen, M.D., Chief, Medical Virology Section, NIAID, NIH, Bethesda, Maryland |
| 1:05 p.m. | Microarray analysis of blood samples Ivona Aksentijevich, M.D., Staff Scientist, Genetics and Genomics Branch, NIAMS, NIH, Bethesda, Maryland |
| 1:20 p.m. | The genetic challenges in Behçet’s s disease Elaine Remmers, Ph.D., Staff Scientist, Genetics and Genomics Branch, NIAMS, NIH, Bethesda, Maryland |
| 1:35 p.m. | Eye disease and outcomes in Behçet's disease H. Nida Sen, M.D., MHS, Program Director, Uveitis and Ocular Immunology Fellowship, NEI, NIH, Bethesda, Maryland |
| 1:50 p.m. | An enlarging spectrum and a broader view of autoinflammatory diseases Daniel Kastner, M.D., Ph.D., Clinical Director, NIAMS, NIH, Bethesda, Maryland |
| 2:10 p.m. | Coffee Break |
| 2:30 p.m. | Concurrent Workshops
CLINICAL WORKSHOPS (Behcet’s workshop 1): BIOMARKER WORKSHOPS: Please review the attached workshop assignment sheets for your workgroup assignment. If you do not find your name on this particular afternoon, please identify a discussion group you would like to participate in. Maps with assigned location for each workshop can be found at the reception area. |
| 6:00 p.m. | Leaving NIH for Dinner in Bethesda Dinner will be at the Cesco Trattoria in Bethesda Cesco Trattoria |
Time of Event |
Event |
| 6:30 a.m. | NIH security clearance at hotel lobby (Marriott Pooks-Hill) |
| 7:00 a.m. | Departure of bus from Marriott Pooks-Hill to the Cloisters at the NIH |
| 7:30 a.m. | Coffee and light refreshments |
| 8:00 a.m. | Opening remarks on Behçet’s disease and potential trial design Raphaela Goldbach-Mansky, M.D., Translational Autoinflammatory Disease Section, NIAMS, NIH, Bethesda, Maryland |
| 8:10 a.m. | Skin and mucosal pathology in Behçet's disease Christos C. Zouboulis, M.D., Professor, Director Departments of Dermatology, Venereology, Allergology and Immunology, Dessau Medical Center, Dessau, Germany |
| 8:30 a.m. | Th17 and microbial stimulation, tests to evaluate adaptive and innate immune responses Daniel Douek, M.D., Chief, Human Immunology Laboratory, Vaccine Research Center, Bethesda, Maryland |
| 8:50 a.m. | Determining ophthalmologic outcomes in clinical trials in Behçet's disease Bahram Bodaghi, M.D., Ph.D., Professor of Ophthalmology, University of Paris, Paris, France |
| 9:10 a.m. | Evaluation of immunological processes in the skin and developing biomarkers in the context of an interventional study Michelle A Lowes, M.D., Assistant Professor of Clinical Investigation, The Rockefeller University, New York, New York |
| 9:30 a.m. | Coffee Break |
| 9:45 a.m. | Concurrent Workshops
CLINICAL WORKSHOPS (Behcet’s workshop 2): NATIONAL AND INTERNATIONAL COLLABORATIONS Please review the attached workshop assignment sheets for your workgroup assignment. If you do not find your name on the Friday morning assignment sheet, please identify a discussion group you would like to participate in and join them. Maps with assigned location for each workshop can be found at the reception area. |
| 12:00 p.m. | Lunch (Box lunch Cloisters) Presentation and group discussions |
| 1:30 p.m. | Concluding Remarks and Adjourn |
